young single mum with a baby with down syndrome

Mandy - posted on 01/02/2010

ive been in grafton for 22 of my 23 yrs cant wai to tal again

Lisa - posted on 11/12/2009

How long have u been in Grafton for?I have family there and head up that way every school holidays...What a small world!!!A worldwide "circle of mum" and we get talking...I moved down here in 2000 for the schooling side of things.So many resources...Talk soon hopefully.

Mandy - posted on 11/10/2009

hey thats amazing my daughter was born in grafton too which is where we still are and aint going anywhere lol but her surgery was done at the mater childrens brisbane thy are wonderful peopl there

Lisa - posted on 11/10/2009

She was born in Grafton with underdeveloped lungs then fluid on the lungs then suspected heart defects as well as suspected DS(which I had told them the day she was born)2 weeks in hospital.We were told surgery was to go ahead but after 8 weeks the defects improved and after 2 yrs were told no surgery was needed.Now in Sydney.I am so happy to hear ur daughter is doing well.If u have any questions or just to chat dont hesitate to contact me.

Mandy - posted on 11/09/2009

hi lisa well im in northern nsw so my closest recsorces are brisbane im currently sittin in the mater childrens hospital a week after heart surgery things are looking up now my daughter is now feeding better and larger amounts no longer breathing wierdly and all the rest so yes one thing is over just go back to a normal life of three kids under 5 at home thankfully. how did you go with your daughters heart condition

Lisa - posted on 11/08/2009

Hi Mandy.I am also in NSW and have a 12 year old daughter born with T21.She was born with the same heart defects as ur daughter.She is going great guns now and growing up so fast.She is my angel in disguise and we all adore her.If you ever have any questions don't hesitate to contact me.

Angela - posted on 10/24/2009

Hi I have a little boy who is 4 With downs and he so far has not had any heart problems, but he has always been congested and has had 3 sets of tubes, tonsils, and adiniods removed. But he goes to pre school and does very well. His speach is still developing though. Thanks

Mandy - posted on 10/23/2009

hi well my baby girl tabatha has been diagnoised with T21 with a asd and a vsd heart problem she is going for operation on the 3rd november so im kinda feeling very nervous but apart from that she is my little princess i have been blessed to recieved such a great baby and my hole small town comunity has execpted her and i have been give move family support then ever. the one thing i have found is that here northern nsw australia that the kids that have ds are 99 % all boys i havnt seen an girls part from my daughter but i had the most uplifting converstion the other day i met a 21yr old boy with t21 ds and he was bragin about having a hangover from the night before it was great to see everyone else excepted him and that he was living normally

Angela - posted on 10/11/2009

I am a single mom with a 4 year old little boy with Down Syndrome. Also my mom had cancer when I was pregnant and died the april before my son was born in July. My Dad died the following year. The other side of his family does not have much to do with him..It has not been easy but staying involved with support groups and my wonderful friends has helped. I know you worry but god will take care of you and her. Keep yourself involved with all the resources that offer you and her the personal care and CAPE which offers alot benefits for her. Read all your information and do your research.

Shynowa - posted on 09/20/2009

HI Mandy i am also 22 i have a son born with Ds also , did not know untill after he was born However he is a perfect healthy happy little boy just like any other little boy in my opinion ... Scylus also was born with to tiny little wholes in his heart when we went in Feb to the cardiologist they told me that one hole all babies are born with and it should close up and that the other may or may not so we have to see them again and actually we see them Wed so i am quite anxious to see weather or not the one has fully closed and if the other is slowly closing or is at the same place it was prior .. He has the Vsd heart murmor which is genetic so that im not to concerned about that i have faith that he will not have to under go any surgerys as being a single mom that will be hard but we will see after Wed what they have to say .. Im from British Columbia Canada and would love to talk to you more about experiences and maybe i could be of some help to you in some way ?? My son is just about 9 months corrected and Actually just about 8 months he was born a month Premmie so .. But seems to be developing quite fine for him .. What kind of Ds was your little one Diagnosed with ?? My son was diagnosed with T21 but i more so think its Mosaic and so does our family doc //:) i hope we talk soon and all is well with you :)
xoxo

Claire - posted on 09/02/2009

hi i read your post i had michael when i was 28 i had all the tests for down syndrome they came back all clear,i had a scan and was concered about what they saw i had two more in depth scans to make sure everything was ok they came back and told me i had nothing to worry about i was having a healthy baby when mickey was born they told me he had downs i was shocked as the tests picked up nothing and i was young i thought it only happend to older moms.mickey is 18 months now and i have learnt alot as before mickey i knew nothing about down syndrome i have another two children jacob 8 and gabrielle 6 i would love to speak to you more xx

Jennifer - posted on 08/22/2009

I also have a baby with DS and he had a cardiac defect. They did the surgery in middle of June. His father lives in Colombia (me in Germany).

We had hard times, I imagine even harder for you with two other kids.



Well, seems like in a few weeks my husband will be finally here!