Kelly - posted on 01/26/2010 ( 4 moms have responded )
Wow I wish I had found this group or a similar one in 1998 when my daughter was born. Her hemangioma looked like a bruise at first then it got bigger and bigger until it was finally diagnosed as a "compound hemangioma". It is on her left upper chest and at its worst had her nipple displaced clear over under her armpit. It did ulcerate and talk about bleeding. Wow it would bleed so much and so fast! I used a nursing pad to cover it and had to change the dressing 2 time a day for about 3 months until it healed. We went through the dressing changes on 2 different occasions and both times it was horrible. The doctors said because of it is so close to the nipple, there was nothing we could do. At that time and in my area the only option was laser surgery. I was told that removing the hemangioma could result in removing part of the breast bud. The problem would then be that the breast would not develop at all. She is now 11 years old. The hemangioma is still there, but it has gotten smaller and her nipple is in the normal place. She really hates it because it shows in swimsuits and tank tops. A bra will not cover it up. She has asked several times why we can't just "cut it off". I have never heard of using blood pressure medicine to treat hemangiomas. Dose it work? It has been a very long time since I have done any research on it at all. 11 years ago, there was not a lot out there so I just gave up. Is a dermatologist the way to go or should I still consider plastic surgeons? I just tell her to be thankful that it can be covered by a tee shirt. The raised area is mostly gone and just the dark red area remains. It is getting grey in the middle and it has not ulcerated since she was about a year old. The doctors assured me it would be completly gone by the time she was 5 but I see how that is going. Any suggestions or ideas would help a lot.