Amanda - posted on 06/11/2010 ( 6 moms have responded )
My son contracted Group B Strep when he was born, but never found out till he was 3 months old. Orion stopped eating and we ended up having to take him to Urgent Care. The dr there told us he had trash and acid reflux and told us to take him to the hospital so he wouldnt dehydrate over the weekend. We get to the hospital and the nurses started the admitting process. As soon as the dr came in, he said Orion has meningitis and to take him to the intensive care unit right away. After hours and hours of waiting and tests, we found out Orion also had hydrocephalus. The hydrocephalus caused a stroke (which made his eyes click to the right) and seizures. After a long month at the hospital, Orion came home with a VP shunt and a G-tube for feeding. He hasnt been the same since... In March, a specialist told us that he has Cerebral Palsy. Later that month, Orion got RSV. His breathing didnt sound right even when he came home after that 2 week hospital visit. We ended up having to take him in again because he still wasnt breathing right. The specialist tried taking out his adenoids to help him breathe through his nose, but it didnt help much. The only resort at that point was to put in a trach... I have to admit, it HAS solved his breathing problems.
My son has been through a lot in his short life; he will be 1 in July. So we just hope and pray for things to go okay, but it gets a little depressing at times. So here I am trying to get a little support and tips from mothers who have been through similar things...
Mother to a new trach baby