Destiny Gail Fry

Kristy - posted on 02/15/2009 ( 23 moms have responded )

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Born sleeping @ 20wks 3 days gestation due to Anecephaly...

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23 Comments

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Tamara - posted on 09/02/2010

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You have a beautiful baby girl Kristy..How can people be so mean..saying she looks horrible..shes an angel and shes sooo beautiful. My son Kyler passed away two hours after his birth due to Oral-Facial-Digit Syndrome, at least thats what there calling it, even tho the genetic doctors have never seen it before. Kyler was born with 7 toes on each foot and 8 fingers on each hand, he was so special and different, thats what I loved the most. I am very sorry for your loss, I know how it hurts and people say it will get easier and you will go on...but I dont see how anybody can go on after there baby passe's away. Kyler was so very special to me and my husbund, me and my husbund tried for a year to become pregnant and when it happened then we heard the news what was wrong with Kyler, I havent been the same since.

Skylar's - posted on 11/04/2009

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Hi I'm Holly,
I'm so sorry for your loss. At anytime a mom and dad's baby or babies died, it's the worst dark feeling you can ever have. If you like I have a site that I'm inviting people to join and talk or write about their beloved baby. I'm looking to come up with a program with The Share Program that Hospitals would like to have in their hospital. So there can be a support person(someone who has gone through a loss) that could go into a hospital room, and answer any questions, or be there for a shoulder to cry on. And also have a follow up, and have a support group that parents could go to. My web site is http://www.skylarslove.com or you can join here on Facebook. One day the clouds will spread and you'll see the sun again.
Love,
Holly

Kristy - posted on 07/15/2009

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& ty 4 all the kind words!!!

Kristy - posted on 07/15/2009

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Anencephaly is a fatel neural tube defect... it is something i wish no-1 ever had 2 experiance... Sharrisa as Celia (who by the way is a strong & wonderful person i admire 2 the upmost) said plz when u feel comfortable of course show off ur baby be proud of that lil soul... my cousin was the 1 that actually said the pics of Destiny were horrible which was a cheap shot considering she actually held her after Destiny was born...

Sarah - posted on 07/10/2009

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she is so precious a cutie

Tamara - posted on 07/08/2009

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every1 is soo right she's not horrible she's beautiful, dont ever let any body bring u down thats ur angel be proud to show her off coz she is totally gorgeous. deapest sympethy to u my heart n prayers are with u, i hav 2 recently lost a baby though 2 different circumstances he would hav been 3months old on the 11th of this month. feel free to chat anytime, im always online and i will always talk.

Shakeya - posted on 07/06/2009

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sorry for the loss but may i ask what is Anecephaly?????

Jessyca - posted on 05/29/2009

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i am so sorry for your loss! i had my son at 23 weeks but he had passed at 22 weeks

Celia - posted on 05/16/2009

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Sharissa, I think you should show off your pics of your baby! ALL babies are beautiful!!! I personally would love to see pics of your beautiful angel Poppy. I imangine that she was the most precious thing you ever laid eyes on. Feel free to check out my angel Noah. He too had anencephaly and we chose to carry him to term. I had him on Mother's Day and he was simply beautiful. We had 19 wonderful hours with him before he passed and I will treasure those hours forever. Feel free to check out my blog as well: http://noahbenjamin-ourstory.blogspot.co... I hope you decide to share pics of your precious little girl. She will not shock....she will no doubt melt hearts.

Sharissa - posted on 05/16/2009

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your pics r certainly not horrible and i admire your courage in showing them. our daughter Poppy was born at 21weeks due to anencephaly, unlike u we were unable to make the decision on whether to continue with the preg or not as all amniotic fluid had leaked away, for this i am secretly greatful tho, i do not know if i could have made that decision on my own.

we also have photos and although she does not look like a 'normal' baby our poppy is beautiful and even had feature like her big sis.

my partner and i have not shown anybody these photos except our parents in fear of shocking people i guess, but looking at photos like yours make me want to show off my precious angel!

be proud of ur princess,treasure the memories and the photos, take care xoxo

Paula - posted on 02/23/2009

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Hi



never feel like your pictures are horrible...they are not.  pictures of our babies...are our memories and noone has the right to criticize them...its our love and our memories....



I am sorry you had to live this....so hard and the healing is life long.



 



 

Lolly_loulou - posted on 02/22/2009

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im deeply sorry for your loss. she is a little angel

Maja - posted on 02/22/2009

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And I agree with Heather - people are mean.



Only thing I do not understand why do they feel they have to be that way... Is it so hard to give little love and support???

Maja - posted on 02/22/2009

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And I agree with Heather - people are mean.



Only thing I do not understand why do they feel they have to be that way... Is it so hard to give little love and support???

Maja - posted on 02/22/2009

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Picture is absolutely not horrible. It is shocking and painful, but I say this only as the mother who was also crying that my babies were born tiny. Not that this is comparable. You love your child whatever other people think - and you are absolutely right. I pray  that you find peace in your heart and mind and know that she loves you wherever she is now.



And I for one think she is precious, and that the photo was taken lovingly

Kari - posted on 02/20/2009

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Soooo precious.......

Heather - posted on 02/19/2009

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I agree!  I hope you socked whoever told you the pictures were horrible!  If your baby would have lived would those people have told you she was ugly!?  Seriously!  People are idiots!  My son was born sleeping on Jan 24th.  He was 4 months early.  He had Downs.  He was red also (which I didn't know happened) and I've been affraid to show his pictures because I don't want anyone to say anything mean.  Those are my precious memories and I don't want idiots to taint them.  Good for you showing off your daughter!!  I hope I find that strength too!



~Heather



Read about my Logan here: http://mystolenlight.blogspot.com/



 

Niki - posted on 02/19/2009

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Your pics are NOT horrible, she is an angel and is beautiful. Hold them close and never forget how much you loved her and how much she loved you. Keep strong.

Kristy - posted on 02/17/2009

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when i was 1st told Destiny had this fatel deformative i didn't understand the more i learnt the more crushed i became alot of ppl have their opinions on it but that is all they r "opinions"  i know from my experience this was the worst time of my life with not much help in the world... & still to this day haven't found much about Anecephaly... i've been told my baby girls pics r horrible ect... that's what she looked like & the only pics we have...  Are you going to continue your pregnancy right through? it's a lose lose situation i opted 4 the termination 'cause emotionaly i couldn't handle going right through & knowing the severity of the deformative she proberbly wouldn't even make it 2 full term... Celia if u ever need 2 talk i may not b much help but i'm here 2 listen 'cause i know that's all i eva wanted just ppl 2 listen 2 me...

Celia - posted on 02/17/2009

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I am so very sorry to hear about your baby Destiny. I too am carrying a little boy, Noah, who has been diagnosed with anencephaly. I completely understand your pain and how you are feeling.

Kristy - posted on 02/16/2009

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Thank you Lori,



& as does my heart go out 2 u & ur family...

Kristy - posted on 02/16/2009

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Thank you Lori,



& as does my heart go out 2 u & ur family...

Lori - posted on 02/16/2009

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My heart goes out to you but as time goes on it does get a little easier. My son Michael was born sleeping on sept 12 2002 and I still miss him. my thoughts and prayers go out to you and your family.