Any one have a child with pancreatitis?

Mary - posted on 05/27/2009 ( 5 moms have responded )

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My 10 yr old son was diagnosed with pancreatitis a year ago and I am looking for any one else dealing with this.

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Dana - posted on 08/20/2012

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It is so scary when you first learn of a problem with your precious baby. My son had really bad blood in his stool the first 3 months of his life and we were afraid it was a major GI issue, but, thankfully, we were able to remedy it with special formula. I don't know if you have found a company you are comfortable with, but I know of one that has the exact formulas that a child with pancreatitis needs... it is called Star Medical and they are so helpful! Their web site is www.star-medical.net. I hope that helps!

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Mary, I meant your son. I am sorry about that. He sounds very much like mu husband, only they still can't find the cause in my hubby. I am glad his pain in under control. that is good. My hubby must take a lot of meds to help and even then he is in pain. Tonight he started vomitting so I am a little worried about if we will go back to the hospital soon. It is hard as we have 4 kids all under 9 years old.

Mary - posted on 06/01/2009

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My son will live with it forever his is caused by hypertriglicerides which is heridetary. He is on many meds and a very strict low fat diet. He has been hospitalized twice and had to have an NJ feeding tube for two months. His pain is mostly under control, but it's living with the diet restricitons that is so difficult for us. It's also hard to find any info since this is normally a condition seen in adults.

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My husband also has pancreatitis, he was diagnosed 2 years ago after a 2 year battle before that. So he has had it for 4 years now.
Hedy, it is only curable if alcohol or gallstones are the reason for it. If, like my husband, neither of those things are the reason, and the doctors can't find a reason you can live with it for your whole life. My hubby takes many meds daily and can no longer work due to the diabilitating pain he is in all the time. There is no cure and he will live like this.
Mary, I am so sorry for your daughter as if she has it chronically like my husband it is awful.

Hedy - posted on 05/27/2009

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Your question makes me very confused. When I was pregnant with my first child I had gall stones large enough to block my pancreas off and ended up with pancreatitis. I no longer have it so I am assuming it is curable. But other than that I do know that it is extremely painful. I hope your child is able to overcome this, as no child should go through that pain.

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