Rachel - posted on 07/08/2009 ( 19 moms have responded )
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Most of the time I can handle my emtions and take it all with a grain salt. Then there are those days when I just feel crushed and defeated. I want to crawl into hole and be away from everything and everyone.The pain just takes on a mind of its own, I just start to cry and breakdown..I just can't take . How do any of you deal with days like this???? Any suggestions would be greatly appericated.
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Rachel - posted on 07/13/2009
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I am so sorry you are having such a rough time . I will be praying for you. I am glad you spoke up so that you kmow you are not alone. These chronic pain problems are affecting alot people, and I finally see that I am not alone. If you want look me up on FB I would be able and chat and be support you you. My name is Rache Hales Silva. Hers to hoping you have a better day. God Bless
Misty - posted on 07/13/2009
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I wish I knew girl. I'm an oversensitive crybaby at best, but I seem to be having more and more days when I get so overwhelmed that I start to wonder if my husband and daughter would be better off without me. I would never leave either of them in any way, but i just wonder, you know? What the hell is the point of me being here, another mouth to feed, another life to support, when I don't feel like I contribute a damn thing. Thankfully, hubby always convinces me otherwise, but it's always in the bck of my mind anymore. I'm so afraid that I'll end up being nothing but a burdon to him while he's trying to take care of our kids AND me. I don't have any suggestions, but know that you're not alone.
Lisa - posted on 07/11/2009
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i am so glad after all these years i am talking to friends that know how i feel and i don't feel like im complaining to ppl that have no clue as to what i feel like thank all of u. ur in my prayers
Rachel - posted on 07/10/2009
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I have done that some many nights..I always cry when know is around. I try to so hard to stay strong and look strong for my kids , hubby , family and even friends.
Christine - posted on 07/10/2009
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i do a lot of sitting in my rocking chair with a heating pad behind my neck----and when no one is around at night-----i sob my heart out sometimes.
Rachel - posted on 07/09/2009
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enjoy ..I just did ..LOL :)
Margaret - posted on 07/09/2009
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going to have a hot shower I think :)
Rachel - posted on 07/09/2009
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I have end in the ER in pain were I couldn't even walk , vomiting and shaking from waiting to long. I hope you feel better I will pray for you. If want look me up on FB.
Margaret - posted on 07/09/2009
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it bit me in the butt when I finally took them I was already in so much pain and it barely took the edge off....still got a while to wait before I can take another
Rachel - posted on 07/09/2009
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My hubby always can tell when I don't take my meds...and always wonders why I do that to myself. Its hard I want try so hard to get through the day without depend on my meds, but thats realitly. I always end up paying for it later.The pain gets so bad I get to point of chancing the pain instead of decreasing it. Then tryin to get to sleep when the pain that bad is so hard. When sleeping can be painful..for me with my RSD my hubby, my blanket or anything touching my left side causes such pain.The pain cycle only us know what that is really no one else will understand.
Margaret - posted on 07/09/2009
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i think most of us have that problem...I hadnt taken my pain meds today I was warm inside and it is a take it easy day nothing planned we have things to do tomorrow and yesterday so today was rest day i was going to take them tonight so I could sleep...until bruce found jac hiding under his chair only AFTER he moved the chair a few inches and sat on it crushing her hand under a 160kg bum....anyway needless to say we had an exciting evening since the nearest hospital is half an hour away...the medical clinic had already closed for the night and the after hours still wouldnt open for almost 3 hours :S.......im still trying to figure out which genius thought up these business hours....
anyway home now fish and chips on the way home...but I had to do the driving both ways to the hospital...because he is exceptionally jittery since he sat on her hand and the SCREAM let out...but she is ok doesnt seem to be broken.
anyway im now in trouble because we were already 1/3 of the way to the hospital when he looked at me in dread and told me I hadnt taken them this morning and gave me hell everytime I whinced and growled at me because the hospital I went too doesnt have the greatest disabled acces being as its built on the side of a hill :S....
yeah im in trouble atm
Cassie - posted on 07/09/2009
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This may sound terrible, but I've often told my husband I wished I had cancer instead. At least then I'd probably get all the support and understanding I needed. Also, there would be an end to it one way or another; either successful treatment, or meeting my Lord and Savior!
Rachel - posted on 07/09/2009
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I have waited too long sometimes to take my meds too..but if we had any other health problems ..( diabetis high blood pressure etc we take our meds) we need to know its ok take our meds and not feel guilty about it. Know one understand what we go through they look at us and think oh u look fine. if only they could walk even just hour in our shoes our pain then they would understand. Thx again Look me on FB if you want.
Cassie - posted on 07/09/2009
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I think we all have to have times like these. For me a good cry is often very stress relieving. I also so lots of praying for myself and others. As a mom who used to work full time before the illnesses, I've always thought I could do it all, and most of the time did. It is hard to adjust to a totally different life and like you said we need to grieve for what we've lost. Bless you, Rachel.
Rachel - posted on 07/09/2009
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I done that myself many times ..waited just too long to take my pain meds. We have remember we take medince for our disease just anyone else if they had a medical problem. I agree unless someone walks in our shoes in our pain they will would never understand. There is no way for anyone to see the pain so they assume its ok .I keep you in prays .thanx again..if u have FB look me up.
Lisa - posted on 07/09/2009
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i think if u have never had to live in constant pain it's hard to understand. i was a nurse for 20 years and am ashamed to say that i use to think ppl should just get on with their lives if in chronic pain. i was great at surgery pain and could be a very patient and kind nurse but as far as long term i really never had that much exper. with that but was like just work throught it and that is my own attitude toward myself most of the time but their is those days when i don't know how i will get throught it. my husband tells me that he forgets how bad i hurt because i don't tell him everyday or min. itry and work throught it but there are days when i lay in bed and cry even with meds. i hate to take pain meds. a thing my doctor has long got on to me about he tells me dont wait til u cant catch up with the pain
Rachel - posted on 07/09/2009
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Thank you.... I agree you have grieve the loss of the life you would have had before this disease took ramped control over my body and my mind sometimes. I do feel alone sometimes plp who don't have don't get it and they never will. I have family and friends who tell just shrug your ok work through. I feel so angry ..I wish it was just that easy. Thanx again
Lisa - posted on 07/09/2009
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pray,try anything to distact myself it seems if i can some how keep mind going maybe pain won't catch up sometimes it's very lonely because u don't want to say to much to friends and family because they may think ur whining or they just flat don't understand. i don't think until u live it u can't understand.i can do ok during day some nights are hell and it's min by min.i have never been on support site until about month ago when i found this 1. i like this bacause ppl understand but it's not just pity parties. lots of good info and ppl that understand how we feel .keep writing about it and talking to ppl that understand those who live with it.u have to remember we not only live in pain but as a wise doc told me once it's like a death a death of the way we thought our lives would be and the things we wanted to do,so i think we have periods of pain physical and mental pain. so to cry is good sometimes. i know i would rather not cry because of pain but i think we have to have short periods of being upset about this is my life. if u find urself not able to bounce back or being more depressed talk to ur doctor most chronic pain pt. need so antidepression meds. keep ur head up
Margaret - posted on 07/08/2009
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dealing with a day like that.......hmmmm well I hope I have nothing organised for the day, then make a little wish that no one phones or drops by.....take the max painkillers allowed to try to relieve it.....climb into bed turn on the TV....perhaps beg bruce to plug in my laptop in the bedroom (I cant reach the power point)
and practice the art of vegging...if I fall asleep I fall asleep iv not I catch up on stuff to do online chat to friends...and let bruce deal with the girls...well more like the girls deal with him lol
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