Moms with Spina Bifida Kids

Moms who have children that were born with Spina Bifida

6

catheters and supplies??

My daughter is going to be three this month and she is being cathed twice a day and She has meds that i flush into her bladder. I was wondering where everyone got there supplies...

7

Hi Everyone

I guess I'll start off by saying hi. My name is Ali and my daughter, Kenidee, was born on September 19th, 2008 with SB. She is L3-S1. She had her back closure surgery 24...

3

my daughter Makayla with SB

I was 19 when I was pregnant with my daughter Makayla. At 20 weeks we found out she had Spina Bifida. She had Myelomeningocele. we were very lucky to be close to a Children's...

1

Surgery

My daughter is 12. She is to have her spinal cord untethered during x-mas break from school. This is actually her 2nd one to untether her cord. The last one was about 3 yrs ago....

8

Help!!!

My husband has a son from another relationship that has spina bifida...anyways my husband just started recently seeing his son again and I am new to his son and to spina...

3

overwhelmed...now hearing loss too

Hi my 2nd son was born with SB. He had an S2 lesion that was closed approx 24 hours after birth. And 2 days late had a shunt placed. We found out at 21 weeks that he had NTD so...