Arlanna - posted on 11/14/2009 ( 11 moms have responded )
Good Evening Mom's, I hope this finds everyone doing well. I check this page occasionally to see if anyone new has joined or what other people have for stories, because with this rare syndrome I continuly wonder how many of us there are out in the world. Everyone of us has a different story, a different beginning, a different middle and certainly a different ending. I wonder if any of you feel as if I do, that feeling of what the future holds for our twins that started fighing for life even before they were born. My Twins will be three on the 24th. And for the first time I have stopped reliving every day from the moment I found out I was having twins at 19 weeks to the day I had my recipient James baptised at 3 hrs old. Although I always question what will they be like when...How will the damage to them effect them as a teenage playing football. I feel like the oly stories on the internet are before the advanced treatments came out. There should be a book about our stories so those that come after us know all the angles, not just the saddest. Does anyone have a story to share !