Fibromyalgia and/or Irritable Bowel Syndrome

Carrie - posted on 11/16/2009 ( 11 moms have responded )

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Hi! My name is Carrie and I'm 53-years-old. I have Fibro (Severe), IBS (Severe) and moderate Bordliner Personality Disorder (BPD) for which I am medicated. I live in pain all the time. I'd be happy to get to know any of you here; especially, those who also have a combination of any of the above illnesses. I have recently become aware that BPD is also caused by being in a "Fight or Flight" situation for too long, as can be the case with Fibro. I also noted that IBS can often be a symptom of Fibro. I'm wondering if anyone else has noted these similarities. Do you think there could be a correlation and if so, why isn't anyone studying this correlation? Have any of you been told that Fibro is caused by being unprepared for a surgery? I've found that abuse can result in Fibro and BPD as well. Looking forward to getting to know all of you. I'm also the mom of a 30-yr-old daughter and have 3 gransons aged 6yrs, 5yrs, and 3yrs. I am married to a great guy who is a long-distance, big-rig driver and I travel with him so that he can help me when I need it. At least I get out of the house that way. Before he did this as a job, I was mostly house-bound. He helps me to get in and out of the truck, to remember my meds, etc... It's a far better quality of life this way. I wish you all less-painful days! Carrie

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Dianne - posted on 01/23/2010

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I have Diabetes, Irritable Bowel Syndrome, and Interstitial cystitis. My Endocrinologist says that new studies are coming out indicating that low levels of vitamin D may be part of the problem. I live in a part of the country where there isn't alot of sunshine. Taking vitamin D supplements per his Rx has made a big difference in my energy level. I would encourage you to look up science based studies regarding vitamin D correlating with autoimmune diseases.

Annette - posted on 01/22/2010

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I am 40 yrs old and have ulcerative colitis for the past 10 years. The doctors would tell me the pain was from the UC but I didn't believe them I was in so much pain I would be back in bed by noon. I couldn't handle anything. When I finally got the UC in order I was still in major pain. I did research on Fibromyalgia and went to my doctor and told her I self diagnosed myself and needed her to agree. She did and put me on celexa which helped for a bit. then I had a major flair up and had a different doctor who believed the pain I was in and sent me to pain management. He put me on flexeral and ambien plus I take neurotin 3 x a day which really helps a lot. He told me to take the ambien because sleep is a big helper for the pain. I now feel better for most the month. I do find that around my PMS time I start to have flair ups and I just try to stay warm and sleep enough.

Rosie - posted on 01/18/2010

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Hi my name is Rosie and I have fibro[severe] and I have IBS [severe] they both are ruining my life .I would be more than happy to talk with you.

Angela - posted on 12/05/2009

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Hi Carrie,



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Della-Marie - posted on 11/24/2009

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Hi Carrie, (and everyone else!)...i too, have chronic Fibro, chronic IBS, (which is giving me great difficulty this week, moreso than usual!), and a slew of other diagnosis'. I am on various medications to keep the pain under control as well, so i know what you must be going through. I also have issues with not being able to sleep at night, which is a hardship on my marriage. I am in the process of trying to get Social Security, as i can not work and with this recession it's be very difficult to keep all the bills paid. No one really understands what i am going through, though my wonderful husband tries, and helps me stay as sane as i can. I do know that IBS can and is, at least in my case, closely correlated with Fibro, as are several other conditions, (such as RA, depression, etc.). I am 44, and the mom of two sons, ages 22, and 20. I don't kow that i can give you any answers , but i can give you support. You aren't crazy, which in the early days, that was what doctors thought...that the pain was imagined. No. It IS real.

Anyway, like i said, i probably didn't say anything you didn't already know, but, i hope it helps to know that you aren't alone. Feel free to email me anytime, (that goes for any of you)! Take care and hope your pain is less today!!

Kevina - posted on 11/21/2009

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hi carrie im 28 i have sever fibro and now in a wheelchair as i cant walk far coz of it im in sever pain 24/7 and on strong pain meds anti depressants etc ive also got sever ibs ive just had mri as the doctors are not sure if ive got m,s aswell yet i cant keep my eyes open in the day and cant sleep at night im very depressed with it all i was abused growing up aswell, my partner is my support he helps me so much with everything like baths, gettin me out so im not stuck in and loads of other things im so lucky to have him, i have 2 children 7-9 they are great they try to help as much as they can, ive just started fainting all the time aswell but we dont know why so i think i sort of know what you are going through to some extent take care x

Martha - posted on 11/18/2009

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I have Fibro, IBS, Restless Leg Snydrome, Sleep Apnea, Neuropathy, Osetoarthrithis, DVT, PE, and just too many to name. But I am in constant pain. I am now going through more blood tests, MRI, CT scan, Lumbar puncture, and saliva gland biopsy. But it all leads to several auto immune diseases. My husband is my greatest support but I have learned that thee only one that helps me the most is my Lord. I am a born again Christian and if your not try reading Isaiah 58:8. It has been a great scripture for me. I attend a Bible Study Fellowship, which has help me understand that I can seek healing through my savior. I may not get total healing but when I am in great pain, I can visualize crawling in my Lord's lap and crying with total abandonment. I am the sheep that the shepherd is holding and saying is okay I am with you. I will be with you through all you have to endure. My pain is not any greater nor any less but I have friends who pray for me, and the Lord to hold me up.

Angela - posted on 11/17/2009

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Hi Carrie,

My sister was diagnosed with Lupus about 9 yrs ago. I would love to share with you something that she has found that has helped her and so many others.

For more information email me at amanzi5@yahoo.com

Looking forward to sharing my information with you.

Warmly,
Angela

[deleted account]

I have Fibro along with Severe Rheumatoid Arthritis and Lupus. I have been sick since I was around 10 years old. I was able to lead a fairly productive life, albeit in pain, until about 10 years ago when the RA became too debilitating. I will undergo my 13th surgery this Friday to help with the severe deformity in my right hand. I was told that my fibro was possibly related to the lupus and RA.

Christine - posted on 11/16/2009

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hi carrie, i think there are a number of things that are closely related to fibromyalgia. i have adrenal insufficiency. someone on here suggested i google "fibromyalgia and adrenal insufficiency" then they found a link right away for it for me. i have been diagnosed as adult ADD and bipolar NOS and i have had severe depression and anxiety at different times in my life----but the symptoms of them are so similar it's hard to tell for sure which is which, which is caused by fibro. i am recently on some antidepressants that are working for me---and my pain is getting worse as winter comes on----so i now know that my pain is not connected to my depression.
you're husband sounds like a great guy---you're lucky to have him and be able to out with him in his truck.

Rebecca - posted on 11/16/2009

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I have Fibro and IBS. I also suffer from depression. I believe these all can stem from the "fight or flight" situation. I suffered severe childhood abuse. I have never heard about it being caused by unpreparedness for surgery.---I am 41 years old and have 2 children ages 15 and 10. My sister has BPD. But, she refuses to deal with it. She also suffered abuse.

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