Tosha - posted on 01/17/2010 ( 1 mom has responded )
My son was diagnosed with sickle cell disease when he was only 2 weeks old and he is 41/2 months old now. Even though he has the mildest form, which is called "Sickle Beta Plus Thalessemia" he is still pretty much at risk for the samethings as one with type SS or SC. I've done a lot of research and have talked to a lot of doctor's about his condition and everyone say's something slightly different. Im worried about the pain crisis, low hemoglobin, the enlargement of his spleen, sepsis, pnemonia and other debilitation condition's and illnesses I can't protect him from. I've never felt so helpless in my life, especially since I didn't know I carried a Thalesssemia trait. I have a 6 year old with the same father and he doesn't have anything at all. The doctor said it's a 1 in 4 chance to pass it and that's just how the dice are rolled! Very reasuring right?