Still don't know what's wrong...

Meg - posted on 07/31/2010 ( 4 moms have responded )

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I'm 23 years old, I've been told by countless doctors that I have an autoimmune disease yet they have never diagnosed me with any particular disease. It has been a nightmare because I have been sick my whole life. I have had pneumonia 18 times and have been hospitalized for it twelve times, if someone near me gets a cold, i usually end up in the hospital ... I have arthritis that has been giving me more problems this past year... I have chronic migraines for which i get shots... Nowadays I can't walk from my kitchen to my living room without being completely exhausted.. I get sick from the heat, I have unexplained bruising, I have a vasculitis type rash that i have had since i was a couple weeks old, it has gotten worse over the years and seems to flare up when I am sick, it's weird, all the doctors get all interested in it but not one doctor in twenty-two years has been able to tell me what it is.. the list goes on and on... I went my entire pregnancy feeling awesome, the healthiest i have ever been... but now im just sick, if it isn't one thing it is another and I'm tired... Anyways I just want to find out what it is I have, and I was wondering if anyone out there has some of the symptoms I experience... Thanks

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4 Comments

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Emily - posted on 10/20/2011

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Have you ever heard of HSP? My son got this autoimmune disease after being sick with pneumonia. HSP's onset is pnuemonia, and causes major flare ups. It's a type of vasculitis. Check it out.

Michelle - posted on 12/02/2010

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I agree,Lupus does sound like the most obvious diagnosis. Ask the docs to run a ANA.

Mary - posted on 09/11/2010

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Mary - posted on 09/11/2010

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Thts so weird-I was misdianosed wityh MCTD--When I became pregant last year I was really healthy-u never would hve known i was a high risk pregnany--I was finally dianose with lupus during my pregancy.Now tht shes here-Im always tired,and my muscle ache all the time,I get migranes,stomach pains, and it funny cuz about the rash -I had a rash my whole life no one could understand it,i was born with it..Im 25 and i was just dianose with Lupus-U could have lupus too-