Marybeth - posted on 12/12/2010 ( 1 mom has responded )
Hi, I am a mom of three ( almost 7yo, 4yo, and 1yo) and received my dx about 4 years ago. I kept it a secret at first (I was so embarrassed by it), but a really bad exacerbation in 2008 forced me out of the closet, so to speak. I think the hardest things about it is, dealing with the pity looks, and feeling like my family resents me for having this disease. Sometimes it feels really lonely not having a single person around me who truly understands what I go through, day by day. I look forward to connecting with other moms who are in the same boat with me!