What are you taking for your FM pain?

Bonnie - posted on 08/29/2010 ( 15 moms have responded )

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I see my neurologist and Dr. tomorrow and would like to get an idea of what other's are taking for their pain. Thanks for your help.

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Fern - posted on 09/21/2010

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Some other ideas in case the Lyrica doesn't work for you are: mucle relaxers such as Soma, Flexeril, Zanaflex; sleep aids such as Ambien or Lunesta, and pain meds such as oxycodone, hydromorphone, etc. There are many more, but I don't want to overwhelm you with info.

Sydney - posted on 09/10/2010

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I was in a severe car wreck in 2002. I was 17. A few years I started to have extreme pain. I have gone to many doctors and this last one mentioned FM eventhough he has never officially diagnosed me, he began me on Neurotin, Ultram, and Mobic. These help to some extent but when pain flairs up I use an ice pack to the major pain area. It helps. Pray for the best for you.

Sherrel - posted on 09/09/2010

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Hey Bonnie,
I'm glad the doctor gave you something they think will work for you. They gave my Lyric also & it made me very confused, that is one of the side effects of it, so be careful really read the side effects about the medications you are taking. I pray all goes well & can be pain free. Talk to you soon & make it a great day.

Anna - posted on 09/08/2010

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I am taking savella, endocet 10mg, methadone and 800mg Motrin but it took time to find something that worked on me. I also have MS so I'm on a lager dose on pain meds. It may take time to find something that works on you and I know that is the last thing you want to here when you are in pain but just keep talking with your DR and they can find something that works on you. Good Luck

Shirley G - posted on 09/05/2010

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Hi Bonnie Gray, I had been suffering for over a decade with F M pain, I only found out i had F M while i was in hospital due to something else, & the Doctor was readying out what was wrong with me. Thats when I first heard about F M I had to wait till I was discharged to find out more about F M truth be told I couldn't even spell it. The internet was fairly new & I would spend hours searching for the reason why. in the end I gave up & learnt to live with it & the deep throbing pain, the aching joints the pain when I was standing or laying down the stiff shoulder which I called Builders or weight lifters shoulders as they are Rock hard at times due to the inflamation. Roll on to January 2010. I joinned a company called Ardyss International I was still suffering with F M. they had a training session in LasVegas which I attended later in the year I spoke with the Doctors there because I was still suffering but putting a brave face out to the world. The Doctor put me on some of the supplements & I can Honestly say that my health has improved by at least 80 % I still have the odd few days when I feel tired, but my shoulders have started to soften, my joints are not as stiff as before, I am sleeping longer, I dont suffer with the foggy brain, I am hoping in time to be rid of F M & its only been 6 months but its the best 6 months I have had in over 12 years. If you or anyone else would like to know the programme I have been following,
I can be reached by calling me on ( UK 44) 077864 79271. Shirley ARDYSS UK.

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Mandy - posted on 02/11/2014

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Hi I live in the UK and was diagnosed with fibromyalgia in May 2012 after injuring my shoulder while practicing for a show jumping competition at my local stables. I didn't fall off the horse but somehow managed to wrench my left shoulder in September 2011. The shoulder took 9 weeks to heal and then kept flaring up so I kept being prescribed diazepam then it would settle down again but every few weeks would flare up so it was a constant cycle of being on and off diazepam until my doctor mentioned fibromyalgia. He referred me to a consultant who diagnosed the fibromyalgia. Up until then from my mid teens I had always suffered with heavy periods, stomach problems and various other aches and pains. In my early twenties I was diagnosed with irritable bowel syndrome and endometriosis and was prescribed various medications none of which helped. Once I was given the fibromyalgia diagnosis and researched it as I had never heard of it before and seeing all the different problems that you can get with it I realised that I had been suffering from it for well over 20 years. I was already taking liquid morphine and Buckland for the IBS as well as zopiclone 3 nights a week to help me sleep and the other 4 nights I was on the antidepressant Mirtazipine again to help me sleep. This had been prescribed by another consultant I had seen for ADHD as my son had been diagnosed with ADHD at the age of 5 and when researching it I realised that there was a strong possibility that I also had it. After having my daughter at the age of 32 (I'm now 44) my endometriosis came back with a vengeance so after 16 years of suffering I requested a full hysterectomy as I knew this was the only way to completely get rid of the endometriosis. The doctor agreed that I could have this done and thankfully it worked. Getting back to the fibromyalgia my doctor tried all the medications that are supposed to help which was gabapentin (didn't work) then lycria (didn't work), tramadol (gave me migraines), a couple of muscle relaxants which I can't remember the names of (also didn't work) and naproxen along with lanszoprazole to control the acid as anti-inflammatories can make IBS worse. Sometimes the naproxen works. Now I am on fentynal patches which I have to change every 3 days, 3ml of oromorph as a top up, diazepam as shoulder is in constant spasm, zopiclone and mirtazipine to help me sleep, naproxen when needed, iron tablets cos I keep getting anemic, lidocaine patches for shoulder, back and knee, mebeverine for the IBS (similar to buscopan) and they have just discovered in the past year that most fibromyalgia sufferers have low vitamin D levels so doctor done a blood test which showed my vitamin D levels were practically non- existent so am now on vitamin D tablets. My kitchen cupboard looks like a pharmacy. I have also recently started seeing a clinical psychologist who is trying to help me find other ways to manage the pain but at the moment we are working on me accepting my fibromyalgia diagnosis as I haven't managed to do that yet even though the diagnosis was nearly 3 years ago. Also on top of all the medications I'm taking I constantly have hot water bottles for my back, shoulder and stomach as I find the heat can help ease some of the pain. I have been told by the consultant that diagnosed me that they don't recommend opiates and diazepam for fibromyalgia as they don't work but I disagree with that. If they didn't help I wouldn't take them and you will find that a lot of sufferers use opiates as they work for them as well. One of my biggest upsets since being diagnosed is the fact that I have had to give up horse riding as it now causes me too much pain and that was the one thing in my life that relaxed me but I am determined that one day I will start riding again. Apologies for the essay and I hope you find something that will give you some relief from this horrible disability. Good luck

Janet - posted on 03/18/2013

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I have tryed every drug available and have found nothing that will even touch my FM pain. I had been on soma and got hooked on them so unless you want to walka round feeling like a zombie I have been taking otc meds which are useless. I was taking double dosing the somas and have been having seizures. I thought more of the drugs would help the pain more all I did was pass out and almost killed myself on perscripton meds. Wishing and praying for you all..... xxxxx ps taking otc meds now help helping at all. Cymbalta helped with depression but did not help at all with pain. Good luck everyone your all in my thoughts and prayers...xxx Also all I have done is sleep my life away due to all the past meds I have taken and all the pain I have been in.

Christine - posted on 03/22/2011

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i take norco and soma with half of a caffeine pill. i also take baclofen and benadryl before bed. if i don't fall asleep right away----i quite often start to hurt all over--especiallly my neck, which causes headaches, and then i have to sit up with a heating pad on my neck. i tried stopping the caffeine pills because it can aggravate my reflux---but the pain meds just did not work as well without the caffeine.
i have tried savella---and was surprised that i was actually able to cut back slightly with my pain meds. sometimes it was only 1/2 of each of my norco and soma--sometimes i would have a whole pill of each left. but, i couldn't afford it, so i had to quit taking it. i tried it again a few months later, but i was having more headaches than usual, so i had to take most of my pills. if we get on some decent insurance, i may try it again---and make sure i get to the chiropractor so that my neck won't complicate things!!
i also take aleve because i get some tendonitis and random joint pain. sometimes i take meloxicam (generic mobic) it actually works a little better than the OTC anti-inflammatories---but the nurse told me that sometimes switching them around helps.
i don't get any relief from taking only OTC meds. i hear alot of people with fibro tell me that all they take are OTC meds----and i sometimes wonder if i am dealing with the same thing they are because i don't get help unless i take narcotics---and even then, especially with an air pressure change, i have trouble getting relief.

Fern - posted on 10/22/2010

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Bonnie if you feel spaced out all the time, you need to consider that the Lyrica is causing it. Please be careful as this drug has very bad side effects, including memory problems and being out of it. My aunt is taking it and her behavior has really concerned us at times. She does some pretty bizarre things and it seems to be the Lyrica. She wont stop taking it, because she says it helps her too much.

Bonnie - posted on 10/21/2010

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Thanks again everyone. Suzanne, I took Gabapentin for my Trigeminal Neuralgia and I had severe problems with swelling so they took me off of it. I used to take naproxen for menstrual pain and never thought about it for my FM. The cold weather will be here soon and I will give it a try. I am still taking a lot of meds. (Carbamazepine, Lyrica, Synthroid, HRT, plus a ton of vitamins) so I really don't want to take anything else as I can't swallow much more. Besides, I fell like I am "spaced out" all the time. LOL

Bonnie - posted on 09/08/2010

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Thanks everyone for your help. My Dr. gave me Lyrica on top of the Tegretol that I am taking for my Trigeminal Neuralgia. He said it could take a week or two to feel the full effects. I am also working with a Nutritionist who has put me on a full range of vitamins which I am hoping will help. Thanks again.

Sherrel - posted on 09/05/2010

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HI Shirley,
How are you feeling today? I pray all is well with you. Have you tried natural products to relieve you of the pain. I suffered with severe muscle & joint pain for years they diagnosed me with FM also but it was a misdiagonsis I had lime disease that went untreated for too many years & it gives the same symptoms that FM does if it's not treated. I will be happy to share with you how I got relief & now I can get out of bed & enjoy my day pain free. You can connect with me just inbox me. Until we speak stay bless & make it a great day.

Sherrel - posted on 09/03/2010

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Hi Bonnie,
How are you feeling today? How did it go at the neurologist on Monday? I pray all is well with you. Connect with me & let me know how you are doing. You can connect with of course here and by email healthytouch7@gmail.com

Angela - posted on 09/03/2010

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I take Cymbalta, that was doubled as soon as I was given the fibromyalgia diagnosis, though I don't think that it really helps much. I take a slow release morphine sulphate twice daily for pain, and have oxycodone, for breakthrough pain. I have a friend who takes tramadol and that works really well for her.

Suzanne - posted on 08/30/2010

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Naproxen, tramadol and gabapentin.
The gabapentin helps with the swelling and fibro balls. the naproxen helps keeps things at a manageable level and the tramadol is just when things are unbearable (sorry for the mispells!!!)

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