I suffer from fibromyalgia and chronic fatigue

Caitlyn - posted on 03/09/2013

Another idea: Cut out artificial sweeteners if you drink diet stuff. They made me achey all over and depressed.

Steph - posted on 03/05/2013

I was in pain for years, headaches constantly too. I was also offered Fibromyalgia pills to help with the pain and anxiety. I was 35 years old at the time and couldn't believe I would be on a pill for the rest of my life. With 3 kids under 6 yrs old, I was worried, and tired. Because of the headaches I was taking otc meds for that. But what the doctors aren't looking at is the "why" are we getting all this pain. I knew there was a reason, and I was willing to try anything. My cousin was having arthritis also, and he stopped eating gluten products..so I figured why not. After a week I was feeling better, but not completely. I read into the symptoms of "leaky gut" ...and then it all made sense. I ended up taking dairy products out, cut my sugar intake, and NSAID pain meds. I am 98% better, its amazing that after a few months I am back to normal. I try to get info out when I can to other women, because I didn't have any bowel problems (besides milk products). There is no magic pill....its a life style change. Chances are you are deficient in vitamins as well. I felt like I was 90 years old, I rarely get headaches now, my sinus problems are gone..my cycle is back every month. Its a hard change to make, I LOVE FOOD..but it was killing me. I hope with all my heart that you get healthy again, I remember where I came from, and I wouldnt' wish that on anyone.

Fatima - posted on 01/14/2013

Try finding a pilates instructor that can do one-on-one sessions with you, so that your specific needs are met. I've heard it helps . Good Luck

Deborah - posted on 01/14/2013

Find a doctor or holistic therapist that can work with you long-term. You may find some of these supplements helpful.
http://www.nutritioneclinic.com/2012/08/...
I notice that you have a lot of pain, and most of these have been tested for their efficacy on mood and fatigue but these are inter-related symptoms and if you have low mood or fatigue these will adversely affect your perceptions of pain and exacerbate the way you experience pain. I would surely prefer a trial of 1 or more of these supplements over narcotics which have the side effect of drowsiness and brain fuzziness which will also wipe you out.

Julie - posted on 03/08/2011

I heard HHV6 is cinnected to CF. You need to see a good Lyme Liter MD on the east cost........

Anita - posted on 05/10/2010

hi i had this condition 10 years ago . i couldnt get out of bed so tired all the time in pain all the time it started after my third child.i had every test done and was after two years told oh its fibromyalgia. go home and deal with it as nothing works that what i was told. i was so stressed and felt let down by the medical profession they couldnt help me.
i found after a while that stress and pms would trigger it off.so started doing relaxation classes .then i had a few reflexology and reilki treatments done after a while it eased and now im fine
i got so much relief from holistic therapy that i started to train and work with them i not saying the medical profession dosnt work but the holistic approach helped me. i am now 6 years free of pain i have 5 kids and every day is a new venture. you are not in sain you have physical pain and it needs to be helped disease is two words dis--- at--- ease. relive the dis and the ease will follow...

Jeanna - posted on 05/06/2010

By the way, Juice Plus+ is gluten free and kosher.

Jeanna - posted on 05/06/2010

I am so sorry to hear all these stories about pain, no energy, etc. I am a Wellness Coordinator but also a 4 year double lung transplant survivor, cancer survivor, I have diabetes, on coumadin, osteoporosis and am anemic, most of all this due to the anti-rejection medication due to the transplant. I am all about nutrition, specifically whole food, fruits and vegetables. I found a company that juices raw fruits and vegetables, gets out all the nutrients and vitamins, breaks it down into powder and puts it in capsule form. It has the nutrients of 17 raw fruits, vegetables and grains. Therefore it increases immune system, protects DNA from damage, increases cells that kill cancer and is filled with antioxidants and also positively affects the cardiovascular system helping to prevent heart disease. It is whole food, that's it. My whole family is on it and we have had great success with it. Don't take my word for it, look at gal4juiceplus.com and look at all the research that proves what I have said. You can see all the 3rd party, peer reviewed, randomized research that has been published in some of the most prestigious medical journals. I just talked to a lady tonight that had fibromyaglia for years and after starting Juice Plus+ she no longer has it (that is really true). There are hundred of testimonies from people that have had MS, Lupus, Lyme Disease, and many other diseases; but Juice Plus doesn't base it's success on testimonials but on the research. That is what makes Juice Plus+ different. I wish you and the people who posted well wishes and I pray you have relief soon!

Tricia - posted on 05/06/2010

I've been doing research and watching posts on Facebook from gluten free groups. A LOT of people with nerve damage, migraines, autism, adhd and lots of other diseases and syndromes are having awesome results from going on a gluten free diet. I knew of a little girl who was seeing a neurologist for terets but was also showing signs of celiac disease. When her mom took her off gluten, all of her teret-like symptoms disappeared. I have tried this with my own son who has odd "ticks" and he has not had any ticks either, except for a few days after ingesting gluten! I would highly recommend trying the gluten free diet for at least 6 months to a year to see if you have any improvements. Make sure you keep a journal of what you eat and how you feel. Sprouts and Whole Foods are great place to get g-free foods. Good luck, and let us know how you're doing.

Diana - posted on 05/05/2010

oh don't forget i have fibromayaglia, and thats does not take the cake .

Diana - posted on 05/05/2010

hey, anybody! somebody help me my three year old son is literally driving crazy I get no

sleep he goes to sleep about 10:00Pm wakes up at 1:00am and stays up until 1:00pm

what is goiung on? thank god i'am on medical leave for now whats going to happen when I go back to work , i'am so so drained out i try everything help me please

Kc - posted on 05/04/2010

Hi Tina, I am with a wellness company that has healthier and safer alternatives like vitamins and creams that have no chemicals and toxins that would cause you side effects.Many people have given testimonials to these products helping them with fibrom.ms,arthritis diabetes and more.If you would like more info. please send me a pm and I will help with any questions. Good luck in all your findings.

Jeannine - posted on 05/04/2010

Well, I was diagnosed about 15 years ago. I also have MS. I have found that without narcotics, I am unable to function. I'm still tired and don't sleep, but at least the pain is bearable. Unfortunately, exercise, even a brief walk, will mess me up for days. I've tried the vitamins, cutting out all kinds of foods, various other medications, chiropractic care, anything and everything and absolutely NOTHING has worked for the headaches. They just won't go away. I have some days that are better than others, but....you just deal with it. Good luck.

Amanda - posted on 05/04/2010

i was diagnosed when i was 14 im now 25 i have 3 kids i have never been 1 to get alot of sleep but i do notice after the aches and pains of being in bed ware off i have more energy i havent found any meds that work but light exercise no matter how tired u are will help the next day i think its because u get more sleep that nite also a good sorce of vitamines helps just because when ur in pain u dont eat or if u do u dont eat right

Diana - posted on 05/02/2010

i was just dignoise with the same thing, I do ytake the medicine, but I don't like it it makes me so groggy, and i feel awful. hot baths.

Debra - posted on 05/01/2010

when ya have little ones to run after ya need to eat light and have vitamin drinks

Debra - posted on 05/01/2010

Well i have 5 kids from 21 down to 6 and the only thing i have experienced that hepled me was healthy stuff like right when you get up in the morning to use the restroom... you drink acai berry mix in your water bottle,drink it and then drink lots of good liquids throught the day. I get really tired if i eat till im full so i eat light ti

Melissa - posted on 04/30/2010

I too suffer from Fibromyalgia secondary to a significant cervical injury. I have tried various treatments including the drugs. I found that accupuncture helped tremendously and taking a new drug called Savella.I also started aquatic PT. This is a new trial med for fibro.. I have noticed a true quality of life since adding these treatments. Good luck with the struggles!!

Zandria - posted on 04/30/2010

ive got it plus lupus arthitis and diabetes.i have 8 kids that are very active. o suffer daily but what keeps me moving i soak daily usually whn my little is napping or sometimes he soaks with me in his trunks. it is our me time. i take a nap every day and wake up right before my kids come home from school. i dont do mst chores my family cleans up together before they do homework or go out to play. then snack....again a little down time. homework , then i free time for me again. i get tired very easy and the planned down time relly saves me. i am in a wheel chair on and off all year because my body gets too tired to move sometimes. just remmber, nothing goes on without you and youdont want your childrens child hood memories being of you always suffering. look up wabi sabi- a japenese way of life. pretty much it means WHATEVER if it gets done great if not tomorrow is only a day away

Dana - posted on 04/30/2010

oh yeah I forgot Fish Oil.

Dana - posted on 04/30/2010

Tina: I too have fibro I also have Multiple Sclerosis and a circulation problem. I recently started taking VitD 1000IU dly and mild yoga stretches and my narcotic usage has decreased to about 4 pills every other week. Also I started seeing a physical rehabilitationist/chiropracter He suggested massage therapy to stretch the muscles and that has helped too. hope this helps
Dana in PA

Zoraida - posted on 04/29/2010

Hi I was diagnosed w Fibro in 2000. i have tried so many things. One thing after getting a true diagnosis I suggest reading Back Pain No More by Dr. Sarno. Its a quick read but I got some helpful tips. I have tried so many meds. One thing that I suggest I walking at least a few days a week and some sort of muscle workout to tone at least 2x a week. Hot tubs sooth hurting muscles and my exercise of choice swimming and walking. I ended taking now an anti depressant that works as a pain reliever (a handful of these types of pills help w pain that comes from the nerves, muscular), helps w chronic fatigue too and helps regulate sleep. A good natural source for sleep Melatonin, None of these is a narcotic. The headache will probably go away with that. You will have to figure out what your stressers are because stress is what is keeping those symptoms high. I had to eliminate certain foods for myself for a while to eliminate headaches. Try to keep a food journal to figure out what triggers them. Tell me what you think. Hope it helps.

Jeanne - posted on 04/29/2010

Hi Tina my name is Jeanne and My Email is Emilyelisa4@hootmail.com and I too suffer from Fibro and Chronic but i have been doing alot of reserch and i like what he has to say and he is a doctor in Alabama and knows how to treat parients so u need to check into him his name is Dr Roger Murphee

Jeniffer - posted on 04/29/2010

I have the same problems fibromyalgia, cyatica, costiochondrititus among other things and I am on a ton of meds too. I tried lyrica and it took so much to work that I had was a zombie needless to say I discontinued I have found that while a narcotic pain reliever does have side effects that they are for me anyway much less debilitating than the other medications good luck

Allyson - posted on 04/29/2010

Hi Tina! I too, was diagnosed with FM, and just recently found out that I have an autoimmune disease as well. I have 5 children, and I was exhausted all the time. I wasn't taking any meds for my FM either, but I did start taking Vit D, 4000 IU's a day, and I did find that it made quite an improvement on my achiness. Just something u might wanna try, and its not very expensive!

Thereca - posted on 04/28/2010

MOST OF ALL BE VERY VERY VERY I DO MEAN VERY LEARY OF THE PROMISE OF A CURE AND IT WORKS FOR EVERYONE PROMISES.... A PERSON CAN BE TAKEN FOR A LOT OF MONEY THAT WAY........

Thereca - posted on 04/28/2010

The first two are great groups for support
the third is the national fibro assoc.

lots of useful information and a place to commiserate

1,) http://www.facebook.com/?ref=home#!/pages/Fibromyalgia-Where-We-Belong/107856782589086?ref=ts

2.) http://www.facebook.com/?ref=home#!/group.php?gid=115600548461698&ref=ts

3.) http://www.facebook.com/?ref=home#!/fmaware?ref=ts

Kimberly - posted on 04/28/2010

I suffer the same. I bought support hose to help with my legs and i soke in the tub daily. I understand where you are coming from. I hurt everyday. I joined a gym so maybe i will feel better or maybe you could go for walks. I hope this helps!

Thereca - posted on 04/28/2010

I am a Fibro sufferer... we Fibromites will not be cured... there is to date no cure...often time dietary changes can ease some, sleep is a big factor,8 hrs on a consistant at the same time every day is a a must!!!!!!!!!!!!!! some folks have gret luck with meds and they are not all narcotics. many are anti depressant nsaids etc...some do well witht he occassional muscle relaxants unfortunately the answer is it is all hit and miss and most of us have become guinea pigs for docs, holistic meds and home remedies....remember outside of caring for the young kids and your self, there is nothing so pressing that cannot wait, do a little a day for longer days as opposed to a lot today and down for a month...delegate and share responsibilties you do not have to be supermom

Angie - posted on 04/28/2010

I have fibromyalgia too and I don't take any meds. I stay busy so that I don't think about it as much. When it gets unbearable I take Advil and put heat on the affected area - my main pain points are in my joints. I also found that getting to a healthy weight made the biggest difference in my pain and exercising as often as possible helps - endorphines are amazing! Good luck!

Caroline - posted on 04/27/2010

I am suffering from fibomyalgia.. I was able to help myself when I shifted my energy to what I love to do most.. I mean, us, moms, usually HAD to do things that we are SUPPOSE to do.. household chores.. etc.. but I found out that pushing myself to do such chores, makes me sick.. However, when I am working.. I found I have more energy.. so, I realized that I first do things.. I LOVE to do.. then when I'm up already.. like I'm excited already.. I then do household chores at home.. I observed.. there's less pain and I get to do more chores at home

Kristine - posted on 04/27/2010

Hi Tina,



I do not have fibromyalgia but I have heard of all the things people go through that do and I have to say that even though I don't know first hand what it is like, I have had times where I am wiped out just because I don't get enough sleep or because of having a cold etc. and I'm sure that it must be so much worse for you to try to keep pushing yourself like you do. You must be a very strong person to keep going and also for not wanting to take the prescription meds.



I am a member of a health and wellness company that specializes in helping people to avoid or decrease taking prescriptions that have side effects by promoting more natural alternatives like vitamins, supplements and topical creams. Since chemicals in our everyday products can also contribute to weakening our immune systems, they also make safer products for your home and personal care that do not contain those dangerous chemicals.



If you would like the details on this company and how it might be something that could help you, I would be happy to share them with you. Feel free to send me a private message or email me at: kakjmk@yahoo.com



There was a person in our group 2 or 3 weeks ago that was talking about someone she knew who had Fibromyalgia and couldn't hold a job or keep up with her children anymore as far taking care of them and once she started using these products ( I believe she said it was within 30-90 days or something like that) she was able to do everything again including getting a part-time job.



I wish you luck in finding what works for you and let me know if I can help you :)



Kristine

Amanda - posted on 04/27/2010

I have heard that water theropy is good. Like just going to a local y and just walking in the water. No first hand knowlage for ya, my mom has fibro and she pushes through working 40+ hrs a week as a teacher but at when she gets home and on the weekends she goes to bed and does not get up until she has to leave again.

I wish you luck

Crystal - posted on 04/27/2010

Hi Tina.
I am also a huge supporter of natural products over narcotics. My mother-in-law also has fibromyalgia. She has been taking a natural product for the past several months that has worked wonderfully for her. If you'd like more information about it, feel free to send me a message so I can provide you with information and a contact on how to get the product.

Wish you the best in whichever product you decide to try.

Patricia - posted on 04/27/2010

Hi Tina was doing a search on the same and came up with this site...
http://www.fibromyalgia-associationuk.or...
Sending you Angel Healing... Stay Blessed

Barb - posted on 04/27/2010

I was in the same situation two years ago my whole body ached, I had no energy and I just couldn't focus on anything. I have 6 children as well. My youngest at the time was 2 at the time and I had to put him in daycare because I couldn't keep up with him. A friend of my introduced a couple of things to me that really helped me. Within a couple of months I was able to bring my son out of daycare and the longer I took these products the better I felt. Maybe they can help you as well.Here are a couple of links to what helped me.

If you feel that you would like to know more contact me through my email barb.scott99@gmail.com. I hope this is of some help.