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Keeping it normal

Dana-Lee - posted on 02/28/2009 ( 3 moms have responded )

Hi I`m Dana and I have an ``unprecedented anomaly `` (and my spelling sucks. Sorry) I have gastrointestinal carcinoid tumors that have mutated to feed on the lining of my skin where they can`t see what is going on. I was diagnosed in 2005.

That aside what this is about is does anyone else feel the need to keep everything normal for their kids. (lost my question mark again, sorry) I mean even with surgery, I`m trying to get them to afterschool events and sending them to movies and planning big birthday parties and buying and wrapping cool christmas presents. How do we keep things normal and what is normal. What do you do. I send my kids cards and write them letters all the time but is this just fear that I won`t be around to say what needs to be said later. Help.

Note : my children are a girl who is 14 and a boy who is 10.

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Dana-Lee - posted on 03/01/2009

Thanks for the idea. You start the board and I`ll be right on board with you. I think it`s imprtant that we do remember to say and write and get it all in while we can. So many people think I`m being morbid when I talk like this and it`s wonderful to have someone who understands. You are a true blessing. Let`s do it. You start. This will be the greatest love letter ever written.

Pam - posted on 02/28/2009

You are keeping things normal. You are doing exactly what you would be doing if even if you weren't sick. Do you have any help? My niece moved in last year to help with the "normal" things while she goes to school. The carpooling, the wrapping ect. I also worry about "what needs to be said later" That is an issue maybe we could start a board on.

Dana-Lee - posted on 02/28/2009

I should point out that I do these things from the hospital. As well as when I`m in treatment.