unilateral cleft lip and complete cleft palate

Charmaine - posted on 01/31/2009 ( 6 moms have responded )

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Hi to all members

Im a mum to 4 kids the latest Myleigh 7 months was born with a unilateral cleft lip and complete cleft palate. Both have been repaired. I hope to meet new mums and chat real soon

xx Charmaine xx

6 Comments

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Reagan - posted on 04/08/2009

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How was the whole surgery thing? My little girl is 7 months and her surgery will be at 18 months. Do you have any wisdom for what's to come?

Lisa - posted on 02/12/2009

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you should probably ask you're health visitor about it. if you send me a facebook friend request you can see my before and after pics if you're interested. Leah is 14 months old now and most people don't notice there's even a scar there. lots of love x

Lisa - posted on 02/12/2009

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using something like aqueous cream because it's close to the mouth, gently massage in a tiny amount with 1 finger using little circular motions. if you're going to do it you need to carry on 3-4 times a day for a year - 18 months. it's supposed to really reduce any tightness and bunching of her scar and improve it's appearance as she gets older

Lisa - posted on 02/12/2009

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done it again. keep trying to post a reply and deleting it by accident! going to do it in stages! we were told to wait til all stitches out and all tenderness gone. don't quote me but i think about 10 weeks post op

Charmaine - posted on 02/10/2009

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Hi Lisa



no i didnt get told that at all. i think its enough already with having to clean her nose stent and change the tape everyday.



we do have bio oil which is for scars.

Lisa - posted on 02/10/2009

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hi. i have two daughters aged 3 years and 14 mths. my youngest was born with a unilateral cleft lip and complete cleft palate also b oth repaired. she'll not need any more surgery til she's about 9 or 10. have you been advised to massage Myleighs scar? I'm finding really hard as leah hates being messed with!!

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