Daughter just diagnosed

Gemma - posted on 06/28/2009

when i was pregnant with my youngest son we went for a scan at 20 weeks and was told their was something wrong with his kidneys they was dilated they gave me regular scans to see if they was gettin any better but they wasnt when he was born he had a renal scan and he`s 10 months old now and has since had 3 renal scans 1 kidney is now fine but the other is still enlarged but working just slower than it should be so they are jst keeping an eye on him

Allegra - posted on 06/16/2009

Thank you. oour mtg with Avalon's urologist went fairly well. She is doing okay right now. We have to take her back to the urologist in 2 months for more testing. She will have another renal ultrasound and a urine culture. If the hydronephrosis gets worse then she may need surgery vbut if it doesnt show that its enlarging they will leave her be for now and re=ultrasound her a few montyhs after that one. Her left kidney we just have to watch for infection but so far so good! Thank you for your concern :)

Sarah - posted on 05/27/2009

My son was diagnosed with hydronephrosis of his left kidney at around 11 months old. He's now a year old (May 25th) and in June we are looking to have his first surgery to help drain the kidney. His left kidney is a whopping 13cm! His kidney can't drain because the ureter doesn't connect to the bladder correctly. This first surgery will be to (hopefully) drain the kidney via a hole in his belly. Due to the retention of urine, the doctors don't think there's much functioning tissue left so after the 1st surgery he'll be monitored and we'll have some functionality tests to determine if reconstructive surgery is in order or if the kidney will be removed.

Good luck with your baby girl! Please post updates!

Courtney - posted on 05/06/2009

hey allie,



i have been there, i'm still there. my son was diagnosed with hydronephrosis at 18 weeks gestation. we have been dealing with it since then. he had his first surgery at 3 months old and are waiting to hear if he will have another next month (at 16 months). just make sure you write down all your questions before hand... google the specialist... make sure you are okay with what you find. you are going to be seeing him either a) alot or b) every 3 - 6 months until she grows out of it. good luck to you and update and let us know how it goes next week.