I am quickly losing hope...

Rebecca - posted on 03/22/2010 ( 8 moms have responded )

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I have Fibromyalgia. I have only had it for 3 years. I am now unable to work and really depressed. What does the future hold? Increasing pain for years and years? Take drugs until I become addicted? I hurt and nobody around me really understands. Even other people who have FM. Theirs doesn't seem as severe. My friends forget that I have it. They give me big bear hugs and do not know just how much it hurts. If only I could forget about it. I NEVER forget. The pain is always there. My doctor tries to help but it isn't helping enough. I just see myself becoming more disabled. Last year I got my handicapped parking pass and this year I got a shower chair. I also have an electric wheel chair and am looking for a pair of ramps for it. I am unable to do the things I did 3 years ago before this started. I can't enjoy the things that I used to love. I really try to be positive and hope that this may be cured some day soon. But, reality sets in. I am trying to modify things so that I can still do activities that I love. But, it is not the same. I built up my steering wheel to help ease my hand pain when driving. I am going to try to throw clay again. (use the potter's wheel) I have a teacher who is willing to help me learn a new way to throw using a wrist brace. I try but it all fails. My hands still hurt while driving and who knows what will happen at ceramics class. Even if it does help I still won't have the energy for it. It just all looks so hopeless.

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Andora - posted on 03/31/2010

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try not to let depression win dear girl! i know it is hard. i have dealt with this for 12 years, most of which fibromyalgia wasn't recognized as a syndrome. still, look to your faith, your family, and your friends on those days when you have no hope of your own. talk about it, write about it, get mad about it if you must but don't let it win! you have what it takes to make it through this and you have people who love you and want to help you. let them. it may take time but you will find what helps. you're gonna make it.

April - posted on 03/29/2010

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You need to get off the drugs and try the natural stuff. Try the fibro diets. Go to the book store. Are you taking Lyrica? You should be. Very limited amounts of pain meds. Lots of water. Lots of walking & STRETCHING! I go to a stretching class & that has helped me the most of anything I have tried. I also have massage. Ttry water arobics or just being in a warm jacuzzi or bath. Do not sit around and do not use that electric wheel chair. You will just get worse. You need to go to a sports rehab dr.or someone that specializes in fibro. I too have a handicapped sticker & that is fine for the bad days when it is raining or cold or you just have a bad day. For the most part, you need to walk. As far as your hands, they need to be stretched and you should talk to your dr. about some braces that you can wear while you drive. I have some that are padded. Also, you probably need some for night time so that you don't bend your wrists like carpal tunnel. I also have carpal tunnel & was told that I need to have the surgery now! I told the lady that does my massage & teaches my stretching class & she showed me extra stretches to do for carpal tunnel & I don't need the surgery & I no longer wear my braces at night. If I do my stretches, I never have problems. Stretching can cure a lot of things. I know it is hard but you sound like you are very depressed and you need to snap out of it. Get up & move. You can feel better. I promise you, you can. I have had fibro for about 20 years & fortunately for me when I sought answers for my pain, was diagnosed quickly. I was never told it was in my head or all the usual things dr.'s tell fibro patients. I have had some great dr.'s. It sounds like your dr. is very caring but not the dr. that can help you with this. Do you take an anti-depressant? It sounds like you might need one which lots of us do and even if we are not depressed, they often prescribe Cymbalta for fibro. It helps with the pain. Find a dr. that specializes in fibro and talk to him/her about your meds. Too many pain meds can bring you down. I don't want you to think this is hopeless. It is not. Sure, there is no cure but you can get back to your pottery.

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Kendra - posted on 03/23/2014

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Also, don't wait around for a support group. Start a group yourself! It's easy. You can use meetup.com or many other resources. Go out there and build yourself a support group. It will be so valuable to you.

Kendra - posted on 03/23/2014

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You need to get that weight off IMMEDIATELY. Carrying around 100 extra pounds will make everything so much worse and in the end it will kill you. Talk to your doctor about surgery if you have to but get that weight off. You don't have a shot at feeling better with that much extra weight on you. I understand the chronic pain and that it makes life so much harder but at this point, that weight is the #1 culprit in making your life hard. I am a mom to two year old twins and I also suffer from chronic pain so I understand what you're going through. Take things a step at a time but make that first step weight
loss. Good luck to you.

Steph - posted on 03/04/2013

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Hello, I'm new to this site, but I want to get my story out there, because I suffered for 5 years with arthritis, headaches, sinus issues, sore muscles, back and neck problems, anxiety, brain fog...tiredness..i could go on. A doctor finally diagnosed me with FM and wanted to put me on meds. I couldn't believe at 35 years old with 3 kids that I was feeling like I was 90 years old. I was scared, and worried ..I KNEW something else was going on. Before getting on the meds, I did more and more research as to why my immune system was not only so weak, but attacking myself. The answer was Leaky Gut. I was willing to try anything. I had low Vitamin D, and I was lactose intolerant. I first cut out the gluten, and felt a little better, but then I cut out the dairy, and nSAID pain meds. I can sit cross legged now, my thinking is back to normal, anxiety is gone, I lost 20 lbs, periods are back to normal...its a miracle to me, because I was in such a bad place only a year ago. If you are willing to do anything to get better, research leaky gut and what foods to avoid. Its not a magic pill, it is a life change. My you all find good health!

Ginger - posted on 01/14/2013

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HelloThere,
I don't know if I have any positives to say. because I was reading to find some positivity breakthrus as well. I have been in pain for many years, and in 2008, I went to a Neurologist, he found and ran test, and came to the conclusion and diagnoses of Fibromyalgia. At this time I was working as a Manager of Yankee Candle( One of the hardest and most physical jobs I have ever had to do) During this time, I was diagnosed with Osteoperosis, OA, Spinal Stenosis, Ankylosing Spondylitis, IBS, Diviticulosis, Chronis Back pain and neck pain, HBP, Asthma, Thyroid issues, plus a few more diagnosis. I had an accident at work and 24 large jar candles fell on top of me hitting my head, nek , arm and back. I have not been right since. This accident caused more pain and more agony. My primary doesnt know what else to do accept to prescribe me pain meds, muscle relaxers, and anti depressants, and anti anxiety meds. I have had panic and anxiety attacks for years and have been on anti depressants for years. I am so miserable, and no one seems to undersatnd my pain and fatigue. I fight to go on everyday, and I pray all the time for God to give me strength to make it. I went on disability last year and I am waiting on my medical, so that I can see a Rheumatologist, since this is what I was told by several IME Drs, that I needed. I now have these spots forming on my foot and stomach and I have gained 100 pounds over the last 6 years, because of the pain and fatigue. I am really trying to stay positive, but this stuff takes a major toll on you, and there are no support groups in my area that I can attend for fibromyalgia, so I have been reading and trying to help myself out, but I am still at square one. I wish and pray for you to find relief, because I know this is the hardest part of my life that I ever had to go thru. I have also tried Physical therapy and water aerobics, in which like you, only help at that time of therapy then it is pain agin... If anyone has any advice for us please let us know . Thanks and God Bless. Thanks for reading!

Audrey - posted on 03/28/2010

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Hi Rebecca

Nice to meet you here in the Circle of Moms. Sorry to hear that you ve been in pain for so long. I m from Singapore and I too suffer from chronic backaches due to a slip disc in my lower lumbar and shoulderaches due to a bad fall in March 2009. I do know what it is like to be in constant pain even though I dont have Fibromyalgia.

I Just joined this group. Anyway, in JUly 2009, a friend of mine introduced me to this organic health supplement from the US and it has not only helped me but also a lot of others with chronic pain.

For myself, after taking the supplements for the first week, my pain is gone and I am off painkillers. My aunty who is due for a knee surgery but is afraid of the surgery, has been housebound for over 2 years and is on painkillers daily. We brought her the supplements and after 3 days, she called us to thank us as she is painfree and is able to go shopping for the first time in 2 years.

Besides helping to reduce inflammation in the joints, the supplements also help boost my immune system which results in lesser colds and flus in my family. I ve just turned 50 last year.

These nutritional supplements are all natural with no fillers and binders and is produced in a FDA registered factory in the US. That is why I m taking them. There is a lady in our group who also suffered from Fibromyalgia just like you and in 3 weeks after taking these supplements, she is pain free.

If you are interested, do drop me a private message and I ll send you the link and some one to talk to in the US. Take care and God Bless. Audrey

Amanda - posted on 03/23/2010

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Hi Rebecca,

Firstly let me say how sorry i am to hear your suffering so badly when i read your message it sounded just like i was reading about myself I know just how you feel iv had fibromyalgia for 3 yrs iv also got cfs, ventricular tachicardia, thyroid problems, slipped/ bulging disc of my lower back and depression, is there any wonder!!! with what this illness is like, iv also got my blue disabled parking badge, im 34yrs old but feel like an 80yr old, i hurt every day, i walk with a stick or crutches, i wake up every morning after a restless night feeling yukky and ache all over and wonder will it ever get better. Some days i sit crying thinking if this is the life iv got to cope with is it worth it , then i see the pictures of my 3 lovely children and realise i have to cope for there sake they see me in pain and it upsets them then upsets me again because iv made them sad. They help as much as they can my mum does my washing and ironing to help me.

I used to run for the county also do ballet and now it hurts to even walk, im on loads of medications for all my problems but get fed up of taking so many tablets and yet im still in pain and aching. Like yourself im also doing things around my house and garden to help make things easier like im having a shower put in and raising my gardens up into railway sleepers because every year i used to grow my own vegtables and i miss it so much iv also hired a gardener to mow my lawns iv not got a husband or partner im a single parent my kids have no contact with there dad.

Another thing thats going around my head is because im single i wont find anyone who would want to date me or marry me when im so poorly so iv got a life time of being lonely to think about which make me feel low even more. All my friends have carried on with there lives and they don't bother with me much anymore. We didn't ask for this illness but we have to cope with it, Please if you need someone to talk to or even just so you can moan about feeling ill your welcome to send me messages maybe we can keep in contact and help each other.

light hugs Amanda xx

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