Ali - posted on 01/01/2009 ( 7 moms have responded )
I guess I'll start off by saying hi. My name is Ali and my daughter, Kenidee, was born on September 19th, 2008 with SB. She is L3-S1. She had her back closure surgery 24 hours after birth and vp shunt placement 1 1/2 weeks after she was born.
She is doing wonderful and as of now, knock on wood, we've had no issues. I've had my scares, but I'll probably be like that until she's old enough to tell me if something is wrong.
She goes for her first urology appt. on Monday. She has bowel and bladder incontinence. I hope that all goes good and we don't have to worry about any kidney issues yet.
Ok, I hope to hear about the rest of you and can't wait to hear stories and tell stories. I truly believe that kids born with SB have a special "light" about them. They are such joys. I wouldn't trade Kenidee for a healthy baby in a million years.