Any DS parents in the california Inland Empire?

Martha - posted on 09/16/2010 ( 3 moms have responded )

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I live in Yucaipa CA and am looking for parents of DS babies. My husband would like to talk to parents about life experiences and what to expect at different stages in development.

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Anna - posted on 01/21/2011

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Hello Martha
Its times like this that I wish I had written a diary when Jacob was younger. My son was born with was giggling at 5 months or so, started standing up and laughingat about 15 months and started walking at 2. The best advice I have is treat her like you would treat a normal 5 month old. I too was told by the dr. And therapist that my son didn't look like he had downs or that he was "high functioning". Honestly looking back I don't see how a dr could make such a call. That's impsossible. My mistake was that I compared my child to other children and as a result would end up heart broken figuring I was not doing enough for him.
So I stopped with the comparing and raised my child with nothing but love and of course rules. Jacob is 7 years old and he has an 8 year old niece that lives with us. Having my niece around has really helped jacob to social with other peers. He is in public school and so far everything has been ok. Teachers and I usually bump heads about teaching methods but at the end things get resloved with a advocate. I was thinking about putting my child in a catholic school with his cousin however he will need an aide. I feel that jacob could very well do it. If your child is potty trained and knows how to talk children do well with an aide. Keep in mind that the school district will not pay for the tuition however they will cover ot services aswell as speech services. The school district will NOT cover an aide. That you will need to see if your private health insurace will pay.
I am a single mom and I can say that it has been very stressfull and hard dealing with schools however the reward is AMAZING!
I never take anything for granted. When Jacob took his first step it made my entire family cry. And all he did was take a step and fall on his bottom:) when he said his third word which was "office" I went into tears inside the Staples store. People were looking at me like "what the heck".I didn't bother explaing it because no one there could possibly understand why I was so excited that my 2 year old said office,
Your daughter is only 5 so you have a beautiful road ahead of you. Your daughter is going to make you so proud in many ways you didn't know were possible.
I'm a 32 year old women and what I like to do these days is take my son to disneyland everyweekend. And this is a big change from who I used to be before I had him. Jacob is all I need to make me happy. When he goes with his dad I stay home and watch jacobs movies waiting for the sun to come up so that I can see my son.
Martha you and I have been blessed with something so big something we never thought we wanted and now can't live without.
Jacob is so loving. He tells me "mommy I luv u" ', can I get a hug, can I get cinnamon toast crunch, can I watch dvd, please give buzz and woody kiss. The list goes on and on and I'm loving every minute.
Martha don't sweat the small stuff. Just let her be. She will shine when its her time. Jacob did and at a later stage. Can I. Also brag that at 5 years of age he started to brush his own teeth and get dressed, knows how to play movies on his ipod ,knows how to turn the tv on put in a dvd and push play. And if his bored with that one well then he puts another one in.
Yes his speech is delayed but his a very dependent boy and I'm so proud of him. You are your childs best advocate so do what it takes to get her a good public education

Martha - posted on 01/21/2011

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Hi Anna, my daughter just turned 5 months old and 2 days before that she giggled! I was very excited but now I can't get her to do it again! I don't want to over stimulate her so I just let her be. She smiles at me and is doing very well with her IRC teacher. Everyone, doctors and therapists, tells me that she does not look like she has DS and that she is not very delayed. She has more medical issues. For example, an AVSD and a g-tube because she doesn't eat by mouth. What have you experienced with your son?

Anna - posted on 01/19/2011

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Hello Martha
I have a beautiful 7 year old son with DOwn syndrome. We live in Orange County. Costa Mesa to be exact. I would be happy to share my experience with you .

ANNA

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