I think my daughter has a sensory disorder but don't want her diagnosed because of the stigma that is attached to it. Anyone have any good reads on this issue?

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Sharalyn - posted on 12/09/2010

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Things have changed drastically since you were in school for the most part. Most sensory kiddos are in a regular classroom with a few adapters to help them get through the day. Early intervention is the key. While we knew that our son struggled with Sensory Processing, by the time he started school, it wasn't even on his record. I personally confided in the teacher the struggles and things to watch for. I told her we'd be watching at home, and if she noticed any struggles at school, to please let me know so we could collaborate to solve the problem and find ways to make things work for him and the classroom.

What your cousin's mom is doing is setting him up for struggles later on in life! That's a parenting choices that you don't have to make. While I look at it as, sometimes there is a Sensory thing going on that needs to be addressed (taking an auditorily sensitive child to the McDonald's play yard is a poor parenting decision if your child has learned skills to cope with that yet, so you just don't do that. Asking for a meltdown, and you get it!), but my son does *not* get excused from rude behavior. He's been taught to "check in" with his body regularly and given the problem solving skills to figure out what he needs. Sometimes that means he needs to do gross motor things to get stimulated to be able to focus, other times that means he needs a quiet spot to just chill out in for a bit to calm down. Teaching him to recognize and meet his own needs (and telling those in authority what is going on), has been my number one priority for him as a parent. Knowing how to calm himself and figure out how to stimulate himself will hold him in good stead as he grows. Those needs change and adapt as he grows too.

((hugs)) If you want to get your daughter the help she needs, you are going to have to let go of the stigma, and just get her help and help her through whatever stigma she may end up dealing with.

((hugs)) It's not an easy road, but a very worthwhile one!

Patricia - posted on 12/09/2010

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First of all I commend you for wanting to be a good parent and for understanding that learning/sensory/other disorders are only a PART of your child's life NOT his/her WHOLE life and maintaining a good balance :)
My daughter and son have sensory disorders (they feel overloaded with what we would think is normal stuff like tempatures, textures of food and clothing, etc.) some things if not ALL things like I have mentioned to a person/child with a sensory disorder it is like nails on a chalkboard........all througout their waking hours! If caught and treated early enough with occupational therapy which focuses on sensory imput, childrren/adults with a sensory disorder can manage and possibly be ''healed'' (or at least managed well enough to the point where they can tolerate most if not all things to appear ''healed'').
Yes, there IS still a ''stigma'' but not the way it was when we grew up. Like you pointed out disorders that a child has tend to be used as excuses NOT to parent a child properly. You are already WAY ahead of the game to see this and again I TRULY commend you and Pray for your son :)
God Bless

Jaymie - posted on 01/23/2009

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Thanks for the info Sharalyn!

I remember going through school with these symptoms and them putting me in Special Ed for it. I was horribly made fun of by my "normal" peers. In the end, nothing they did helped and I got stuck with having been in special ed... That is the stigma I am talking about, and don't want for my daughter.

Her cousin has this also, and his mother is constantly making excuses for his bad behavior as a sensory thing. Personally, I think it is bad parenting to blame. I understand that certain situations are harder to deal with, but that does not mean that the child should get away with everything and never reprimanded.

See what I mean about the stigma now?

Sharalyn - posted on 01/23/2009

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Some good books:

The Out-of-Sync Child
Too Loud, Too Bright, Too Fast, Too Tight
The Sensory-Sensitive Child.

I have to ask, what stigma? My son has Sensory Integration Dysfunction (now called Sensory Processing Dysfunction), and there has been no stigma. Of course, he was diagnosed at 2.5 and OT and Speech was a huge part of his life for 3 years. Personally, if you child needs assistance, why would you not want them to get the assistance they need? By age 5, my son was "graduated" form both speech and OT. He's now in 2nd grade and doing marvelously. We have a few adaptive things we do here at home, and we're looking at allowing him to take his tests in a room by himself at school, along with wearing a "focus vest" (weighted vest) and having a strength band across the bottom of his chair. He's had both of the others all through school. The kids are envious of him. When I brought it in, the teacher allowed me to explain what they were for, and allowed them to try the vest on and such and answer all their questions. This year there is a new little girl in his class who was *just* diagnosed, and she is really struggling with maintaining focus in the class because she's just now getting the help she needs.

Good luck!

[deleted account]

yes id like to know a little bit aswell, my son was diagnosed with a visual perception disorder wen he was 5 and wondered if its simular

Kelley - posted on 01/20/2009

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Could you tell me a little bit about that? I have a three year old boy that some people have told me that he may have that. I haven't really looked into it because he is there and I figure that is how they act. Sorry I can't help.

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