Kristal - posted on 03/13/2009 ( 4 moms have responded )
I am sorry that I have not gotten this ball rolling in the right direction sooner. We all know how life with both Lupus and Fribo can be. I think it would be a great ice breaker to let everyone know a little about yourself. I will post first so get the ball rolling.
I am turning 31 this September. By the age of 21 I was told that I had fibro, which was not a big suprise because my grandmother, my mother and my aunt all have it as well. They where able to go back in my medical records and saw that around the age of 16 I started to show the signs and systems. When I was 24, I watched my mother almost die from lupus attacking her heart, liver and kiddneys. About a year later I feel ill to lupus and it attacked my nervious system. Now I have minor problems with controlling my body when I get tired or sick. The kicker of the whole thing with lupus is that both my mother and I give a falus negitive on the ana test that they use for lupus and if it wasn't for a trip to Stanford we would not know that is going on with either one of us. Over the past few years I have been fighting to get back to being normal and back to work. I will say this about having lupus and fibro, every day is always different and a new adventure.
Now that I have told a little about myself please feel free to tell the group about you. I would love to know a little about everyone and what they have gone through.