heart defect s

DEBBIE - posted on 04/21/2010 ( 3 moms have responded )

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my name is debbie i have a son who is 9years old who was born with a heart defect we have had 1 surgery and episodes all the time . My life revolves around his medical which can be tough alot times but im gonna make a difference here where i live to other moms i started a support group for moms with children that have these issues its called mended little hearts the best thing i have ever done in my life was to try to help cause i no what it is like if anybody wants to talk just write me

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Jackie - posted on 09/04/2010

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Debbie - I am just outside of Atlanta, GA. We are really lucky to be here close to Children's Healthcare of Atlanta and the Sibley Heart Center. I hope all is well with you and your recovery fron the kidney stones is complete and over.

DEBBIE - posted on 05/01/2010

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thanks jackie where do you live ? there are groups all over the us its mended little hearts / i wouldnt trade my life for anyone else but it is hard and i got sick withkidney stones when he was sick with his heart wow that is hard my hubby travels so i do this by myself but im still living lol my son has svts which are very high heart rates his is 304 beats per minute you can just imagine and yes there is so much joy about this child im amazed sometimes

Jackie - posted on 05/01/2010

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Neat, Debbie! I also have a son with heart defects (he just turned 14) but has had multiple surgeries and sometimes it does feel as your life revolves around "issues" but there is a lot of joy too. Hope your group continues to do well.

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