have you lost a child to anencephaly

Amanda - posted on 10/12/2010 ( 4 moms have responded )




have you lost a child to anencephaly

yes 31% (5 votes)

no 69% (11 votes)

I know someone close 0% (0 votes)

16 Total Votes


Kayla - posted on 10/14/2010




anencephaly is when part of your baby's skull doesnt fully develop in the way it should. He/she is still alive and kicking in the womb in fact everything usually seems fine until the ultrasound. There are many different causes, passed down through the family, some antibiotics can cause it, lack of folic acid (seems to be the what they consider the biggest cause) and other things. Really no one knows exactly what causes this to happen. While your baby is inside you he or she is as safe as any normal healthy baby. However there is no guarantee that during nor after birth how long they will survive. Dr say they can not feel anything or see or hear...but mothers who have had children who have survived any amount of time and who have lived it and know what they are talking about will tell you a very different story than that of the doctors! Praise the Lord! I had a little girl last year who took 2 breathes here in the world before she passed. I was given the choice at 20 weeks to abort or continue with the pregnancy. I do not believe abortion is right no matter what and besides this little girl was kicking and had hiccups! how could I? I love her. Anyways that's the best way I can describe Anencephaly I hope it helped Sophie.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS


View replies by

Rosina - posted on 10/21/2010




It is a neural tube defect like spina bifida but instead of there being a hole in the spinal column the hole is at the top of the neural tube which becomes the skull. My 2nd baby was diagnosed with exencephaly at 12 weeks. Basically it is the early stages of anencephaly when the brain is still present but the skull bone has not formed. As the pregancy prgresses the amniotic fluid eats away at the brain tissue and usually at a 20 week ultrasound there is not much brain tissue left and anencephaly is the diagnosis.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms