Sandra - posted on 06/12/2010 ( 8 moms have responded )
My daughter was diagnosed with DS 2 months after she was born. I have to admit that this diagnosis hit me very hard and that I am still struggling with it. I felt like my baby I had in mind died and I had to rethink everthing about her and her future. My baby's doctor did not help much when he just gave me the diagnosis on his way out and did not give me any support. He just said: "I took care of your boy's ear infections and I will do the same thing for Sophia."
I am very thankful that Sophia had no heart defects at all. She already has tubes in her ears and we will be having another hearing test coming up next month. Hopefully it will be fine now as she failed her hearing test at birth.
She is so sweet and smiles all the time! It just breaks my heart that she will have limitations that will keep her from being all that she could be without that extra chromosome.
How do you all put the worries about the future aside? Or is this all still normal since my little girl is only 8-months old and the circumstances this all came together are not the best?
Please don't get me wrong, I love my girl to pieces - accepting the new course of events is just difficult for me and I don't think pills are the way for me. So I am hoping that hearing others that went through similar events might give me some good suggestions and inspirations.