What are you taking for your FM pain?

Janet - posted on 03/18/2013

I have tryed every drug available and have found nothing that will even touch my FM pain. I had been on soma and got hooked on them so unless you want to walka round feeling like a zombie I have been taking otc meds which are useless. I was taking double dosing the somas and have been having seizures. I thought more of the drugs would help the pain more all I did was pass out and almost killed myself on perscripton meds. Wishing and praying for you all..... xxxxx ps taking otc meds now help helping at all. Cymbalta helped with depression but did not help at all with pain. Good luck everyone your all in my thoughts and prayers...xxx Also all I have done is sleep my life away due to all the past meds I have taken and all the pain I have been in.

Christine - posted on 03/22/2011

i take norco and soma with half of a caffeine pill. i also take baclofen and benadryl before bed. if i don't fall asleep right away----i quite often start to hurt all over--especiallly my neck, which causes headaches, and then i have to sit up with a heating pad on my neck. i tried stopping the caffeine pills because it can aggravate my reflux---but the pain meds just did not work as well without the caffeine.
i have tried savella---and was surprised that i was actually able to cut back slightly with my pain meds. sometimes it was only 1/2 of each of my norco and soma--sometimes i would have a whole pill of each left. but, i couldn't afford it, so i had to quit taking it. i tried it again a few months later, but i was having more headaches than usual, so i had to take most of my pills. if we get on some decent insurance, i may try it again---and make sure i get to the chiropractor so that my neck won't complicate things!!
i also take aleve because i get some tendonitis and random joint pain. sometimes i take meloxicam (generic mobic) it actually works a little better than the OTC anti-inflammatories---but the nurse told me that sometimes switching them around helps.
i don't get any relief from taking only OTC meds. i hear alot of people with fibro tell me that all they take are OTC meds----and i sometimes wonder if i am dealing with the same thing they are because i don't get help unless i take narcotics---and even then, especially with an air pressure change, i have trouble getting relief.

Fern - posted on 10/22/2010

Bonnie if you feel spaced out all the time, you need to consider that the Lyrica is causing it. Please be careful as this drug has very bad side effects, including memory problems and being out of it. My aunt is taking it and her behavior has really concerned us at times. She does some pretty bizarre things and it seems to be the Lyrica. She wont stop taking it, because she says it helps her too much.

Bonnie - posted on 10/21/2010

Thanks again everyone. Suzanne, I took Gabapentin for my Trigeminal Neuralgia and I had severe problems with swelling so they took me off of it. I used to take naproxen for menstrual pain and never thought about it for my FM. The cold weather will be here soon and I will give it a try. I am still taking a lot of meds. (Carbamazepine, Lyrica, Synthroid, HRT, plus a ton of vitamins) so I really don't want to take anything else as I can't swallow much more. Besides, I fell like I am "spaced out" all the time. LOL

Fern - posted on 09/21/2010

Some other ideas in case the Lyrica doesn't work for you are: mucle relaxers such as Soma, Flexeril, Zanaflex; sleep aids such as Ambien or Lunesta, and pain meds such as oxycodone, hydromorphone, etc. There are many more, but I don't want to overwhelm you with info.

Sydney - posted on 09/10/2010

I was in a severe car wreck in 2002. I was 17. A few years I started to have extreme pain. I have gone to many doctors and this last one mentioned FM eventhough he has never officially diagnosed me, he began me on Neurotin, Ultram, and Mobic. These help to some extent but when pain flairs up I use an ice pack to the major pain area. It helps. Pray for the best for you.

Sherrel - posted on 09/09/2010

Hey Bonnie,
I'm glad the doctor gave you something they think will work for you. They gave my Lyric also & it made me very confused, that is one of the side effects of it, so be careful really read the side effects about the medications you are taking. I pray all goes well & can be pain free. Talk to you soon & make it a great day.

Bonnie - posted on 09/08/2010

Thanks everyone for your help. My Dr. gave me Lyrica on top of the Tegretol that I am taking for my Trigeminal Neuralgia. He said it could take a week or two to feel the full effects. I am also working with a Nutritionist who has put me on a full range of vitamins which I am hoping will help. Thanks again.

Anna - posted on 09/08/2010

I am taking savella, endocet 10mg, methadone and 800mg Motrin but it took time to find something that worked on me. I also have MS so I'm on a lager dose on pain meds. It may take time to find something that works on you and I know that is the last thing you want to here when you are in pain but just keep talking with your DR and they can find something that works on you. Good Luck

Sherrel - posted on 09/05/2010

HI Shirley,
How are you feeling today? I pray all is well with you. Have you tried natural products to relieve you of the pain. I suffered with severe muscle & joint pain for years they diagnosed me with FM also but it was a misdiagonsis I had lime disease that went untreated for too many years & it gives the same symptoms that FM does if it's not treated. I will be happy to share with you how I got relief & now I can get out of bed & enjoy my day pain free. You can connect with me just inbox me. Until we speak stay bless & make it a great day.

Shirley G - posted on 09/05/2010

Hi Bonnie Gray, I had been suffering for over a decade with F M pain, I only found out i had F M while i was in hospital due to something else, & the Doctor was readying out what was wrong with me. Thats when I first heard about F M I had to wait till I was discharged to find out more about F M truth be told I couldn't even spell it. The internet was fairly new & I would spend hours searching for the reason why. in the end I gave up & learnt to live with it & the deep throbing pain, the aching joints the pain when I was standing or laying down the stiff shoulder which I called Builders or weight lifters shoulders as they are Rock hard at times due to the inflamation. Roll on to January 2010. I joinned a company called Ardyss International I was still suffering with F M. they had a training session in LasVegas which I attended later in the year I spoke with the Doctors there because I was still suffering but putting a brave face out to the world. The Doctor put me on some of the supplements & I can Honestly say that my health has improved by at least 80 % I still have the odd few days when I feel tired, but my shoulders have started to soften, my joints are not as stiff as before, I am sleeping longer, I dont suffer with the foggy brain, I am hoping in time to be rid of F M & its only been 6 months but its the best 6 months I have had in over 12 years. If you or anyone else would like to know the programme I have been following,
I can be reached by calling me on ( UK 44) 077864 79271. Shirley ARDYSS UK.

Sherrel - posted on 09/03/2010

Hi Bonnie,
How are you feeling today? How did it go at the neurologist on Monday? I pray all is well with you. Connect with me & let me know how you are doing. You can connect with of course here and by email healthytouch7@gmail.com

Angela - posted on 09/03/2010

I take Cymbalta, that was doubled as soon as I was given the fibromyalgia diagnosis, though I don't think that it really helps much. I take a slow release morphine sulphate twice daily for pain, and have oxycodone, for breakthrough pain. I have a friend who takes tramadol and that works really well for her.

Suzanne - posted on 08/30/2010

Naproxen, tramadol and gabapentin.
The gabapentin helps with the swelling and fibro balls. the naproxen helps keeps things at a manageable level and the tramadol is just when things are unbearable (sorry for the mispells!!!)