Any Mom with Factor V had to take Lovenox during pregnancy?

Robyn - posted on 01/05/2010

Dear Brooke,
There is not a day that goes by that I don't think of Jayden. The loss of a child is perhaps something individuals don't understand, unless it has happened in their lives. To me it is a matter of my "faith". Did I question the loss of my daughter to God, absolutely. Did I blame myself, my body, or question is there anything I could have done differently, Yes I did, I am human. Which left me in a place emotionally of darkness. And, I have to say that is not where I believe God wanted me to be. I am not preaching by any means, but in my heart I know Jayden is one of Emily's strongest guardian angels, and could I really ask for more than that, no.
You did everything a "mother" could possibly do. Very familiar with the N.I.C.U. and the overwhelming desire to want your child to survive. At the same time, my husband and me had to come to terms with the inevitable, and by no means was that an easy reality we wanted to face. Jayden's spirit was strong and consuming as though she was stronger than we were, and believe she was and still is a interracial part of our lives. We don't choose our paths, we can only react to them. So, realistically it is on how you chose to live. Is it for the child you have now, holding in your arms and love? Or is it to stay in the sadness and loss of Novalee? We can not change what happens to us all, the emptiness of loss, but we can change our future for our children here with us in the now. I can only offer you my support, love, and understanding. Can't take away the pain that I feel or you feel. But, I sure can strive to be the best mother I can possibly be for Emily.

Brooke - posted on 01/04/2010

I have had a stillbirth and a misscarriage, before the Drs found out i had Factor V. I was 4 months pregnant with my 3rd, a baby girl. Novalee. I wasn't put on levonox, but i was put on 20,000ml of heparin a day ( 2 shots a day.) My daughter was born at 34 weeks due to a placenta ebruption from a blood clot. Due to the loss of oxygen and blood flow to her brain she was born with complete brain damage. We spent years in the ICU, finally bringing our baby girl home with a trach, vent, g-tube. Medication you wouldn't believe. SHe had seizures so bad, you couldn't even see them. (Sub-clinical seizures). She was blind and deaf. She lived for 19 months, before God took her.
I had gotten pregnant again and they put me on a pump. I had to take a needle and attach it to a pump that would pump heparin out all day long. I couldn't take it out, unless i was changing the needle. I got my blood checked every other week. And went to a specialist as well as my ob/gyn. I had bruises so bad...(it's been almost a year and i still have bruises on my stomach from the pump.) Needless to say Chaysen was born a healty baby.
I blame myself EVERYDAY for my daughters death. I tried for 19 months to keep her safe from everything. Sterile. Then on June 14, 2009 her heart stopped. There was nothing we could do. All the medication she was on took over.
How do you go without blaming yourself. How do you stop hating the world?

Robyn - posted on 01/04/2010

Dear Tracey,
It is the least I can do for "moms" out there. There is info on the net of course, which I believe scared me more than helped, but to actually speak with or communicate with moms who have lost, which I didn't and should have, is imperative. A "full" blood work pannel to include all clotting d/o is essential to carry a healthy baby. Unfortunatley this blood work isn't usually ordered until 3 miscarriages or an abruption. With all the interventions out there it is possible! Please offer her my support, and insist on all necessary labs be done. IT IS POSSIBLE to carry a very healthy, happy child. First and foremost let her know it is NOT her fault, there wasn't anything she could have done, been there. Knowledge is power, and not to give up on the miracle she can hold dear to her heart. Please feel free to share this information or anything I could possibly provide to help her email: RobynAC73@gmail.com
You are an amazing friend to her, and thank you for your response. I am here should anyone need my help.

Sneaky - posted on 01/03/2010

Hi Robyn, I am really glad you posted this :o) My best friend lost her gorgeous girl after a placental abruption at 36 weeks at the beginning of 2009. Since then she has been told that she has a clotting problem and will need daily injections from 15 weeks on if she gets pregnant again. I am very glad to hear that it is possible to have a healthy happy baby with treatment and I will definately be messaging you if my friend has questions since she is a computer phobic! :o)

Thanks, Tracey