Jamie - posted on 01/22/2012 ( 1 mom has responded )
I was first diagnosed with MALT Lymphoma in March 2007, and then diagnosed with Diffuse Large B-Cell Lymphoma (both Non-Hodgkins) in 2009. I recieved Rituxan for the first diagnosis after watch and wait, in the summer of 2008. In the summer of 2009 I recieved R-CHOP for the 2nd diagnosis and was told in November 2009 that I was in remission. It has been a lil more than 2 years now, and I think my cancer is back, AGAIN!!
In the spring I started to feel super tired again, started bruising, started feeling some old feelings again... I told my new oncologist (moved from Cali to Oregon after remission) that i thought it was back and she gave me a ct, but saw nothing. I had this happen before and asked for an Endoscopy to look at my stomach because that is where the cancers have always been, and how they were found before. So in November i had an endoscopy and they found 4 tumors, and biopsied all of them, but said all biopsies came back negative for cancer. I was still having alot of stomach issues and pain, as well as the fatigue and other stuff, so I asked for a PET scan, and it showed a lymphnode in my neck was lit up.... it had an SUV of 4.5 I believe. I am trying to get in to OHSU in Portland because this place is really backwoods, and country, and doesnt have specialists, so i am affraid to be screwed with. I'm soo scared that this is happening again... just dont know what to do or how to feel. I still havent told my kids because i dont want to scare them with a false alarm, but shoot, i'm soo stressed and everything that they do is pissing me off. Just need someone to talk to.