My Husband Has Epilepsy... Need Support

Andy - posted on 03/26/2013

Hi, I had epilepsy from 10 yrs. I never told to my wife before marriage suddenly came seizure in front of my wife. She shocked and cried. After that i told to my wife about epilepsy. She is very upset and told me why u not told me before marriage. I had 8 yrs son and he is also suffering with epilepsy. 1st seizure came of my son age 8 months, continue in the same year 4 episode of seizure came. He is taking medicine, Now he is fine and no seizure came last 6 yrs but EEG report showing abnormal. What should i do and know my family life is totally disturbed. My wife planning to give divorce, I am so upset of my life. Please help me out.

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Michelle - posted on 01/14/2013

My brother has had epilepsy his whole life. He's married with two kids. He's never dropped or injured his kids (now 7 and 14). He actually rarely goes to the emergency room unless he's had an injury as a result of the seizure (he's busted open his eye, hurt his legs, bumped his head, and once stopped breathing after hitting his head on the toilet while having one). I would say being home while he's in the shower is probably a good idea since statistically there is a higher risk of seizure in the shower but other then that try not to worry about it. I know it's extremely stressful, but as long as your husband takes his medication and follows doctors orders things will get better. Oh and staying on a schedule and getting enough sleep will help him too. Good luck

Philip - posted on 01/09/2013

I've only had epilepsy in the last two years. I am 52 now and I'm not sure what brought it on. I get a seizure every 2 to 3 months. It all began when I was teaching in Kuwait two years ago. I went for a jog around 9.30 in the evening. If you know anything about Kuwait you will know that the temperatures are in the 30s in at nights. Well I was jogging without any water. I seemed to have lost consciousness and cannot remember how many laps I did.

I returned to my flat exhausted, thirsty and with barely enough strength to do any thing. Before I could even reach the toilet I did a number two on the floor. I'm not even sure I was well enough to look after myself after that and only God knows what happened next but I did not show up for school the next two days. Obviously this was cause for concern so the caretaker somehow managed to get inside and I was taken to the hospital.

I was diagnosed as epileptic after a second seizure. Ever since then I've been epileptic. I put it down to a lack of oxygen in the first place. Would be nice to know what people think about this. I am now on Lamictal- 200mg in the day and 200mg at nights. My nightly dose was increased to from 100mg to 200gm because I had a grand mal seizure on New Year's Day!!!!!!!!!!!

Tabitha - posted on 01/09/2013

I also would like to let you know you are not alone hunny! I have have seizures since i was 12 years old i am now 27. It is hard to deal with sometimes with two children. I know it scares them to see me have one and that is alot on me cause my six year old is always asking mommy do you have your meds? she is a child and i want her to live a normal childhood but she has already seen more than her little friends at school. she may only be six and my other four but both of them have saved me more times tan i can count. they aer my little angels god sent me from upabove;) I also wanted to ask you has your husband had a head injury in the past? if so that could be the reason he had a seizure. If you need someone to talk to i am also here i understand what you guys are going threw hope things get better. best of luck and lots of love from the morgan family

Tabitha - posted on 01/09/2013

I also would like to let you know you are not alone hunny! I have have seizures since i was 12 years old i am now 27. It is hard to deal with sometimes with two children. I know it scares them to see me have one and that is alot on me cause my six year old is always asking mommy do you have your meds? she is a child and i want her to live a normal childhood but she has already seen more than her little friends at school. she may only be six and my other four but both of them have saved me more times tan i can count. they aer my little angels god sent me from upabove;) I also wanted to ask you has your husband had a head injury in the past? if so that could be the reason he had a seizure. If you need someone to talk to i am also here i understand what you guys are going threw hope things get better. best of luck and lots of love from the morgan family

Philip - posted on 01/03/2013

I have been suffering from seizures for the past two years ........they are not frequent but when they come they are grand mal. I feel sorry for my wife who worries about me and also for the children because that puts pressure on them to keep an eye on me.and make sure I'm all right. I don't think I can continue like this and I'm asking God to show me a way out. I understand what you are going through Connie and hope things have improved now.

LeAnne - posted on 06/18/2011

You are definitely not alone!!! I feel the same way! In fact Im only 24, and have grey hair now from constant worrying!

Larissa - posted on 12/27/2009

Thank you Connie.. Thank you so much. I will definitely email you. Thank you thank you thank you

Connie - posted on 12/23/2009

Hi there ... First of all Happy Holidays from IOWA!!! I really feel for you girl! I'm a 41 year old with a 10 yr. old son and a 8 yr. old daughter. My husband and I have been married for 16.5 years this past August. My hubby, too, has had epileptic seizures since the age of 4. We met back in 1989 and were married in 1993. His seizures got really bad with having over 20 a day for awhile. He had the petite mal kind until the doctor dropped is meds from 23 a day to only 4-5. Only finding out that the smaples hegave him were outdated 5 yrs or more at the time. He started having grand mals a few weeks after a change of his meds and almost died because of this! He ended up going to a totally different doctor that saved his life!! Thanks Dr. Betsy Love....she is no longer with us(may you rest in peace).. We had no insurance at the time so the medical bills were piling sky high!! We went to the local courthouse and applied for state help. With his pre-existing condition we did qualify. We went to the University of Iowa Hospitals in Iowa City and the team of doctors(neurologists/neurosurgeons) took my husband, Marty under their wings. Dr. Granner and Dr. Howard saved his life once again. They performed a left lobectomy June 12th 1995 and he has been seizure free since then!! From having to take almost 25 pills a day he is down to only one now... We would of loved to started a family right after getting married at the ages of 25 but with his seizures we decided to wait until he was under-control with this disease.My heart goes out to you and your family. I know exactly how you are feeling. It is a scary situation to be in but with the LORD's help everything will work out for you. If you need to talk to someone i will be here to help out the best that i can. Remember ... the FOOTPRINTS IN THE SAND poem.... let that poem be a crutch for you and you will find security and happiness once again. I know it's not easy with just having a newborn and your husband having seizures...Believe in the LORD and things will start looking up... If there is ANYTHING that i can do for you let me know. You can email me at my email address.... topfuelburns@mchsi.com ANYTIME!!! You can even talk to my husband about all that he went thru to get to where he is now. It was a long journey but we made it thru!!! When you feel the time is right to email us we will include all the contact info so you can get in touch with us. For now.... keep you head up and everything will turn out okay. We wish you lots of luck and Happy Holidays and a Happy New Year 2010.... I don't check facebook/circle of moms very often so PLEASE email me at the above address so i know that i can respond to you ASAP!! Congrats on the new baby!!! Love, Connie, Marty , Jacob and Amy Burns Audubon, Iowa

Christina - posted on 12/20/2009

God never allows more then we can handle so stay strong =) I'll check back with you tomorrow to see if you have found some body to help you

Larissa - posted on 12/20/2009

Thank you SSOO so so much Christina! You don't understand that even though you are not in my situation you are still offering a shoulder for me. I can not explain how gut wrenching this is. My stomach is in knots all day long now and I can barely sleep. I just want to constantly cry but that doesn't help my husband with his stress at all. Ive only cried 4 or 5 times today... better than yesterday. Im just hoping time will heal me. I need time to get past this. You dont know how many times the image of him having a seizure passes through my mind now. It KILLS me every time and I just want it to go away. Now Im doing all of the caretaking of my baby because i am too scared for my husband to hold him for too long, plus im lettin him get plenty of rest. I love being with my son and taking care of him, but i feel a little cheated. not by my husband, but by life itself. my husband has even apologized to me for putting me through this!! Can you believe it?? It is so not even close to being his fault. Ive been trying to find a support group online for people like me but with no luck. thank you for replying to me, you have no idea how much it means to me.

Christina - posted on 12/20/2009

I'm so sorry I can't be of any help -- I read your post and wanted to leave a comment. There is people that can help you and you all will make it through this tough time. I agree that he can't drive or be alone You seem to be doing all the right things even though it sounds hard.

My heart goes out to you and your family-- and I hope someone on here can help you-- if not we are hear to listen so to when you don't want to burden your husband with your worries.

Love Christina