Hi im new

Amanda - posted on 02/16/2010 ( 3 moms have responded )

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Hi my name is Amanda im 34 a single mum to 3 boys and im disabled, iv got fibromyalgia, chronic fatigue syndrome, asthma, thyroid problems, ventricular tachycardia, slipped/ bulging disc with oseo-arthritus im on a cocktail of medication every day which helps but i still get bad days my doctor has put me on antidepressants because im finding it hard to cope with all my illnesses and finding out my middle son has chronic fatigue syndrome aswell he is 16yrs old i see him suffering and i can't do anything to help him.
I went to see my gp yesterday and she has told me i could also have epilepsy iv got to have blood tests and go to a specialists im so scared that i will have this other illness to cope with on top of all my others.
My 10yr old son is a little gem he is brilliant and helps as much as he can i feel guilty because some of the things he does i should be doing his smiles keep me going and his cuddles. I don't get outside help just my 3 son's and my mum and dad. My mum is amazing she does all my ironing to help me i know it upsets her seeing me so ill she cry's when im in pain because she can't get rid of it for me . I think that's what mum's do they worry, feel guilty for not being able to help get rid of the pain but they also love and her hugs help alot. my dad helps with all my bills setting up direct debits and pick up the boys from school if im having a bad day.
It would be nice to chat with anyone
hugss
Amanda x

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Carrie - posted on 03/28/2010

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Hi amanda my name is carrie and i am disabled to i am 27 years old and have a 3 year old daughter and i have being living with MS for 4 years and i feel for you because i know how it feels to feel like crap and to not know if the next day is going to be a good day or bad day so believe me hun your are not alone you are very blessed to have such great parents that help you and your boys sound amazing so dont be so hard on yourself your have great family and that's whats going to give you your strength. my 3 year old daughter is great and my husband are the ones that keep me going my daughter loves to help mama especially when she says mama your feel crappy today , she love to empty the dishwasher and likes to swifer the floor and dust so i use her as often as she is interested my husband does most of the house choirs when im having a bad day so im blessed to but you what god doesn't give us what we cant handle so take it and run with it ... god bless( here to talk to )

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Carrie - posted on 04/07/2010

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Hi amanda i just got your reply and you had me laughing that's so cool that you make time for your kids when you are feeling better that's something that i find to be rewarding i try on my good days to spend as much alone time with my little girl because she is such a great help and she loves to go to the park and blow bubbles . I hope you have been able to enjoy the good weather and that you have been having more good days then bad ones take care like chatting speak to you soon take care carrie .......

Amanda - posted on 04/01/2010

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Hi carrie, Thanku for replying to my message, sounds like you also have really bad days, i bet your little girl loves helping her mummy i know my 11yr old son helps me so much he will do anything to help he even pulls me up out of bed on my bad days . Every saturday i try and take him to the cinema to a kids film showing its very cheap and he can relax and enjoy it like a child should do just to give him and me a break. My other hobbie when im ok is photography i'd love to do it as a job but with my health its holding me back but maybe one day i might manage it.
Your right about my parents i wouldn't know what to do without them helping me, alot of the time i feel bad asking for help my mum hasn't got the best of health but she never says no to doing my ironing for me and my dad is past retirment age but still works part time and i feel its so he can help me pay for my car because he knows i couldn't manage without it, i would love to win lots of money so i can look after them for a change and treat them i love them to bits just wish i could show it...
I asked my 18yr old son to help with the washing up he said oh no i can't do that i always do it wrong then he added " if you had a dishwasher i would do the washing up" i laughed so much.
Anyway lovely chatting with you take care xx
Amanda

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