Jeanette - posted on 08/10/2009 ( 2 moms have responded )
Hello all....I thought I would introduce myself and give a little background information.
I'm a 38 year old mom of 3....two teenage girls ages 18 and 16, and a son who is 8 months. I just got remarried last month to a really great guy who not only understands the pain I go through, but does everything he can to help and support me, and even get me through the day if need be. I'm very lucky to have found him because my first husband....let's just say he had a lot of resentment over my illnesses and even accused me of using them to get out of doing things, or even making them seem worse for sympathy.
My first illness/chronic pain condition to develop was Fibromyalgia, back in late 2000. It stemmed from a nightmarish adverse reaction to an antibiotic. I didn't believe an antibiotic could actually trigger Fibro until it was confirmed to me by a professor in Indiana who has studied the effects of these drugs. Scary! Not too long later, I fell on a concrete floor and landed on my shoulder. Because of a multitude of factors, it just got worse and worse. It went from a dx of a sprain to a separated shoulder, to nerve impingement, and when I had surgery, they had to file off part of my shoulder bone, and remove a ligament that had fused to a spur that grew in record time. I now have about 75% use of my shoulder left.
Also, because of the antibiotic, and steroids that I wasn't supposed to have because of it, I ended up with nerve damage, mostly in my lower back. I also had SI joint problems from a car accident, and it just zeroed in on that area. I've had to have RF nerve ablations to "burn out" the nerves from L4-S1 (if not more, can't remember) area of my back, but those only lasted about 6 months and I can't afford more. With my back, as a whole, I have facet joint syndrome, undifferentiated spondylitis, and radiculopathy.
I also have a condition called PLMD, or Periodic Limb Movement Disorder. Mostly it causes random electric impulses in my body, which makes my legs, arms, or other parts of my body jerk at random. It happens mostly at night, but sometimes also happens during the day if I'm tired or very stressed. It's kind of embarrassing if someone I don't know sees it happen!
I tend to not share my conditions with co-workers or casual friends/acquaintances. I had some bad experiences with being vocal about them, so now I'm more cautious. I also don't want to be judged or pitied because of my disabilities, but rather have people focus on my abilities. I'm fortunate that with good medical treatment, I'm able to work, and I have the attitude that I may have these illnesses, but they will NEVER have me!