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Partial Molar Pregnancy

Andriana - posted on 09/30/2009 ( 3 moms have responded )

14

34

We had a doctor's appointment on Monday at 14 weeks, 3 days. We were so excited to hear the heartbeat that we brought my husband's daughter (my stepdaughter) to the appointment with us. We had had an ultrasound at 9 weeks, 2 days and everything looked great. We even saw our little baby move on the screen, and it's little heart beating.

The doctor tried to find the heartbeat with the doppler, and couldnt pick anything up. So we went into the ultrasound room, and sure enough the baby had no heartbeat, and was not sizing up to 14 weeks. Frighteningly though, my placenta also looked like swiss cheese. It has pockets of fluid, which my doctor was really concerned about.

Apparently we has what he called a partial mole pregnancy, where 2 sperm fertilize the same egg, and instead of creating twins, it creates an abnormal placenta with abnormal fetal tissue that has 64 chromosomes instead of 46. No matter what, the baby could not have lived outside of the womb. Basically we were told it was a genetic fluke, there was no one at fault, and nothing we could have done to prevent it.

We are so devestated. I have a D & C this morning, because the tissue of my placenta was deteriorating and had to be removed sooner than later. I woke up in tears, its such an empty feeling. We might have to wait a year before we can try again because of the added healthy risk to me with the abnormal cells and tissue that were in me.

Im just looking for some support, hopefully from someone who has experienced this. We were told it only occurs 1 out of 2000 pregnancies. Fortunately the chances of it happening again are really really slim. But Im just afraid of dealing with the grief throughout the upcoming year. Our baby looked perfect to us at 9 weeks, and it was heartwrenching to see it lifeless at 14 weeks. Even moreso to hear that our "perfect" baby was actually severely defected and we could have had to make a serious decision about terminating the pregnancy down the line.

Any support or help would be greatly appreciated. And god bless to all of you who have angel babies also.

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3 Comments

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Lisa - posted on 01/31/2012

24

17

I know this post is from a few years back but I'm actually experiencing a partial molar issue at this time...actually, back in December after some abnormal (to me) bleeding we found that our baby's heart had stopped. I had actually had two prenatal appointments before where the heartbeat was seen so seeing it not beating was heartbreaking to me. Since my doctor didn't suspect anything unusual from the ultrasounds (and since we learned that the D&C would cost us a bit of money that we did not really have at that time) we decided to see if my body would miscarry the baby on its on. I was on pins and needles for about a month yet nothing except random spotting happened. I tried doing some natural herbal things (told to me by a midwife friend) the beginning of this year to see if it would help my body do what it needed to do. Still no luck. I went in for a D&C on the 17th of January. Since I had a month to "heal" about the baby I was actually feeling a little better after the procedure because I knew that I could finally move on and maybe even try for another baby soon. A week after the procedure I had more heartbreak...my doctor's office called to tell me the pregnancy was molar and I needed to get my blood tested. I also learned from reading up that I would probably have to now wait at least a year before ttc. I actually did get good news a few days later when my doctor called to tell me my blood test showed my hcg levels were at 600 (I had read were other women had much higher levels with a molar pregnancy). Today was my post-op (from the D&C) appointment and everything seems to look good. I will find out tomorrow what my hcg levels are at now (hopefully they are much lower than 600). My Doctor also said that if all continues going good that we will be able to TTC at 6 months. After all the crying and sadness I have been through the past couple of months, I'm happy to maybe have some positive things happening.

I am curious how things went for you. I do hope that things have been positive for you after your heartbreaking ordeal.

Kerrin - posted on 01/02/2010

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11

I'm so sorry for your loss - we had a fluke happen with our bub (SB complications combined with severe hydrocephalus) which meant I was much further along when my pregnancy hormones kicked in & we found out I was pregnant so I understand all too well the heartache of having to make those hard choices when there really are no choices.

We've been fortunate enough that although there was no specific organisation that dealt with what happened to our bub (we were told that although the hospital dealt with at least 3 cases of varying degrees each week but no one seems to ever talk about it) our state SIDS organisation took us under their wings & we've had sessions with a lovely lady all year. I've also found in the strangest places online women who have experienced the same thing as us to a lesser degree but it has been a big help to find somebody who knows exactly what we went through. I hope that in your travels you manage to find some of the same comfort/support that I was lucky to find. Other ladies have been so understanding but it's always a big comfort to find support from others that have gone through almost the exact same thing.

Latia - posted on 10/03/2009

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9

I did not experience the same instance as you. However, I learned at about 20 weeks my son had a diaphragmatic hernia. That means that part of his diaphragm was missing and would result in his stomach and/or liver and other organs to move into his chest and cause severe if not deadly problems. I was told it occurs in about 1/4000 and there was nothing I did to cause it.



When the Dr. told me, he said.. "you know it's not too late." Meaning that it was not too late to abort my baby. And my son might die later on in my pregnancy or at birth.



I thought, God made this baby and God has a plan. It's in his hands. My son (3rd child) was born at 8 months and lived 1 week in the NICU. I was devastated and will never forget.. it has changed me.



It is still hard for me to even think about why these things happen. I'm never going to understand. But, knowing my angel is truly in heaven and in better hands than even mine... well, that's an amazingly comforting, yet humbling thought.



Our babies are still gifts from God and blessings in our lives if we let them be.

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