ROLL CALL - Let's get to know one another :-)

[deleted account] ( 136 moms have responded )

Hey everyone,

SInce this is such a new group I thought it would be fun to get to know one another better. So come out of lurkdom and join the fun :-) Looking forward to getting to know everyone!

Gentle hugs,

Marisa


Name:

Condition, how long you've had it:

Children's ages:

Are you a SAHM, WAHM, WOHM:

Favorite holiday song:

MOST HELPFUL POSTS

Tammy - posted on 06/27/2012

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Attn all who are trying to get SS
Yes keep trying, with my case my lawyer said I had a better case n bigger than war Vets (no offense to them of course because I'm 100% for them getting help!!!) but I was denied had to appeal n all my doctors were shocked it came down to one statement the judge said he felt I could take my pain meds n should feel better to have a normal day! This was what held my disability for 3 extra years. Needless to say I did get it at the 2nd hearing n it got back dated farther then I thought it would, the only bad thing is Medicare don't back date so all the medical bills are in limbo! But she had me already file a new case before we went to my appeal hearing just incase, so we were already on the road. The good thing to is they the lawyers are limited to a cap so it don't matter if it takes 1yr or 10yrs they can only get paid a certain amount so don't stop! Now if our government dont cut out SS I put my money in as did all of you when you worked but yet we are threatens with the fact that it will run out of funds in the near future!

Tammy - posted on 03/13/2012

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Oh I forgot asthma, acalasha some other gi condition, a few of my docs say fybermyalga but others- my pain doc n my Neuroligist say no and not to let anyone tell me that! Herniated slipped disc n fracturct tibua that has been fractured since 2006 n well not heel n only shows up on bone scans not X-rays! Enlarged right breast so much so they had to take it for fear that it had a tumar they took 9lbs from the right n 4 from the left that's how much it grew over a few months still with no reason- but my mom passes from breast cancer so because they were taking 1 I had them take both n it was nov 2010 n I still have a hole & I'm not healed n I'm waitiing to finish my reconstruction! So I'm not healing right! Now with my first email plus this I think I got it



I just feel again n broke my R-ankle again n was told my break from 2007 is still present n worse, the new break is in a different spot so wearing a boot, may need surgery!



My work history was a jack of all traits was a marines wife for 10yrs so had to move around n did everything from working in high in hair salons in Cali to home party's depending, a cashier at grocery store in TX on if he was home or stationed overseas! When he got out n we movEd home to Ia I did 2 years at out bulk mail center for the post office the night hours proved to be to much on our marriage n my kids suffered. During divorce I went back into the telecom field n worked for our local phone company for 6years befor having 15 kidney stones in one year my mom n son n myself all 3 having multiple surgeries resulting in me having to miss work and them letting me go the second they could! (they were cleaning house of the top seneroity/ top paid) because they negotied a new name for the job n started bringing in new hires for half the pay. Most couldn't stay at this job over 1 to 2 yrs tops!

Anyway this was the time I was told by my doctor I couldn't ever work again anyway, but I was determined to. I am a person that even in pain I can't sit still, which is o e reason it's always hard for them to understand me! So I tried to go back to installing cable which I had done before, n I thor liscenced to be a insurance agent thinking I could make my own hours but everything I did, proved to be to much on my body so with that n thoughts of my doctor it was time to apply for Ssi, now my case was very hard n long n although the judge pretty much approved me at the hearing I received a unfavorable decision. I had to appeal n it was a long 4yrs but I finally was approved n it was back dated even farther then my original hearing!

Mary - posted on 04/15/2009

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Quoting Marisa:

ROLL CALL - Let's get to know one another :-)

Hey everyone,

SInce this is such a new group I thought it would be fun to get to know one another better. So come out of lurkdom and join the fun :-) Looking forward to getting to know everyone!

Gentle hugs,

Marisa


Name:  Mary G.

Condition, how long you've had it:  I've had IBS and GERD for about 18 years.  7 years ago I had a heart attack at age 38 (not overweight, no high blood pressure or cholesterol...hereditary).  I was an extremely active adult and I thought healthy adult.  After the heart attack, I had anxiety and sleep disorders, along with depression.  5 years ago I had 2 Pulmonary Embolisms and after leaving the hospital came down with CFS and Fibro.  They found out that the 2 PE's were caused by a blood disorder that causes my blood to clot.  So, I am on blood thinners for the rest of my life..  Due to all the heart and blood medications, I cannot take many pain killers and no steroid meds to ease the pain.  I've come on here to talk about my pain.  I do not express my pain or anxiety I feel with anyone.  I live through it every day alone.  I do not like to complain and hate to have someone feel sorry for me.  So, I just weather these illnesses quietly and alone.  I thought  that maybe if I had someone else who understands the chronic pain and illnesses, I would have someone to talk with and make it easier to go on.  The pain has gotten continual and I never feel relief; even when I take the meds.  It is just so frustrating living this way.  I'm lucky to have 3 wonderful children and 3 grandchildren.  They are the reason I wake up every day.  I just feel so alone with my pain sometimes.  Anyone else out there feel that way?

Children's ages:  Son 27, Daughter 24, and another Daughter 18

Are you a SAHM, WAHM, WOHM:  WAHM, Full-time

Favorite holiday song:  O Holy Night


 

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Tammy - posted on 06/27/2012

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Mary - you asked if anyone else felt that way! Yes every second of everyday! When my mom was still with us should could look at me n know and she was the only one! The problem was is she was in the process of dying from breast cancer so I would tell her half truths or say I was fine! She knew different! So once I opened up to her just to get a phone call from a aunt about how selfish I was n how my mom was now worried about me. Now it's been 5 yrs n this same ain't got upset with me ( which is so weird when they think they know you, when you don't leave your home and you don't talk to anyone) the only thing there is are rumors my large family likes to spread because they don't know what's going on!
Anyway she says to me that on my mothers death bed while she was in hospice she suggested that I needed to be committed! Well I didn't know any of this but about 6 to 8 months after my mom had passed I was in extreme pain, what I now know is I was walking with a break in my hip but didn't know it at the time! But i called her daughter who I was at the time very close to, n she had her mom come to me. She told me to go to the hospital n say I was going to kill myself n it was because of the pain and that would force them to do medical test!
First they didn't do one test, they left me alone n let me sign out 24 hours later. N 2nd she had her own agenda! I felt crazy n it's the people like that that make us feel crazy n make it so hard for us to have anyone to talk to! Her daughter was the only one I was open with about the pain n stuff I was going through other then posting on FB & I found that is what people find depressing n selfish. It's funny when I read their post it says how they want to kill the c son in law, or she was going to run over a car in front of her on the way to work that day well that's what they want to talk about, I don't work n pain is my life!
So like you I have interlized it for the past 5yrs until recently I got in touch with a cousin that seems to suffer all the same things I do! N I have to say I hate that she is going through it, but to have someone that understands n to compare notes with is something I never thought I would have nor did I think it would matter as much as it does! So please if you would like look me up on FB or send me a email tammon71@yahoo.com because the more support the better!

Tammy - posted on 06/27/2012

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Oh n I also have a child that had a 1 in a million chance of surviving birth that has stage 2 chronic kidney disease he is now almost 16. He is doing great n has to be watched n has had to many surgeries to count but they show us adults how to fight!

Melissa - posted on 06/26/2012

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@mary G (and ALL OF the Chronics!!).. Mary, your post went straight to my heart.. I suffer in silence too.. I have no one who understands that just because they can't see a broken bone or anything obvious, that doesn't mean it's not there..

I have been fighting for so long, sometimes I feel like, "is this it?"



My youngest is 16 and she is really a good kid and has been there for me her whole life!.. When I have a vertigo attack, she can tell by my voice.. she gets me my meds, a drink and a bag to throw up in... one time the attack was so bad and scary for her, that when I woke up, she had fallen asleep on the floor next to my bed, in the dark, no tv, no lights, no nothing, and no blanket.. I felt like a failure and got up and guided her to bed.. her only question was, "did it go away, Mom?"



I want to be able to talk to others and say, THIS SUCKS without being judged or told, "Be happy, your alive!" sometimes, I'm not happy and I need to vent!!!



I use facebook most of the time.. ANYONE, please look for me!! I would LOVE to talk to those who understand

Melissa - posted on 06/26/2012

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Hello,,,

My name is Melissa



I herniated 2 disks in my back while doing CPR on a patient in Dec. of 1995.. I was paralyzed for over 1 year but with medication and hard work, I learned how to walk again. My conditions are as follows.. the herniated disks, Deg. Disk Disease (that's why they won't operate, my disks are too fragile), fibro, sciatica, severe muscle spasms and chronic pain, severe VERTIGO, ughh that is terrible.AND anxiety, agoraphobia,(under control) insomnia, drop foot left over from the year in bed..and something that makes me slur my words and not form sentences and makes my hands shake (probably the perfect storm of medication or something) double, triple vision, blurry probably from meds too...



I have 22 yr old son, Alex who lives on his own, is a home owner and works very hard at his DREAM job, he builds and repairs guitars!!!

Also I have a 16 yr old girl who will start her Senior yr of High School soon.. She is a Jr Olympic multi- medalist including 4 GOLD in jump rope from JO's, and many more from competitions about 8 more gold the rest silver and bronze.. total of over 30 medals!!(proud mommy), like in the Disney movie, "Jump In" she is amazing!! And she sings, dances and has a love of others. She will spend the next 3 weeks at Christian camp working to make camp dreams happen for new teens~~~



I am on SSI disability(got it first try at 27 yrs old!) so I think that is SAHM, if that is stay at home mom. I am also a widow from my first marriage, I was 24 when he died, that was 19 years ago. But it is still a fact I have 2 degrees and am a Registered Respiratory Therapist by trade!



My song is "Proud to be an American" a 4th of July song.. makes me cry every time..



I don't know if anyone will read this but.. thank you

Melissa

Jennifer - posted on 04/29/2012

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Hi! I'm Jennifer



I have lupus & fibromyalgia. Diagnosed @ 21. I'm now 37.



I have a 15 month old daughter.



SAHM/work @ bookstore 1 1/2 days a week.



My favorite holiday song is also "I want a hippopotamus for Christmas."

Michelle - posted on 03/27/2012

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Name, Michelle Dain

daughter becka 20 has aspergers

I am a wohm



I want a hippotumus for christmas



post was nice and helpful

Michelle - posted on 03/27/2012

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Hi! I am Michelle ... I have been diagnosed with perm nerve damage in both my arms, combined 15 surgeries after car accident in 2007. I have 7 total herniated discs from my neck to my lower back. I have been diagnosed as Bi-Polar/Borderline Personality Disorder. All of which I take medications for.



I am a WOHM - I enjoy my job I work for Longchamp USA, I am a staff Accountant. I am a full time Mom to three kids, Tony 17, Karley 13(going on 24 lol) and my Isabella 11. and a very happily married wife, most of the time ... lol jk



My favorite holiday song: Little Drummer Boy

Marcy - posted on 03/22/2012

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Name: Marcy, age 36



Condition, how long you've had it: Chronic pain for more than 20 years (started as a teen), recently diagnosed (finally) as myofascial pain syndrome and Fibromyalgia. I have a great doc who has been very patient with me in figuring out what is wrong, and working to get me better. I am on some meds, do yoga, and my doc does a muscle manupulation? thing that is awesome.



Children's ages: Son, Nico, age 3 (almost 4!) ... would like to have another, but not sure if I want to take on more with my pain : (



Are you a SAHM, WAHM, WOHM: I'm a SAHM, but I do some blogging and writing from home, to continue my career path (was an online editor/writer for TV station), keep up my resume, have an outlet to express my moments good and bad, from chronic pain, healthy eating, to fitting in fave TV shows into my schedule lol! ... momentswithmarcy.com Nice to be able to write when I have time and feel up to it, without deadlines : )



Favorite holiday song: Mariah Carey's "All I Want For Christmas Is You"

Tammy - posted on 03/13/2012

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Tammy 40



Don't know where to start- chronic kidney stone disease of unknown nature.since 1997 Migraine since 2001 that started causing TIA (strokes in 2005), chronic sinius disease 1999 several surgurgys leaving me with debilitating headaches, vision n tolerance for sound! Osteoarthritis chronic pain syndrome loss of movement n feeling on right side wich led to falls n pain in hip, back, car accident gave major issues with shoulder needing surgery n can't lift arm n it also left tail bone, groin, neck n back pain! To top it all up MS unknown how long could have been awhile!



My kids Phillip 23, Aj 19, Matthew 15, Nicholas 8

Sydney 5 daughter in law 20 and my new grandson is 4 months old his name is Gabriel Matthew!



I don't Work do to my disability I can't even shower on my own anymore, I'm thankful my boys where mostly grown before it got bad!



My favorite holiday song is Silent night

Krisy - posted on 03/13/2012

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Krisy Wolle

lupus/adult still disease also AS

offical dx.for about 3 years sufferes for over 5 years before diagnosis

i have one daughter~Eme and she is almost five

Wahm and some waom

sleigh ride

Amy - posted on 03/11/2012

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Name: Amy



Condition: I have chronic abdominal pain cause by pressure from cysts on nerves in my Thoracic spine. It started suddenly in 2006 and took nearly 4 years and a trip to Johns Hopkins to figure out what was causing the pain. I also have migraines.



I haven't been able to work for years, but before this I was a programmer. I have one son who turned 13 last November.

Amanda - posted on 03/09/2012

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Hello My name is Amanda Im 36 years young and Im a single mum to three boys, James 19, Luke 18 and Nicolas 13 they all live at home. James had moved out but due to the flat he was living in being condemned after an inspection he is now back home, I started work at 13 yrs young but due to my health I had to stop working in 1999 and start claiming benefits.. ( which was easier said than done lol )

My conditions are as follows :

Fibromyalgia - 2008 ( but suffered since 1994 )

CFS - 2004

Osteoarthritis in my back - 2000

Slipped disc - 2000

Asthma - 1998

Depression and Anxiety - 1993

Ventricular Tachycardia - 1999

Underactive Thyroid - 2002

Migraines

Seasonal allergic rhinitis ( which is Hayfever but I get it very bad and have to take strong tablets 4x a day starting anytime from march onwards )



Hugs xxx

Amanda :o)

[deleted account]

Hi there, My name isTavin or Sparrow (depending on which community you are talking to-you can call me either). I am 45 this month and have RA and lupus (query as I am ANA neg). I've been treated for both for 5 yrs now but probably should have been treated before that. I have three sons that are 17, 20, and 22. The two youngest still live at home. A year ago I stopped working. I had no quality of life and was only working and sleeping. Even on weekends. I take plaquenil and self inject methrotraxate as well at dessicated thyroid and pariet. As well, I am clergy in my community.

I have a lot of coping strategies and can share parenting strategies as well. I would say that I have successfully raised 3 wonderful young men.

What I need to work on is pain management. I am trying to get back into yoga but am finding it difficult for a number of reasons.

There's my introduction.

I hope to be more involved here.

Sophie - posted on 11/23/2011

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i just dont think men or at least men w out chronic pain truly get it.... i was changed from ritalin to adderall cuz here in AB its quite the production to write a conrolled script. instant release ritalin has been quite the life saver in many respecs

Sophie - posted on 11/23/2011

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hi ladies, my name is Sophie, i am a wohm (i hope im guessing the ab's right) my kiddies are older but once a mom always mom, i have chronic pain from a reconstructive surgery I had 14 months ago. some days its so bad i justt wanna...... but i have kids and a great job so i go on.....knowing that some day it has to end - the pain that is....involved w a chronic pain clinic but havent seen he doc yet.... anyway as I said earlier my kids are older and I think too much thinking time means more pain time. And i am a RN to boot...glad to be part of this whole big community it looks great

Jannette - posted on 11/22/2011

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Katie was diagnosed at 17and is now 23. I'm so sick to my stomach all the time about this

Melody - posted on 11/20/2011

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Name: Melody

Condtion, how long you've had it: ADD and Depression....I'm guessing the ADD has been with me all my life but discovered it about 4yrs ago and depression hit me after the birth of my oldest son (still love him so very much)

Are you a SAHM, WAHM, WOHM: I am currently a Stay At Home Momma

Favorite holiday song: Any that make me smile


Children's ages: Matthew (almost)8 Nathan 5

Shannon - posted on 11/16/2011

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My name is Shannon.
Conditions: Migraines, Intersticial Cystitis, IBS, Fibro.
Kids: I have a 12 year old boy and a 2 month old girl. I was told for 12 years that we couldn't have more children. I was diagnosed with early onset menopause at 20 after my son was born, but that was obviously wrong! My pregnancy has harder than I can say in a short post, but caring for a newborn after the pregnancy, c-section, and pre-existing conditions. I have a wonderful husband that was so happy to be expecting again he has taken care of everything to o with our household since January. My mother-in-law helps during the day since I still can't carry my baby. But that doesn't make everything better. I lay by myself in pain and hear her and the baby up stairs playing. She brings her to me to feed her. Even though it hurts I don't want to give up nursing because its the one thing I can do for my daughter that no one else can.
I wish I had more medical support. My OB is done with me becuase the baby is here. And my regular doc wants me to start with a pain management doc now that he hasn't had to deal with me for almost a year. The pain doc hasn't treated me for 13 years like my primary so she doesn't take me too seriously. That and with my insurance I can't afford to do all of the injections she thinks fixes everything.

I need some support from other moms with pre-existing chronic conditions who have gone through nursing and post pregnancy recovery like this.

My favorite Christmas song is O Holy Night.

Kim - posted on 11/08/2011

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Hello!
My name is Kim and I have Crohns. I was diagnosed in 2008. I have a 4 year old son and 1 1/2 year old daughter. i am a SAHM and attend college part time. I am going to school for psychology. My favorite holiday song is Feliz Navidad.

Niviene - posted on 10/19/2011

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Name: Niv
Condition: Tissue Separating disorder (in the lupus family), possibly had all my life - diagnosed last summer.
Children's ages: 19,15,13,5,10 months.
I am a SAHM and a WAHM because I don't get paid for what I work at. LOL. but I work everyday (teach - homeschool, take care of my mom who is much more disabled than I)
Favourite holiday song: Winter Wonderland.

Mary - posted on 10/17/2011

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Name: Mary/ Painfrog

Condition, how long you've had it:14-16+ yrs depemnding on each condition

Children's ages: 13

Are you a SAHM, WAHM, WOHM: SAHM

Favorite holiday song Joy to the world

Dawn - posted on 10/12/2011

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Name: Dawn aka BusyMom

Condition, how long you've had it:
Lupus, Rheumatoid Arthritis... first the Fibro was diagnosed about 2004, then the Lupus in 2005? but the doc said he thought I have had it since about 1983... so I wasn't crazy all those years, right? And the RA was last in about 2008... after the neuropathy of my hands and feet got so bad I had to stop being an IV nurse.

Children's ages: 31,27,22,15,14,13

Are you a SAHM, WAHM, WOHM:
all of the above... I work as nurse 2 nights a week, am home the rest of the time and work as a freelance writer in my free time...

Favorite holiday song: Monster Mash

Kristin - posted on 10/12/2011

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Name: Kristin

Condition: Lupus, sick since 1993 but diagnosed in 1997. FIbromyalgia, diagnosed 1993 but probably had it all my life

Children ages: Kyle (10), Cody (6), Cade (1)

SAHM, except on Tuesday mornings when I do Neurological testing

Favorite Holiday Song: Do you hear what I hear:

Kathleen - posted on 10/05/2011

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My name is Kathleen. I have Chronic Neuropathic Pain, Fibro, degenerative disc disease and migraines. This happened in 2003 with an epidural gone wrong.
I work from home and am a pain advocate.
I write a Blog called chronicpainjournal.wordpress.com.

Katrina - posted on 07/22/2011

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Jamie, I have applied for disability, was denied, appealed, had a hearing, denied, my attorney is filing another appeal & told me to reapply. Eventually I will get it, but it is a looooooooooong process. Some ppl get it right away, but from what I've been hearing, it usually takes about 3 years. I would recommend getting a disability lawyer to help w/the process...one that only gets pd when u win.

Jaimie - posted on 07/21/2011

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why can't you get disability? I was thinking of applying this year but it seems like it is going to be a struggle and very stressful

Katrina - posted on 07/17/2011

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Hi everyone, I'm Katrina I have chronic pain resulting from a failed spinal fusion I had when I was 11 for scoliosis. I also have fibro and depression. I have one daughter who is 9 & is a wonderful help. I am very blessed to have found work that I can do from my couch, that's where I have the least amount of pain. My all time favorite holiday song is "Joy to the World." It is so full of hope.

Shirley - posted on 05/30/2011

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hello,
name; Shirley
Condition; peroneal muscular dystrophy, uterine fibroids, and polysistic ovarian syndrome
Chils age; 16 years old
I am a WAHM,
great idea, :)
fav holiday song: 6 white boomers ( Australian xmas song )

Carmina - posted on 05/08/2011

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love this post!

Carmina Beardon
Condition Psoriasis....so annoying!
Son Levii is 19 Months, also due November 2nd =D
SAHM
favourite holiday song no idea not really into them lol!

Sarah - posted on 05/08/2011

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www.supportpelvicdysfunction.co.uk is a charity that offers one on one help for mums with SPD or PGP. They have just put an official community up on circle of moms. help@supportpelvicdysfunction.co.uk

Hope this helps x

I have spd and im in a wheelchair for life with it, im the founder of this charity so please feel free to trust in my help. All info is on my homepage or the official COMS page.

I send you all my love as SPD is common but not normal in pregnancy and it is a hard condition to deal with as if affects our mobility. keep your chins up and im here if you need any help from the charity.

Jennifer - posted on 04/21/2011

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Like you I never complain about my illness, pain, or fatigue. I feel it will do no good, and I don't want people to feel sorry for me. I don't exactly hide my illness, sometimes it's hard too, but don't announce it either.

Jennifer - posted on 04/21/2011

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Name: Jennifer
Condition: young onset Parkinson's Disease
Children's ages: 9, 7, and 2
I am a SAHM
Favorite holiday song: too many to name!!

Sheila - posted on 04/15/2011

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Hi Marisa and everyone else that isa great idea you posted..:)
My name is Sheila, I have a back injury and have suffered with it since 2005. I am married. My girls three of them are 25, 22, and 19. I also have four grandchildren, three boys ages 3 and 1 and a granddaughter 9 months. No abbreviatin for me ..lol I am medically retired. So I do stay home most days depending on my pain level. My favorite holiday son is Jingle bells...lol. My heart goes out to youi all that suffer from any kind of pain.It changes your whole life, or at least it did mine.
Take care

Christine - posted on 06/17/2009

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crystal---generic adderall is what i am taking right now, too. it doesn't seem to work quite as well as the vyvanse did for me--but i can't afford the vyvanse with our insurance. i had some blood work done recently by an endocrinologist and something came back showing that there might be a problem with my hormones--not my female hormones, which was all my obgyn checked. i'm not sure what it is, the nurse was a little vague---i don't think she was sure what the doctor was seeing. it seems to have something to do with either my pituitary or my adrenal glands. i am supposed to have a test run soon---i guess it will help her to figure out what is not working right. i don't want to have something wrong with me---but it was kind of a relief to have a test come back and show something is not right---i guess i kind of feel like people won't think i'm just making things up or something. i just have to try and juggle when i can get my test done and when my husband has his surgery. both are done on fridays and mondays---but in towns about 2 hours away from each other.

does the extended release morphine help to give you more consistent pain relief? i'm surprised a doc would give you morphine but not soma. i don't think my doc would even consider giving me an extended release morphine or percocet. i take norco---usually 1/2 at a time with 1/2 of a caffeine pill and 1/2 of a soma. i recently had to have the amount of norco i am allowed a month increased because our weather has been so unstable that i just can't get enough relief. isn't it funny how different doctors worry about different medications??!!

my husband told me last night that he is starting to worry about my health and the effect it is having on our family----i'm not sure what he was trying to say to me.
thanks for your response---i really appreciate knowing that someone out there knows where i am coming from.

Crystal - posted on 06/17/2009

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Quoting Christine:



my name is christine.  i just turned 46 last month.  i have 9 children and 2 step-children. my step kids are 34 and 32. my kids are 26(next month), 23, 20 (next month) 17 year old twins, 14, 11, 9, 5.






i am a SAHM, but keep feeling like i will eventually need to work---but don't know how i could since i can hardly get through a day as it is.






i have fibromyalgia---for at least 9 years, i guess.  i just had carpal tunnel surgery on both wrists in october and then december.  i have severe reflux esophagitis which gives me difficulty swallowing certain foods.  i am a little wary of getting surgery because i have been fighting  MRSA infection for a while which has possibly caused c-diff---in the process of testing for that.  i have  chronic depression and anxiety, and supposedly ADHD and bipolar NOS---though i wonder about those two since i know that fibro can cause some of the symptoms.  i have a chronic hip pain that comes and goes---i'm guessing it could be pain from a scar on my bone from osteomyelitis as a child.  i get arthritis in my tailbone because i broke it during a pregnancy---i find that one really funny, for some reason.  i have arthritis in one of my thumb joints, but it only hurts if i push on the joint--so i guess i'm lucky----just don't press on the joint, right?   i get tendonitits in my knees off and on (since my early 20s)  i have pain in the bottom of my feet---but discovered that cheap, imitation crocks made my feet stop hurting.






neck pain is a real problem for me---i find it difficult to get my neck into a comfortable position to try and lie down.  lying down often causes headaches






i live on norco, soma, caffeine pills (usually 1/2 of each together) a generic stimulant, an antidepressant and clonazepam.






when the weather is stable and i have the right combo of meds in me, i can actually feel relatively normal for several hours in a day, believe it or not!  gotta look at any blessing i can!!    






i have 3 children with celiac disease and one of them has had an eating disorder---but is doing well right now.  i have several children that have had depression and anxiety problems.  out of my 9 biological children and my husband and i, 10 of us carry the celiac gene---but for some reason the disease only activated in 3 of our girls.  the rest of us at least know that we need to be tested periodically.






i have figured out a neat trick with my meds.  if i can wake up at least an hour or 2 before i really want to be up for the day and take my pain meds and my stimulant and then go back to bed for a little while-----i can wake up a little later without pain and my mind feeling like it is functioning already.






i really feel guilty about how poorly i do in the mornings when it comes to getting breakfast and helping my kids get moving along for the day----it's really hit or miss.






Christine,



 



I read your post today and felt like I can relate to you. I have been diagnosed with Fibro (dx 15 years)  Depressive Bi-Polar (dx 4 years) Post Tramatic Strees Disorder (dx 4 years) ADD (dx 1 year) Anxiety (dx 15 years) TMJ ( dx 11 years)  Headaches and Migraines (since I was very young)Raynauds Syndrome (dx 6 months) Schleroderma (dx 6 months) hypermobility syndrome (dx 22years) Hereditary Coproporphyria (dx 8 years), Relux/Gerd (dx 11years), Bad constipation from the meds I'm on (dx 8 years), Ulcers (dx 11 years) and suspected Celiac disease.



Some the things that bother me the most are extreme fatigue, Pain throughout my body that comes and goes but it always worse when it's cold, headaches and migraines, i can only lay down with something supporting my neck or I will end up with a migraine, swelling of the hands, Pain in hands, loss of strength and grip in handsI.



I am 36, married,  with an 11 year old son.  About 6 months ago I had to stop working due to my problems.  I should have stopped years earlier, but just couldn't afford to.  My family has really been a great support for me, but like you I feel so much guilt for not being able to take care of them like I feel I should. There were a couple of years when my son was 1 til about 3 years old that I was hardly ever able to do anything with him. I feel guilt that I missed out on all the things that he did or should have done during those years. Now I try and get up with him when he's getting ready for school, but there are days where I just can't even stay awake, let alone make breakfast and help him to get ready.  He is such a wonderful child though. He is very understanding and does alot of things on his own.  Like, you I also found that by waking 2 hours earlier than I need and take medication, I am more able to function at a normal level.  One of the medications that I take at that time is Adderral. It is a lifesaver.  If I don't take it, I am unable to wake up and will sleep all day.  The weather is a huge factor with me also. When it's cold I am so much worse. But when the weather is relatively stable, I also feel almost normal for a while. Then I really feel guilty. I start second guessing myself. Wondering if my problems are in my head or if they were real. I end up doing way more than I should to try and catch up for the days I didn't do anything, and end up worse than I was to begin with for a few days. Its a vicious cycle.



The medications that I am currently taking are Kadian (extended release morphine), percocet, lyrica, Nexium, Plaquenil, Adderral. I wish that I could take Soma, but I haven't found a Dr. willing to prescribe it.  I've taken it in the past and had a lot of success with it, but the Dr's are so afraid of prescribing it. My husband has a bad back and used it before and it really helped him too, but the Dr's won't give it to him either.  



 



Well, I just wanted to thank you for your post. It helped me to feel like I'm not the only person out there that feels like I do. If you would ever like someone to talk to, please feel free to contact me.



 



Crystal Taylor

Jessica - posted on 06/16/2009

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Hi everyone, my name is Jessica.

I have Fibromyalgia, I was diagnosed about 3 years ago.

My daughter is now 4 and a half!

Bonnie - posted on 06/15/2009

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Hi my name is Bonnie I have a 2 yr. old daugter I am a SAHM going back to school for my degree and hopefully will be a WAHM. I have fibromyalgia and have had it since 90 dx in 02. I am a single mother and some days are hard but she gets me through it. I didn't think that I could handle all of the things that motherhood brings but so far I am. She makes it worth it.

Rachel - posted on 06/04/2009

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HI Mary ..just wanted you to know you are not alone.You are in prays.Blessings rachel

Cassie - posted on 06/02/2009

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Name: Cassie
Condition: Chronic Fatigue Syndrome - a little over 2 yrs; FM - almost 2 years
Children's ages: 16 yr old son, Mitchell and 9 yr old daughter, Bethany
SAHM
Favorite holiday song: O Holy Night

Rachel - posted on 06/01/2009

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I am Rachel and I have RSD. I have 3 active boys...7, 10 and 13. Since I found Circle Moms I dont feel alone anymore and I am grateful for that.

Tamra - posted on 05/30/2009

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I'm Tammy - 40 years old - SAHM mom of 2. I have a 5 year old son and 3 year old daughter. I have psoriatic arthritis and depression. I was dx'd with PA at the end of 2007, but have been suffering for several years with the pain.



I have too many faves to list. :0)

[deleted account]

Name: Teena

Condition: Fibro was diagnosed after my son almost past away 6 years ago, I have also had oh my, 20 some operations on both knees and need a partial knee replacement. I am 36 years old.

Children: 2 wonderful boys 8 and 10, My 8 year has had many health problems as a baby and toddler and has been diagnose with ADHD and is now showing signs of piedatric bi polar.

I work full time outside the home with behavioural children 12 to 17 years old.

Favorite holiday song: HO HO HO by Bobnoxious LOL and there was a Christmas album that I always listen too with my mom during the holidays.

[deleted account]

Hi, I'm Zoe and I'm a single mom to 7yo Shira and *almost* 3yo Caleb.

I was diagnosed with fibromyalgia 9 years ago, but have probably had it since I was a child (I recently turned 40yo). I have osteoarthritis in several joints and have been having surgery since I was 6. I stopped counting at 20 surgeries and they include the hip replacement I had 15 years ago that needs to be redone but that no one wants to touch because of osteoporosis which causes it to dislocate and the fact that they don't make the parts any more so between the two, the entire thing needs to be rebuilt by splitting my femur in half,inserting a rod, doing some bone grafting and some other stuff. (I'll eventually get this done at Mayo, and they say this will improve the stability, but not the pain.) I also have generalized ligament laxity, connective tissue disorder, degenerative disc disease, endometriosis, chronic fatigue syndrome, chronic migraines, epilepsy, gluten enteropathy, and some stuff they can't figure out. Sometimes they can figure it out (e.g, they know what's wrong with my knee per the MRI) but don't know what to do about it and just tell me to "live with it." I vividly recall being in pain when I was 3yo.

Favorite holiday song? Dayenu.

Sarah - posted on 05/09/2009

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Name: Sarah

Condition: Rheumatoid arthritis and fibromyalgia both diagnosed at 18 but have had the arthritis since a was a baby

Child's age: 5 and a half months

I'm a WAHM

Favorite holiday song: Carol of the bells

Jenny - posted on 05/06/2009

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Name: Jenny Meeks
Condition: Fibromayalgia (diagnosed 8 years ago but had the problem since I was a teenager) I am 39 now.

Children's ages: 10 year old son and 4 year old daughter

I am a SAHM.

I do not have a favorite holiday song. I love them all and sing any that I can.

[deleted account]

Hi my name is Marie, or Rie. I have chronic back pain and frequent migraines. My baby is 15 months old and I'm 18 weeks pregnant! My favorite holiday song is Little Drummer Boy, but only sung by the Harry Simeone Chorale.

Michelle - posted on 04/16/2009

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HI, I'm Michelle, Shelly for short, was diagnosed with several slipped/bulging disks in my lower spine, and possable CFS or Fibromyalga, have had 2 nerve blocks so far, they help, not as much as I'd like but at least I can still walk. I'm a SAHM of 4 wonderful kids, 3 boys, 15,9, and 6. My daughter is 12. My oldest has GDD with SPD. Favorite holiday song, hmm tough one I love em all, not just Chistmas songs either. I'm a music lover, that is music not the fake stuff lol.

Christine - posted on 04/16/2009

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my name is christine and i just turned 46 years old in february.  i have fibromyalgia---probably for at least 9 1/2 years if not longer.  i also have bipolar  NOS, depression, anxiety, some OCD--but we laught about that one, and anxiety---and ADD.  i have 9 children the oldest is 26 and the youngest is 5.  i am a SAHM---don't know how i could work since i can't even get through the day without working---although i feel a little bit of an urgency to get some kind of education.  i also have 2 step-children 34 and 30---and we have 2 grandkids.  i also have atopic dermataitis, which is probably what helped me to catch the MRSA infection from who knows where and the herpes infection from my daughter's cold sores.  recently i hvae been battling both of them and the yeast that comes with all those nasty antibiotics.  at this point in time i am not too proud to say that i live oh pharmaceuticals----what ever they are willing to give me that helps----and some days the more the better, but every so often i get a little too much and it leaves me feeling yucky---i hope this means i'm not in danger of getting some sort of addiction---although being able to function to some reasonable extent matters alot more to me than worrying about addiction or tolerance or whatever the propper term is.



i have battled anxiety problems since i was about 11 and the other problems have just crept  in on me over the years.



i'm not sure what my favorite song is----i really like "nearer my God to thee" because i was so touched that the musicians played that song as the titanic sank---until the water was up to their knees---(i read about it in a book--didn't just get it from the show.)     i also like the song "where can i turn for peace" because as my sister was dying from cancer she said that that song was her mantra----then later i learned that the song was actually written about mental illness.    

Kimberly - posted on 04/01/2009

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Name: Kim, I just turned 23 in Feb.

Condition: Juvenial Rheumatoid Arthritis, diagnosed at 15...guess it's just RA now....Anywho, I went to ballet for the first time after being out for a summer and stretched my legs on the top barre. The next morning both of my knees were the size of grapefruits and I could barely stand on my own. Ended up going to my doc, who Xrayed and blood tested me, then a Orthopedic specialist, and then a JRA specialist when the blood test came back. It's been okay, though it was best when I was on Vioxx. I've "outgrown" it for the time being...but have no idea if I'll be lucky and just have to live with the damage done or if it will fully flair up again later. Right now my knees do fine unless the weather is being batty...which is a lot in MS. Knee braces are my friends, esp when I'm working in the field doing Open Field Surveys for Archaeology classes.

My son will be 2 in July.

I am a full times student trying to get a second BA in Anthropology and trying to get into the MA program for Cultural Anthro. I work about 16hrs a week as a lifeguard for my college. So I guess....WOHM??

Favorite Holiday song: Can I just say this is a bit odd....but Carol of the Bells, esp the version by Trans-Siberian Orchestra.

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