Moms Living With Ovarian Cancer

[deleted account] ( 8 moms have responded )

My name is Christina and shortly after my 36th birthday in '07, I was diagnosed with stage IIIc Ovarian Cancer. Two surgeries, that latter giving me a colostomy and a third which reveresed the colostomy, 6 rounds of chemo later, I am in remission and have been for over a year(knock on wood). That year, though, my son "lost" his mommy. I was too tired to play and when I could, I had to take frequent breaks. He couldn't understand. And now, because of my frequent abscences due to hospitalizations that year, he's always afraid when I go somewhere. At night, when he's in bed, if he wakes and I'm not there, he gets so scared(yes, he sleeps with me). I feel blessed that I'm alive and well but so scared of a recurrence. I am a stay at home mom. My husband works his butt off to provide. He buries himself in works, I guess thats his way of dealing. But because of us not being able to have any more children, our private relatinship is suffering. We always dealt with infertiliy, miscarriages and a stillborn daughter, Abby(in my 23rd week), made the cancer diagnosis a real slap in the face. We were blessed, though, with our son who is now 4. He is my miracle child. Well, thats my story. I hope to gain some friends in this group, though it sucks that we're here because of ANY cancer.

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Caroline - posted on 01/03/2012

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Christina,
Thank you! I am also a cancer survivor just past my one year. Like you I feel this cancer has cost me alot in my life. I am a mom to a now 11 year old and I am recently remarried. I met my husband in Iraq and we made plans on having a large family because we both grew up with large families. My husband is the oldest of 5 boys and I am the oldest of 4 two girls and two boys. Anyhow, we were married in 2008 in St. Lucia. We are a military family, so needless to say we are not around any family and we didn't have any friends since we just moved here to Colorado. When I got the call I was so shocked and I fell apart and I started crying because I was not sure what was going to happen to me. While we were in the doctor's office he in forms me that he wants to do the surgery right away which meant, I was going to be in the hospital two days before Christmas. The doctor said he was going to leave the room and let us talk. SO, I looked at my husband and asked "babe, what do you think we should do"? His reply was, do what you need to do. SO when the doctor came back in I said I would like to just do the surgery because I am worried about the stage of the cancer. The doctor told me that he could do a partial removal so we could try to have a baby, but I replied no, let's just get it over with. After having the surgery, I felt alot of guilt. My husband is younger than I am and he has no children as long as he is with me, and I feel that he is angry with me for having everything removed. But, I had given him the chance to say something and he said nothing. Because of my cancer being estrogen based I cannot have any hormone replacement therapy for fear of my cancer coming back. SO now, my hair falls out and my eyelashes too, my weight goes up and down I cannot sleep and my body is always in pain and I forget lots of things. But my husband doesn't communicate with me nor do we talk about anything. SO I feel rejected by him, and I am miserable and I am not sure what to do about that. We don't hardly have any intimacy. That part of me is gone too. I have a disconnect with my head and my body. I get upset when there are commercials about breast cancer and there are no PSA for people who survive ovarian cancer. The way I see it is women who have breast cancer can eventually receive plastic surgery for mastectomy but... we who have lost our uterus and our dreams cannot get that replaced by surgery, no affense to breast cancer survivors. But to see commercials to show that there are people out there like me would help for me to cope. Thank you for getting this topic started. I have NO ONE to really open up to nor do I have anyone who understands what this is like to live with.
Bye for now, Caroline

TIFFANY KATHRYN - posted on 01/16/2010

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hello my name is tiffany and i am 26 yrs old i was diagnosed with stage IV ovarian cancer at age 21 and i have had several miscarriages and hardships in life due to it but all i can say is god has a plan for all of us even if we dont understand it. iam a mom to a 8 and 5 year old boys.

Alison - posted on 11/03/2009

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HI Everyone!
My name is Alison and I am 47 years old. A year ago this November 5th I was diagnosed with Primary Peritoneal Cancer. It is a very rare cancer, a cancer of the lining for the abdomen. I was in the hospital for 6 1/2 weeks they also found a rare infection growing in me that they could not get under control. I went through 5 surgeries in less than 4 weeks. They treat it as Ovarian Cancer and I was stage 3. I also went through 6 rounds of Chemo (Carbo and Taxol) starting last January and ending in May. I also lost several months of my life to cancer but, I would rather of taken the last year away for the alternative. My kids are 28, 25, 22 and I have two granddaughters 5 and 2. It was my grand kids that got me through life everyday. If it wasn't for them, there would have been many days I would not have been able to lift my head off my pillow. If I could not get out of bed, they just came into bed with me with their books, toys, dvds.......what ever it took to get us through the day. I watched them for my daughter before the cancer and I was not letting the cancer take my time with them away from me. It is funny how they knew the days that I just could not even open my eyes......they would just come in and lay with me and rub my head. I also had my youngest daughters wedding to plan. She got married in August. Just 3 months after my last treatment. As of right now I am cancer free. I still have days that I have no energy and can not get up. My hospital has a fitness program for cancer patients. I would never of gone to the gym other wise. I can not say it make me feel better to workout, but I sleep better at night. Like the rest of you, it is just a waiting game. I hear that my type of cancer usually reappears within a year or so. I would love to chat with anyone, especially if you have Primary Peritoneal Cancer. Thanks to all of you for sharing your stories. It is always nice to know that you are not the only one struggling with fatigue even though you would not wish it on anyone. God Bless you all! Alison

Katherine - posted on 09/03/2009

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Hey Christina,

My name is Katherine,I was diagnosed with cancer of the pancreas One year ago may and within the last month I was diagnosed with ovarian and just had surgery a week ago today I knew I would have more treatment was not sure what..But reading your story it helps..My mother is also a cancer survivor she had lung and ovarian...Thanks for sharing with us....

Angela - posted on 05/26/2009

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I was diagnosed with stage 3 ovarian cancer in Feb 08. I have 4 kids 13, 10, 6, and nearly 4. We also had infertility issues but built our family via adoption. I did 6 rounds of chemo after surgery...hysterectomy +++. I enjoyed a 7 month remission, now back in pain, swelling, troubles eating..you name it. Hoping that it may be Gallbladder problems and not a recurrence. No matter what I am so grateful for my 7 months... I lived it up with the kids, made it to everything important, celebrated everyday..even if just with myself. My hubbie struggled through the diagnosis, surgery, and chemo. Played "ostrich" through a lot of it, he just started to look "normal" again, now he's withdrawn again..probably his way of coping.Willing to chat anytime, we all need someone to talk to sometimes.

Christie - posted on 05/01/2009

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Hi Christina! I had stage 3 ovarian cancer/hysterectomy/6 rounds of chemo in 2005...at the time, I was 33 - almost 34, just got back from bringing my dd home from China, my ds (bio) was in 2nd grade...now I am trying to stay calm as they tell me my CA 125 is now above normal...almost 3 1/2 yrs later...

We are going for a second opinion, but I know I'll be doing chemo again soon...

Keeping positive and trying not to stress about this will help, I'm sure...

don't stress or worry about getting it again...the drs are now watching us much closer so it will be quickly caught if it does happen to show up again! It's just a blessing to be here! I also consider my children miracles! My son for coming before the cancer and the cancer then lead us to my daughter! (even though we didn't know it was there at the time)

~Christie

G. Fiona - posted on 03/18/2009

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Dear Christina,



My name is Fiona, and I am at once so glad and so sad to have found you. I have 2 kids, one who is 7 1/2, and one who just turned 4. I was diagnosed in March 07, just a month before I turned 40 (yes isn't that just a kick in the pants). My son was 2 at the time, and had been diagnosed 6 months earlier with developmental delays. My daughter was a very precosius 5 1/2 year old who was very aware of what was going on. I was diagnosed with Stage IV ovarian cancer. I had a total hysteraectomy and started chemo 2 weeks later. I went through 6 doses of chemo, was in remission for a full year and then was rediagnosed in October 2008, and I just completed that round of 6 doses of chemo, and was told that I had a "clean" CT with a CA-125 level of 21. So for now it is just a wait and see situation.



Fiona



 

Sue - posted on 01/25/2009

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Hi Ya Christina



 



I am Sue. I am 39 and last April I too was diagnosed with ovarian cancer.  I have had surgery and chemo, too.   But I am very lucky that my treatment has been so far successful.  If you want to chat that would be nice.

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