Clonidine

Cynthia - posted on 12/17/2010 ( 15 moms have responded )

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We decided to take the medication plunge. It only took Micah's dr one month to get the prescription! In her defense, I didn't call them to remind them. Anyway, he's been on Clonidine now for 2 days, and I'm already seeing a HUGE difference! He has no tics today, and he's more respectful in his attitude and tone. He says he's a little dizzy in the car, but I am hoping that will even out in a few days, especially considering it is a blood pressure medication. I really expected it to affect him more. I am so excited to find this! He's on a VERY low dose, only .05 mg once a day. Hopefully it will continue working, for as long as we need it to!

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William - posted on 12/25/2013

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I am 31 years old, and my tics are comming back bad. They just came back a little over a year ago. I think?
I also have problems with fainting, I don't know if anyone else does?

I am on clonodine as well. It goes great with Dexadrane. But the docs took the Dex away.

Heather - posted on 08/20/2013

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Oh man ..we are very new to this and reading all there is here.....I am freaking out ! our gave my son klonapin and after 3 doses he was hallucinating and seemed frighteningly manic! wrong stuff ....so now I am hesitant to try anything but like I said we are very new to this . My son had zero issues then all of a sudden we have Tics. He is 9 now and they came out of nowhere.....I am still sooooo confused as to what is going on so I began here...online looking for answer ! ***SIGH****

Arji - posted on 10/30/2012

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My son Blake is on clonidine for 2 weeks now and it works really good with his tic. However he is always hungry and won't stop eating. I wonder if it's part of side effect from the medication or just part of growing. He is 10.

Elizabeth - posted on 03/04/2012

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My oldest was put on Clonidine when she was 5 yrs old to help her sleep. She was on 0.1 mg at night to start after about 6 months of it working it just stoped she would fall asleep but could not stay asleep. Her doc moved her up to 0.2 and we tried that for 2 months with some change....we ended up having to change her to Trazadone at .25 mg and she has been on that for 2 yrs now. My just turned 6yr old has now been on it for about a year now and has moved up to 0.2mg at night but recieves 3mg of Mylatonin a hour befor the Clonidine she also goes for a EKG ever 2 months to make sure all is well.

Missy - posted on 02/29/2012

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My son's name is Micah too...he has tourettes and he's 10. We have thought about clonidine. Glad to hear it works so well, and maybe we will try it.

Dana - posted on 05/16/2011

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Stephanie, my son is on the Clonidine also because of problems with sleeping. It has helped greatly in that area. He was also taking fish oil for the longest time and I did notice a reduction in tics, but since starting Strattera last year he won't take the fish oil. He says it tastes bad now, I guess maybe the Strattera has changed his taste buds a bit.

Stephanie - posted on 05/05/2011

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My daughter was just taken off of tenex and put on clonodine. Her doctor's reason was because she has night tics and night terrors that cause us to find her in different locations all over the house at night. Her dr says that clonodine will help her the same exact way that tenex did, but it will help her at night more. She takes 0.1 mg in the morning and the same amount at night, in addition to prozac.... I am interested in what you are saying about the fish oil. How does this help??

Cynthia - posted on 04/07/2011

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Dana, he was on the clonidine for around 2 months. It made him REALLY dizzy and carsick, so we decided to switch. It made my typically proprioceptive sensory seeking child an avoider! It was so bad, he literally felt the car was tipping over when I went around turns slowly. We decided to give Tenex a try, since I have heard so many people have good results. It took at least 2 weeks before I noticed a difference, but now that he's been on it for almost 2 months I see a MAJOR difference. It helps him with his impulsivity, and hyperactivity. It also levels out his tics, so even though he's still ticcing about as much as he was, there aren't as many highs and lows or "bursts." He's even ticcing in public now, which means fewer meltdowns and bursts when we get home. A good thing, in my opinion. Thanks for asking!

I will more than likely look into a mental health therapist for him eventually, but we are getting enough respite with the Tenex that it isn't as much of an issue anymore. So, we will stick with his neuro for meds, and his ped for everything else.

Dana - posted on 04/07/2011

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Cynthia, I was just wondering how your son made out on the Clonidine. My son just started it a few days ago. We also tried the psychiatrist route...huge mistake for us! I now stick with his neurologist and developmental pediatrician.

Jenna - posted on 01/26/2011

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We use Tenex (anti-hypertensive) and like you we saw a huge difference. We suppliment with huge doses of fish oil. Omega 3, 6 & 9. Must be organic and or pharmaceutical. Fish oil has an anti-imflammatory effect. My 65 lb son take a double dose twice daily. The drug store brand upsets his tummy so we stick with the higher grade. The Tenex alone does not get rid of all his tics. The fish oil is the key to keeping him pretty much tic free.

Cynthia - posted on 01/26/2011

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Thank you, Hazel. I know to watch out for the blood pressure stuff, and have told him the same. So far, after about a month, the Clonidine seems to help only with his impulsivity, and brings his hyperactivity down just a notch. His lack of attention and tics are still there full force! We are meeting with a psychiatrist next week to discuss options.

Hazel - posted on 01/26/2011

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Be careful my daughter was on this dose on changing her medication she was hospitalised for high blood pressure whilst coming off clonodine.

Cynthia - posted on 12/18/2010

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Nevermind... I take everything back. I guess yesterday morning was like a preview, of things not yet to come. At around 3:00, the tics, impulsivity, etc all came back full force. And today, is the worst day we've ever had as far as all those things are considered. :-(

One question - I was reading on another site for TS that many peoples' tics are made worse when the weather gets cold. I was wondering if you noticed this with your children?

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