Bridget - posted on 04/20/2009 ( 5 moms have responded )
Hi I just recently found this group. I am a full time sahm who home schools. I have 3 children Nicholas 9, Addison and Ayden are 6 yr old twins. Life with Ayden is very difficult. He was diagnosed with Tourette's about 6 months ago. IT started out with facial tics, this really weird thing with his eyes, then we noticed vocal tics, clearing of the throat over and over and over again. He is also VERY high tempered. It takes nothing to set him off. He has ocd tendencies and if things are not done the same exact way as last time your gonna know it. But then he is also very indecisive and might just change his mind about something and in that instant he wants you to start all over. He does this in every aspect of his life. When he is stressed the tics are worse. He gets stressed over the tiniest of things. He can't even watch a Dora video without getting upset because when he shouts the answer they don't respond that very second to him. He is also very clingy esp to me his mother. He feels he should know my every move. Its almost like he has this control thing going with me. I have to remind him frequently that I'm his mother. He stays mad at the world because in his eyes the world don't work right. No rolling with the punches with this child. I know I've spent this whole post talking only about the not so great parts of raising Ayden. That might be because right before bed time was a big blow up melt down over coloring and slamming your crayons in the floor because you colored outside the lines and then naturally of course screaming to your sister that its all her fault. When she was no where around. Sigh.
I'm at the end of my rope. I really am. The last 2 days have been hell. My husband tries to remind me when I hit bottom with that Ayden can't really help all that he does. Or can he? The doctor who diagnosed him told us nothing about it. Said we would need to join a support group. There are none in our area. Everyday I feel like I'm beating my head on the wall just trying to get through to the next day. I don't want it to be like this. I want to be able to enjoy my baby. He's only 6. I love him more than life but I don't understand him.
He is not on any medications. He has only seen the doctor once the day she diagnosed him. Any advice from parents who deal/dealt with this.
Thanks so much,