Lisa - posted on 09/05/2010 ( 2 moms have responded )
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my little maeve was born 4/4/07 she lived for just 1 hour. at my 6mth scan doc asked me did i ever hear of spina bifida of course my heart sank for my little girl. after test upon test it was reveiled to us she had a very rare type sorry but i cant spell it!! basically where normal spina bifida occurs on the spine my little girl had it on the base of her neck so her brain never fully developed. she was born by c section @ 30 weeks to give her every chance yet poor angel was so weak nothing could be done. for a long time after i blamed myself which now i know is a very normal reaction. i told myself i had to be strong for my husband & 5 yr old son at the time i think it felt right for me. each yr gets a little easier & on the7/4/09 almost 2 yrs to the day i had another perfectly healthy baby boy so thinks have brightened up for me tg!! still i shall always have her in my heart & as i tell those who ask how i dealt with i say i have my very own personal beautiful angel that i'm very grateful for xxxxxxxx
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