Has anyone heard of Intuniv?

Dana - posted on 04/29/2010 ( 77 moms have responded )

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My son was just put on the medication called Intuniv. Just wondering if anyone else has tried it and what your opinion is. Thanks.

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Leslie - posted on 05/18/2010

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Good Luck, Dana! I don't think there is any one medication that is perfect for everyone, but Intuniv seems to be working for us on several different levels. For one, recent studies have shown that Strattera may have the same affect on appetite that stimulant meds have...My daughter has gained 15 pounds since we took her off Strattera and put her on Intuniv. She has pretty severe sensory issues and getting her to eat anything has always been a problem...but she is hungry now, and she is even trying some new foods. Her grades went up...ALL of her grades went up. She was beaming when she gave me her report card. That was a first.
A quick note to Karen...You know the exercise balls that are used for yoga and Pilates? My daughter uses one instead of a chair when she is doing homework, watching t.v. or studying and when she has a really hard day at school, she has a room she can go to and work sitting on a ball. I don't know exactly how it works, but it helps her control her impulsiveness by giving her a physical outlet she can do while she is trying to concentrate.

Rebecca - posted on 03/27/2012

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My 8yr old autistic son is newly on Intuniv. He takes an antiviral, paxcil, and now this Intuniv. I am not sure how I feel about the Intuniv. Since starting a few weeks ago he makes strange faces, has more aggression toward others and himself, and started cursing when angry. These are all new behaviors and the only thing I can point at is the Intuniv. Due to my boys autism he does get a little frustrated when he can't express himself right away in a given situation but has never cursed or hit himself in a serious manner until now. He was doing quite well on the paxil and the doctor wanted to try this intuniv to help make him more task orientated, agreeable, etc in school. He has had good days and bad days but it seems that this medication has the tendency to make him more aggressive and angry. I have put a call into his doctor this morning to try to find a solution.... my solution is to take him off this medication but I don't want to do anything that may hinder his progress. Anyone with the same issues?

Michele - posted on 12/17/2011

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My son is going to be 10 and he is 74 lbs. His tics are better too. He takes 4 mg intuniv and 40 mg Strattera.

Michele - posted on 11/07/2011

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Yep three here to if not more 12 year old not yet diagnosed. For the tiredness. We split the pill in half. 2 mg 8 am and 2 mg 4 pm. He needed a lot of hydration with water initially too. He no longer falls asleep in class.

Leslie - posted on 05/18/2011

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I agree completely with the need for a 3 and a half!!! 4 makes my daughter sleep all day, but 3 isn't quite enough.

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Lisa - posted on 08/11/2013

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It worked for my son for a little while, and then my son started having fits of rage, screaming and even becoming violent. Also, another doctor told me that the problem with this med is it will continue to stop working, so you have to keep increasing it.

Dana - posted on 04/12/2012

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The Intuniv didn't work for my son. He's now on Strattera 60mg once a day and it works well for him.

Adrienne - posted on 02/04/2012

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Has anybody child's blood pressure get low due to intuniv? If so, does it get better.?

Adrienne - posted on 02/04/2012

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Has anybody child's blood pressure get low due to intuniv? If so, does it get better.?

Laura - posted on 01/31/2012

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My 5 year old is in it just started it like 3 weeks ago but don't quit know if its working! he has trouble sleeping so lately he has been a walking zambie! he was on tenex to start!

Stasa - posted on 01/27/2012

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Hi Laura, How old is your son? Intuniv *should not* (in theory) make a child depressed as it is a blood pressure medication.. Is he on other meds for ADHD? It can make them tired and lower blood pressure - you should have his blood pressure checked. How is he at school? Is he sleepy? I have read some parents change up when they give the medication to counter this effect.

Laura - posted on 01/27/2012

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my son was just put on that 2 weeks ago and we are having a hard time deciding if it working it seems to be making him depressed in a way and behaviors seem to be getting worse.

Michele - posted on 01/21/2012

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Amy ask for Strattera with the intuniv and get him off the concert a which can bring out tics. The Strattera has helped soooo much with ADHD and dysgraphia.

Amy - posted on 01/20/2012

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Hello,

My son is 7 and just started Intuniv to see if his tic would subside. We took him off Concerta he has been on a year now and just this past December he started eye blinking so he DR took him off and after 7 days the tic (eye blinking) stopped and then the day we started him back on Concerta he started back up. DR thinking that Intuniv will help the tics so I'm praying it does ....I enjoy reading all the replies. My son has ADHD and dysgraphia he gets great grades but he hates having the tic so I pray we find a solution for his sake and ours.

Sarah - posted on 01/11/2012

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Yes. My sone has Aspergers and ADHD. We did Intuniv for about Two months. It worked pertty good, but then it kept him so in outerspace. He would sit in stare at the wall for hours. He would fall asleep alot. I think it sorta loweres their blood pressure. After awhile I wasnt comfortable with it cause his angry side just came back. So took him off. But your child may have good results. I felt personaly it was a safer drug.

Julie - posted on 01/07/2012

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yes my son has been on that med for about 6 months. he is very sleepy alot. even at school and he eats constantly but he is also on abilify.

Stasa - posted on 01/03/2012

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Hi Deb, That's the thing I find teachers and parents of non-ADHD kids not understanding...Medications are such a trial and error and there is no one-fits-all solution. Quite the opposite actually. My kid does ok on a mix of Focalin and Focalin XR with Intuniv. But I have several friends whose kids did terribly on Focalin, especially the XR. It is frustrating. And I do feel like they build up tolerances as well. I am really surprised to hear about Intuniv making kids irritable or angered easily. I did not read that on their homepage...but of course they are not thinking of how the blood pressure medication for adults will affect an ADHD child since ADHD is the secondary use...

Deb - posted on 01/03/2012

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My son (ADD/Asbergers) was on Intuniv for almost a year. He was never able to progress beyond 1mg because it made him very irritable and more easily angered. I saw a little improvement with his ability to stay on task. He is a bed wetter and while on the Intuniv the problem was much worse and my son would wake up drenched. We limited beverages in the evening but nothing worked, we finally took him off Intuniv. We tried Concerta but it made him more hyperactive and made his tics worse. We tried Strattera which helped him focus better but it gave him insomnia. He is currently off all meds and the Dr wants to try Risperdal. I am reluctant due to the side effects.
I'm going to try supplements and see if that helps. Prior to meds we tried the Feingold diet with no success. I never thought it would be so diffiult to find effective treatment.

Gail - posted on 12/30/2011

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Stasa....thanks so much for your encouraging words. And no, I would never let Alyssa now I was sad or upset. They said she definitely did not have an auditory processing d/o, but after being on the Intuniv for some time, they wanted to check for possible other d/o's. At one point when she was around 3......I felt like she was "being driven by a motor", but that subsided. She is, however, more "busy" than my older daughter, but not hyperactive. I guess the term figity is better describing her when she is trying to be still. She is easily distracted. I just had a meltdown yesterday and saw my bright, happy, outgoing, funny little girl be a different person and it broke my heart. Last night she said her legs were achey, so I held her and rubbed them until she fell asleep. Another side effect I guess. Last night was just her 3rd dose......so I will definitely give it some time and see how she does. Thanks again!

Stasa - posted on 12/29/2011

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Hi Gail,
Just out of curiosity, did the evaluation rule out auditory and/or language processing disorders? That said, having attention/focus disorder without hyperactivity or being impusive is common - and even moreso with girls. It is the boys who tend to be "as if driven by a motor" or can't still. My son is a rule follower, no hyperactivity, but is very fidgety in school - hard to focus. Once we put him on Focalin halfway through K, he began to remember all he was learning in school. It was like a miracle. But as he grows, figuring out what works best/has least side effects etc. is always a challenge. I have not heard (in my small circle) of anyone being "just" on Intuniv. My son's pediatrician (Children's Hospital, specializes in ADHD) said Intuniv was used in conjunction with stimulants. Maybe you can ask your doctor. I am sure you know this, but make sure you don't show your daughter you are sad or worried. My son responds really well to encouragement and challenges (at least right now!) We also got him a tutor and the one-on-one help is so much better for a kid with focus issues! Let me know if I can help...I know how you feel. When you start medicine for the first time it is always scary and you worry...

Gail - posted on 12/29/2011

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New to this. My 5-1/2 yr old daughter was just diagnosed with severed ADHD.......but really just the ADD part. Not sure why this has now be classified together. She is quite figity, but nothing extreme. We were made aware of the problem by her kindergarten teacher during our 1st parent/teacher conference. She felt my daughter was not where she should be academically, which we felt we had noticed as well. We had her evaluated at a Psychological Developmental Center and they said she was ADHD and recommened Intuniv to help her memory. I cried most of the appointment. She took her 2nd dose of this med last night (1 mg) and already has had 3 or 4 episodes of crying out today and is now taking a nap, which she never does. I have cried myself for the last hour. She is the happiest, most outgoing, great little girl ever......and I can't believe I am taking that away from her so that she can learn. I just read pages of this blog and can NOT believe what I am reading. She is not hyper, impulsive or disobedient. She just simply can NOT stay focused long and remember. She is at the top of her class in social and verbal skills and NO ONE would ever know she had any type of neuro disorder. So I sit here....crying.......wondering.......have I done the right thing for her? I don't want to see her develp all of these issues associated w/ Intuniv, or become a different child. She does well in school, she listens, doesn't blurt out.........just a little more talkative than others.........she just can't remember. WHAT DO I DO????? Oh Lord God help me make the right decision for her.......PLEASE GOD.

Stasa - posted on 12/21/2011

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I am feeling the same way Stephanie. I know it takes trial and error to get a medication or mix of medications to work, and that what works for one child may be a total fail for another... But even knowing this, I am creeped out by changing and mixing etc. How old is your son and what is his weight? If you decide to do 4mg Intuniv, you can buy blood pressure cuffs from Walmart or amazon.com for pretty cheap or ask the school nurse to do it once or twice a week. My son is 10 and has wickedly skinny arms - he needs a pediatric cuff. If the BP cuff is not the correct size, the reading will be off. If the Focalin (10mg) and Intuniv (he is going up to 2mg) do not work, we may try Vyvanse or Straterra. I cannot raise the Focalin dosage any more because he gets ticks (obsessing on his fingers/nails). The intuniv was supposed to help with this - maybe at 2mg.

Stephanie - posted on 12/21/2011

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Stasa he is on Zoloft also. I really feel like the doctor is jsut throwing anything into the mix. I'm starting to really worry! 4mg of intuniv is really high isn't it??

Stasa - posted on 12/21/2011

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Stephanie - is he on other medicines? Intuniv is mainly used in ADHD as a complimentary medication to a stimulant - so just checking. You don't say your son's age ot body weight, but at 4mg, I would monitor his blood pressure while he is on it.

Stephanie - posted on 12/21/2011

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My son is on Intuniv also. I have not seen any good come out of it! the doctor just increase his dose again to 4 mg. I'm starting to wonder if it is the correct medication. Let me know how it works for your son!

Michele - posted on 12/21/2011

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April, what else does he take? My son has aspergers plus tics and OCD anxiety. He is on intuniv, risperdal, Strattera, and Prozac. He is doing well. It takes awhile to get the right amount and meds.

April - posted on 12/21/2011

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my son is on intuniv i think it is working for him but he is on more then just that one

Cheyenne - posted on 12/19/2011

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yes my son is on it for autisim it helps with his emotional outbursts.. and when he has his melt downs

Michele - posted on 12/17/2011

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I love Strattera plus intuniv. He is so much better focused and acting. Sometime gets a bit tired at school if sits too long but if they give him breaks he does well.

Stasa - posted on 12/14/2011

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He has been on it 3 weeks now. Just 1mg. His morning teacher says she sees a difference but his teacher in the PM said he has seemed "spacey" - could have nothing to do with the meds - but she has not noticed a real difference. If I up him to 2mg, I am going to invest in a pediatric blood pressure cuff - just so a can check his BP. My son is on 5mg Focalin, 5mg Focalin xr plus the Intuniv 1mg. He is @62lbs.

Ashley - posted on 12/14/2011

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How is this med working for your son if he is still on it?My son just started it last night.

Michele - posted on 11/28/2011

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We recently added Strattera with the intuniv and my son takes risperdal and Prozac. He is doing so much better with focus and impulse on Strattera. He is up to 40 mg Strattera. He takes 4 mg intuniv and it works great. If he. Gets tired they get him up and do exercise and drinks. Finally the rage is better too. He has a pointing tic but it isn't that big of a deal!

Stasa - posted on 11/28/2011

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I am new to the group and very interested in hearing what people say. My 10yo son has been on Focalin - a mix of XR and fast acting for @3years. His dose is low (5mg of each) but he has small ticks - implusively playing with or looking at his nails when he is trying to focus, and he was unable to pay attention in school on this dose. Rather than increase it and make the ticks more intense, we decided to add Intuniv. We are a week in at 1mg/day and see no difference. I am worried about increasing the dose. He is 60lbs.

Janet - posted on 11/08/2011

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Treva...Intuniv is a time release and the doctors prefer that they do not get split in half because they do not know how much the child will be getting with the time release split like that. Dana - Thanks and I pray your sons rage attacks will diminish. It is very nice to hear he is doing well in other aspects though and hope it continues to go well. I have a friend who has two sons who have tourettes as well and they can;t find any kind of medicine that works...they are finally starting injections of botox in the temples...I will keep you all posted if she says it helps. Before Intuniv, my son tried Clonidine but it made him way too tired, so we took him off it.

Dana - posted on 11/08/2011

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Janet-I'm glad the Intuniv is working for your son! It can be so frustrating trying one medicine after another to find the right combination. I know it took us probably a couple years! Matthew has been on Strattera for ADHD and Clonidine for the TS/anxiety/mood swings. He also takes Melatonin at night. This seems to be the right combination for him...finally. He does well in school for his learning level (he's in special ed because he has cognitive delays borderline/below average iq), he participates more in class, and the best part is his anger outbursts have decreased alot. I wish the rage attacks would go away completely...if I could have any wish come true, it would be that!

Michele - posted on 11/08/2011

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We see a psychiatrist and she does a lot of research and she said split it. Don't give up too soon on titrated amount. U have to give it time. Add water and just get them up and exercise. After two weeks he was fine with upped dose.

Anna - posted on 11/08/2011

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my son started it a couple of weeks ago. 1 mg for a week seemed to work wonderfully got up to tow mg the second week and he was so sleepy he couldn t do anything. we are back down to one mg. hoping it works well again.

Treva - posted on 11/08/2011

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Michele...you split your child's pill in half?? My doctor & pharmacist told me not too. I never understood why you couldn't break it in half & space it out throughout the day. Very interesting..I need to do more research

Treva - posted on 11/07/2011

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Intuniv is awesome!!! My 6 yr old daughter was put on Intuniv in August 2010 and we've gradually increased the dosage to 3mg. She's been on 3mg for several months now. Since school started she's been falling asleep in class. We finally had to switch her meds to night time where she wasn't falling asleep in class. Other than her falling asleep in class, Intuniv has been wonderful. My oldest daughter was on Strattera but as of today the doctor changed it to Vyvanse. We'll see how that works. My youngest has ADHD, my oldest has ADD & my husband has adult ADD/ADHD. Let's just say it takes a lot of patience to handle 3 people all under the same roof with ADD/ADHD. Hope Intuniv continues to work for your son and your family!

Janet - posted on 11/03/2011

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Hi Dana!

I have not read on to see how your son is doing on Intuniv yet, but I wanted to share my experience. My son Aaron started having tics at age two, they switched around, first it was a throat clearing, then eye blinking then hand and wrist twitching, then bouncing whenever he stood, by the time he was 9 it was all of the above with a head bounce added to it. He suffered from terrible headaches from the constant head bouncing. Grades dropped to D's and F's.

Last summer, while swimming, he started verbal tics that came out in a really loud laugh and then because of that, he could not swim under water because the tics were forcing him to laugh under water and so he came to me, and said, he wish that he could just sleep and never wake up because that's the only time he has relief. I immediately took him to a neuro and they put him on Intuniv. We had to find the right balance, 1mg was not enough, 2 mg was too strong, all he wanted to do was sleep, but now he takes 1 mg at night and one in the morning so they are not only time released but also spread out and after 3 months...he was a normal healthy child with A's and B's...yeah!! On rare occassions he has them, but very minimal and I know we are very lucky. I do not know how long it will last but there have been no side effects, except when the dose was too high, like I said all he wanted to do was sleep and he complained of not being able to breath. I am so blessed to have found that doctor who gave it to him and to have found a good balance for him. It is also really expensive and our insurance does not cover it, but we found a program through shirecares.com that assists us, although I would pay every last penny for Intuniv. I hope your son is doing well, I am now going to read through all the replys to see if you have posted anything new. Best wishes, Janet~

Melissa - posted on 08/31/2011

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Thanks Michelle. When I first started this journey I was told sensory integration disorder, ADHD, ODD.....then came the tics which came with anxiety. I have suspected Aspergers, but have been told he's far too vocal and social. I guess I just have accepted the fact that he's "Dusty" and no matter the diagnosis and whether he really has all these co morbid conditions going on all at once, we just have to do what we can to help him. I'm lucky, he's in all advanced classes, plays instruments and the most important thing ~ he's happy. There are just times I wish I could do more, but I think he's doing Ok w/ the part script part holistic approach, behavior mod and LOTS of ways to blow off steam physically so he can focus when he needs to. Glad to hear of your good results, gives me something to think about if things ever worsen....it's kind of like being a see saw w/ my boy, BIG UPS and BIG DOWNS but we never fall off :)

Michele - posted on 08/29/2011

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The intuniv works on tics and some with adhd, the risperdal works on behavior moods and anger and attention, the prozac works on anxiety and compulsions. Together they really work together well. My son has tourettes, adhd and aspergers though with ocd.

Melissa - posted on 08/29/2011

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Ya know Prozac was suggested in conjunction with the intuniv, but I don't recall why....it's been awhile. My son's father took prozac with really bad results and so we crossed it off the list, but I'd be interested to know what positive changes were made by incorporating this into the mix. I'm more holistic and shy away from drugs and more to a an organic diet low on gluten, and dairy products and use probiotics, fish oil and other supplements instead...but I am curious if my child might benefit from prozac.

Michele - posted on 08/29/2011

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We have been using intuniv for about a year. We have had to adjust the doses. Currently we are giving 2 mg in the morning and 2 mg in the afternoon. He also takes risperdal and Prozac. His tics are better, impulse is still problematic and still has anxiety. Sleep is no issue for him.

Melissa - posted on 08/29/2011

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Hi all, I'm new here but would lke to echo the intuniv at night along w/ Melatonin = sleeping more easily at night. My son has also had SHARP decrease in tics since beginning the meds about 8 months ago, and after trying countless other medications for which I could accept the possible side effects. Each child is SO different, but we had a horrible, horrible experience with Stattera that I would like to share in case it can help another parent/child/family. My son began having audio hallucinations, intense anxiety and insomnia and a host of other very negatives symptoms. I called his doc and insisted it was the medication and asked how to wean off. She didn't believe it until I went to her office and showed her an article printed just three months prior in England that said the medication should not be used on children or adolecents b/c in rare cases it can cause them to mimic the signs of bipolar disorder. I took him off myself, got a script of intuniv from his neuro instead of the shrink and he has never been better. His tics have kicked up a bit in the last few weeks, but he is going through puberty and that is to be expected from what I've read. Good luck to all of you and your babies this school year :)

Kimberly - posted on 06/23/2011

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My son is 6yrs old and has been on Intuniv for 11 months for his ADHD. He started with 1mg and he is now 3mg. He takes it every night at 7pm. We have not seen any side effects from the Intuniv. He has trouble falling alseep at night but that is from the ADHD so the doctors have told us to use Melatonin time release. We are VERY happy with Intuniv...

Michele - posted on 05/19/2011

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I know the Dr said to play with it. I have found if I give it at bedtime he wets the bed. Know I am giving it at 4pm. That seems to wrk best. She said to hydrate alot. He is not as tired anymore at school. Maybe he is finally adjusting to it. I have been giving 3 mg intuniv at 6 pm and 1 mg tenex at 8 am. I will try the 4mg intuniv at 4 pm soon.

Michele - posted on 05/16/2011

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Hi Beth. I am glad you have finally gotten some answers. It is a long confusing process. I still struggle with the Aspergers diagnosis being correct since my son is outgoing and talkative and very high verbal. He defiantely is ADHD and has tics and ODD. So good luck with the med. We had to go through many meds to get one that fit him. Beware he may be sleepy at first on it. Whenever we upp his intuniv he gets this symptom again. Right now we are on 4 mg and he has been bed wetting. He also falls asleep at school but not at home. I struggle with the fact he needs 3 and a half and it doesn't come in that mg.

Beth - posted on 05/16/2011

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I am new to ALL of this. My son was diagnosed a few months ago with ODD but I knew that there was more going on than that. After working with a behavior therapist weekly and getting testing through special school district we now also have a diagnosis of autism. We saw a psychiatrist in the middle of all this diagnosing who prescribed Intuniv which my 7yr old son started taking this weekend (after all the testing was done). I found this website and this post while doing some more research on the medication. I am still coming to grips with everything that has happened in the last few months. I have known since he was 3 that sooner or later we would have this diagnosis but boy did I pray to be wrong. I don't mean anything bad by that - I hope you see where I am coming from with that statement..........I am just glad to know that there is some where to go for support right now.........I feel very lost and alone.

Michele - posted on 03/27/2011

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that is unusual cause intuniv is tenex extended release and it is used for tics because it lowers blood pressure. What are you using now?

Tricia - posted on 03/27/2011

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My son was on intuiv for a couple of months. It made him anxious and it made his tics worse.

Annette - posted on 02/15/2011

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My son has pdd-nos/autism and had metadate 10 mg but I didn't think it worked so well We went up to 20mg but he got super hyper

Michele - posted on 02/15/2011

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We have used all of the above meds. Strattera is used off label for ADHD and really helped my son but he got really bad diarrhea from it. The tenex worked good for his tics and worked some on his attention. He took it three times a day. Then we started intuniv which is one time a day. He takes 3 mg in the afternoon. We tried 4 mg but he couldn't stay awake. He also takes prozac in the am and risperdal 4 mg a day. 1.5 mg two times and 1 mg at bed. I wish he could be on stimulants because I don't think intuniv works as well on the ADHD as a stimulant. However he gets very angry on stimulants and anxious. We have tried adderall xr, concerta, vyvanse, strattera and none of them worked for him. He still has bad ADHD on the intuniv but it is better then none and his tics are better. BTW Intuniv is much more expensive then tenex.

Annette - posted on 02/15/2011

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Have any of you heard of stratera? I found this write up on pediiatricsabout.com
Intuniv is a long acting form of Tenex (guanfacine). Although Tenex is primarily used to treat high blood pressure, it is already used off-label to treat children with ADHD who also have tics, sleep problems, and/or aggression.
Intuviv is a pill, but unlike some other ADHD medications, it can not be crushed, chewed or broken and must be swallowed whole.
Like Strattera, another non-stimulant for ADHD, Intuniv is not a controlled substance, which can make getting refills easier for parents.

I have heard of Strattera before as my cousins children were on it. They like it but not sure if its the same as it's said on this piece.

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