Sickle Cell Anemia (can't do anything)

CRAIG - posted on 04/29/2013

HI TOOTIE nice to meet you im also a sicklecell warrior and i hurt all the time kind of use too it now at 35 but people dont understand years of pain crisises cause the bones to ake even when not in a full pain crisis i sware its a tough life on top of that i was raised in the streets due to no parents so yes life has really showed me some dark roads glad to say i now live a much better life but i still battle sc and its not easy i lost my gb at 17 and spleen at 31 so i know where your coming from keep ya head up

Andreteagle - posted on 02/28/2013

you cant have sex

Sabry Issa - posted on 01/24/2013

Hi.im sabry.my cousin he has circle cells. Can u help me plz.

Jasmein - posted on 11/26/2012

My daughter is seven and has sickle cell anemia. She has suffer five strokes from it. She just started having the pain crisis from it this year. She has also had her spleen and gallbladder taken out. She receives a blood transfusion every four weeks. she is a strong little girl...any information you have on how to cope with this disease is greatly appreciated. I'm praying that things get better for you and all of the other people that has this disease.

Veronique - posted on 10/31/2012

Hello Tootie.

My Name is Veronique im 35 Yrs old,and im myself a sickle cell anemic person.I've develop this ''crap'' at 15 month's i was reading your post,and a Huge wave of compassion came trought me.

I realise how God make me lucky,in this badluck...Because i dont have pain if i don't have crisis.

I got not kids yet,im lil scared to risk myself this way and ''sabotage'' my condition.



I always told myself as far as i remember,that i will found one day something that will allow me one day to Reverse side effects of the disease and eventually...

I found few things EXTREMELY effective,for poeple like us. I want you go take a look on few products that been highly research and documentated. Gluthation,Carnosine,Aeon and Icewave from life wave. I want you go on the website check the research section on the product i've Just refer to you....This will allow you to uplift your quality of life dimunish by the disease...What's beautyful with this ''nanotechnology'' It's base on the traditionnal acupuncture.

I've study's theses products 8 months b4 use,and i've been personnally use them over a month now...one word : WOW !!!



Also Check Reishi research on Sickle Cell's anemia... It's a powerful Super ''fruit'' contain over 150 antioxydants,250 nutriments that doe's a multiple ''miracle for the human life'' read about it FB my name.And i be honor to help you.

Wish you a long and very healthy life

Veronique Celestin.

Shonda - posted on 05/04/2012

Hi Tootie,
I also have sickle cell and I have 5 kids. Yes it was very challenging esp when I got preg with my twins. But with alot of praying I made it threw. My kids are very healthy and I'm so greatful for that. When I was younger I use to do pretty well with my crisis. I only use to have about 1 every 3 to 5 months, now that I'm 32 its been soooo much harder. I wake up hurting about 3 to 4 times a week. Its a challenge everyday bc u dont no when that pain might creep up on you but I try to not stress and make sure I drink plenty of water and eat the right things. I dont no your religious stat but I looove to Pray and I will keep you in my Prayers!!!!

Rimica - posted on 05/19/2011

SO ENCOURAGE BY U TOOTIE! MY DAUGHTER IS ONLY 9 WITH SICKLE CELL. 19 OMG AND MY SON IS 17 HE'S BEEN THRU SOE MAJOR STUFF. MY DAUGHTER ROUGHEST WAS TRANFUSION AND LEG AND HIP CRISIS. WE LIVE IN FLORIDA MY DAUGHTER COULDNT DO REAL COLD. OUR LITTLE BIT OF COLD IS HARD FOR HER. TGBTG

DeDra - posted on 01/03/2010

Tootie I feel you. I have sickle cell disease too. I am 28 yrs old. I have not yet had my hip and shoulder replacements. The doctors want to try to wait until I am at least 30 yrs old. I live in MI, and the winter can be so challenging. I am so scared to walk over ice that I often have my honey carry me outside in the snow! I find that as long as I bundle up though, I can do some winter activities. I always make sure that I have a warm winter coat, hat, scarf, gloves, and I wear 2-3 pair of long johns, and thick socks everyday I go out. But on really cold days I wear undershirts, sweatshirts, boots, etc; I go the whole nine yards! Have you ever thought of relocating to someplace warmer? http://www.circleofmoms.com/moms-sufferi... say dry heat is the best for us.

Angela - posted on 12/05/2009

Hi Tootie,



I can help you with your pain & struggles. Please read the below informatin I have wrote. My life has forever been changed for the better & I thank God everyday. Let me know what you think or if you have any questions.



Have you ever heard of Ardyss International? They are a health & wellness company. I became a consultant after their natural products helped myself along with my friends and family. We have never been in better health and our doctors have stated this. Ardyss sells all natural juices. Their most popular product is the Le'Vive juice. Le'Vive is a miracle! Le'Vive is made up of the power of the world’s top five antioxidant producing fruits in one product: Mangosteen, Noni, Acai Berry, Goji and Pomegranate. The combination of their juices leverages their synergic action in your body to the fullest, slowing your body's cells aging process while preventing the occurrence of terrible degenerative diseases. Basically unhealthy cells are rejuvenated and regardless of what health issue a person has they will no longer have it. Examples are diabetes, blood pressure & cholesterol problems, thyroid issues, fibromyalgia, sickle cell anemia, cancer, insomnia, migraines, flu, chronic fatigue etc. The health & wellness industry is going to hit the trillion-dollar mark in 2010 due to people going all natural & wanting to be healthier. There is nothing easier than drinking a few ounces of juice everyday instead of trying to swallow capsules or mixing powders in liquid. I was able to quit my job within a few months of working for Ardyss because of the rise of people wanting to be healthier & there is no selling involved, seriously. If you're interested in learning more about the products you can view my website at: www.ardysslife.com/bodybymoore. If your interested in the products or the business please let me know. Keep in mind you save 40% on all products if you sign up with Ardyss. An appointment with Ardyss will change your life.

Tootie - posted on 10/21/2009

yes it did. Well from Birth my Parents were told i wouldn't live past 4 and once i did it was, she'll never have children. Because I would be so sick and for yrs I believed it. I tried for 5yrs b4 i had my 1st dauughter and by then i had given up because 5yrs and my heart totaly broke everytime the test was negetive.

I Finally got pregnant and it was the HARDEST thing in my life. She was born 2months early, i spent 2 full months in the hospital on bed rest. I got Preeclampsia and then ended up going into labor because my placenta riped from my uterus. i was on morphine the whole pregnancy but she turned out fine. and all of this happend because of the sickle cell.

Now my last pregnancy I got Pregnant on BC Pills and it was just as bad. i was sick throughout the entire time and i spent four months in the hospital that time and she was only born a month early. same symptoms as the first pregnancy. I Gained so much weight that i couldn't walk, i could't carry it. I had a c-section. they took her one month early because she had stoped growing, i was just to lil and sick to carryher, so 4 months of bed rest in the hospital. she was born addicted to morphine because i was on if for the pain from the sickle cell. she's Ok and so am I. My tubes are tied, can't go through the pain anymore I love my girls but i just can't do it, I could lose the 3rd time around (if u know what i mean) but i'm Great :) what would u like to know about sickle cell?

Carolyn - posted on 10/21/2009

Tootie, I am so sorry you have gone through so much so early. You sound very courageous. Did being pregnant jeopardize your health at all? I don't know anything about the disorder you have but it sounds very challenging.

Welcome to circle of moms! These ladies have helped me alot. I'm sure they will do the same for you. xoxo, Carolyn