Sickle cell took over for a minute, but I

Monique - posted on 10/11/2010

Thanks Tootie. I will check out your blog. It seems you go through just as much as I do. But we are strong survivors. I will keeo you in my prayers!

Tootie - posted on 09/26/2010

I totaly understand, I've always said the older I get the worst my health is. I've had a full hip replacement and i need my other hip and both shoulders replaced. I have a-vascular necrosis and my bones are deterierating. I'm only 31. My first replacement was at 19. My lungs have been drained. I had puss all over it from a tooth infection so i understand that too. I Have so many other issues that it would be tiering to sit here and write'em,lol But I do understand. I'm glad yo've decided to come back, We need you and this grop and I believe you need us too. We're here for you and your in my prayers. I have a Vblog called Sickle Cell and Me and I think you would like it. Go check it out and if you like it you should subscribe. I put videos out all the time because this is my Passion and I want us (sicklers) to come together. I hope you check it out and I hope we talk soon. www.youtube.com/madebykodak

Monique - posted on 09/25/2010

Hi Lindsy. thanks so much for your concern. I was diagnosed with SS & Beta Thallesemia over 35 years ago. It gets hard sometimes, but I am still here. When I stop feeling the pain is when the problem comes in. I am blessed that neither of my 2 children even have the trait. After my last post I am being weined off the oxicontin after 8 years & I have been put on Opana. I am praying and believing for that cure sooner than later also. They do have more treatment options now than they did 35 years ago. I will keep you & your children in prayer. Feel free to post any conversation questions that you may have.

Lindsy - posted on 09/22/2010

Sorry to hear that you haven't been well! I am a mother of 2 with Sickle Cell...both SS. Aniyah is almost 5 & Tristan is almost 3 months. It hurts to hear you say that your illness is getting worse as you get older. As mothers, we try to protect our children from any hurt. Unfortunetly, I know that I can not. Pain is an inevitable part of their lives...that will only get worse. All I can do is...try to make sure they eat properly, rest, hydrate and take their meds. God willing...there will be a better way to maintain and possibly cure this horrible disease. I pray that this will happen sooner, rather than later.
BTW, when were you diagnosed?
Be Well,
Lindsy