My son just started having tics

Christie - posted on 01/15/2009 ( 81 moms have responded )

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My son started having head tics at the end of September, he is 8 years old. His Dr. said that a lot of kids develope tics between 8-10. He also told me that their is no "test" that can diagnose Tourette's. He reccommended to watch him for a year and go from there. He told me not to worry, that tics did not affect his intelligence or physical ablility. Frustrating. I feel like I am constantly staring at his head to see if he is tic'ing and trying to find a pattern or reason.I noticed that the tics get worse when he is excited or stressed. His teacher said she notices him doing it when he is in a hurry to finish his work or during tests. So far it has not affected his grades or classroom participation. I just don't know what to do, his doctor gave me the feeling that this wasn't a "big deal," but it is all I think about. I have read hundreds of web-sites and they have conflicting info.

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Theresa - posted on 08/30/2013

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My son developed motor tics a few months ago. Starting with eye blinking then shoulder shrugs. t moved to feet tapping followed by a hop. I toke him to the neurologist that took 7 vials of blood and did an MRI. All came back clear. I bought a book on amazon called Natural Treatments for Tics & Tourette's A patient and family guide. I put my son on Calcium/Magnesium liquid form and within 2 days his motor tics decreased by 85%. After a couple weeks we stopped giving him it to see what would happen thinking it really couldn't work like that. Within two days his tics were back full force. Watched him for two days bouncing all over the place. he couldn't even snuggle to watch tv because his movements were too bad. Back on Magnesium and I have a happy calm child again! If you google magnesium deficiency you will think like I do that most kids are deficient. My son also has a constipation issue and was on Miralax for a year. We took him off that and the magnesium seems to work. Make sure it's 2 parts calcium to one part magnesium for absorption reasons. I also notice when he eats a lot of dairy like ice cream or yogurt smoothie he seems to tic worse. he has been test and he is not allergic but I believe he has a dairy sensitivity. the book helped me so much!!! I hope this information can help someone out there. it is devastating to watch your child be someone else and Doctors say oh well!!!!

Janel Marie - posted on 01/31/2013

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Hello, My perfectly healthy five year old son developed (OVER NIGHT ) some rather harsh tics last year( eye blinking, severe hand squeezing and flapping, jaw clenching ect). It was terrifying to say the least. I am not sure how your son is doing now ( hopefully better) but hopefully this can help someone struggling right now. I can completely understand your helpless feeling, stress and anxiety. First, my pediatrician said that it may be a transient tic and to try to ignore it and see how it goes... Also to get him lots of sleep, keep him out of stressful situations and avoid sugar. It continued to get worse week by week and I had heard about PANDAS and started to freak out. I demanded a consultation with the Neurologist and wanted him to get on a course of Antibiotics( just in case it was PANDAS) which some Doctors don't even believe in??

We live in Philadelphia and the first visit to Jefferson Neurology department was depressing. The doctor said that my son definitely had a tic disorder and that we were just going to have to deal with it and hopefully it was transient but in any case it may get better after his teenage years. The other option was to dope him to the point that we wouldn't even know him anymore ( its been over a year now and I get sick to my stomach still about how helpless this moment felt)WTF.....It had gotten so bad that he was squeezing his nails into the palms of his hands leaving marks, clenching his jaw so hard that it hurt and blinking so much that he had trouble focusing. And this was only within 1 months of the initial onset of the tics.

There is nothing worse than your child begging you to help them and you don't know how. I made a promise to him that I would do anything and everything I could to relieve his pain. Obviously I wanted a second opinion so one night when it had gotten really bad my husband and I headed over to the Children's Hospital of Philadelphia(CHOP) emergency room. We pleaded with the doctor's to help our son. They got us an appointment with the Neurologists there within a few days. At his appointment they determined it was a tic disorder and they told us some of what Jefferson Neurology said but the doctor told us that they had been recently using Topomax ( a medication that has been around for a while to prevent migraines and epileptic seizures) to treat these Tics . She said the results had been great and asked us if we would like to try it. My husband and I didn't really want to put him on drugs but this drug was not too harsh and had minimal side effects. So we decided to try 15mg ( a very low dose) we crossed our fingers and prayed!!.....Literally the next day my son said he was feeling better and within a week the tic were practically gone. It has been over a year now and while my son sometimes tics ( when he is over tired, extra stressed or has caffeine) he is back to his normal self. The doctors at CHOP and trying this medicine has made all the difference in our lives. I hope that this knowledge can help someone who is dealing with this problem right now. It scares me to think that other Neurology departments don't have the knowledge to try this medication...... It just may be able to change someones life! Best of luck to all the parents struggling with kids with Tics and I hope you can find this helpful.

Caryn - posted on 01/18/2013

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My son developed severe chronic multifocal ticcing after his preschool vaccines in 2007. They started out benign and then snowballed into chronic multistep tics. I was devastated. I did a full panel of blood testing. CBC, etc.... We discovered that he was extremely malnourished although he was eating well. His white blood cell count was abnormal. I saw a DAN doctor and we started a healthy diet. In a few short days we also found out through a blood test that our son had celiac disease, an autoimmune disorder that is caused by eating wheat. We did a food allergy test and learned that he had many food allergies, too. This is common when you have a broken digestive system. So we started him on a restricted diet. After about a year he was getting much better. After 18 months he was completely tic free. He still is after 4 years. Now he is eating everything again except the gluten without problems. His digestive system is healed. We are careful not to eat genetically engineered food at all. We don't eat processed junk either. We get organic as much as possible. We do NOT eat artificial colors, flavors, and preservatives. ADHD is common in undiagnosed celiac. It's called brain fog. I hope this post is helpful to someone.

Estrella - posted on 07/23/2013

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My son started in 1st grade with blinking and humming. In 2nd grade he started with head and neck movements. Being better mom than the FBI ;) I insisted that they test his blood work for PANDAS. Sure enough the blood work came back with high ASO / tithers. He has been place on antibiotics. I have taken away all red colors and stayed as much as possible with organic. I also have upcoming appointment with Dr Tanya Murphy in St Pete FL. I have started him on Coromega Omega 3. I am hopeful but holding my breath because the tics have dissapeared since he started omega 3. It might be coincidental but I am so happy right now. I truly believe that when we vaccinate our kids as babies we might be messing with their immune systems. The more I read the more I am starting to believe that. Just a hunch. My child also has suffer from many allergies and asthma since 3 yrs old.

Claire - posted on 08/16/2013

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My son is 10, and had the coughing. Clearing for a long time now. I have moved house and he now rocks his head back and foward. His shoulders rock too. The cough has gone to a sniff now. Im going to get him checked too. He does his when excited, or very ingrosed in television,eg power ranges. Look at you tube, all the different tics and listen to the children with them. Im hoping my sons calm down, but the more i learn about it, the better i feel. He is a great footballer and very happy boy. I know how you feel. My son rolled his hand 50 times a day aged1 till 3, i thought. Oh what life will he have, age 3 he was very vocal and atheletic, the hands stopped. Then i was so stressed. Then age 9 began the clearing throat. I am going try and take each day, as it comes. His little quirks make him ross. Would love to keep intouch. Claire mum of ross.

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Tammy - posted on 12/03/2014

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Angela, make sure you doctor is checking for strep through a blood test, not rapid test or growth. My friends PANDAS son only tests positive on blood test for strep. Sounds like it may be PANDAS. good luck

Angela - posted on 10/22/2014

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Hi. This sounds exactly the same as my son. He is age 6. About 4 weeks ago, he started jerking his head back involuntarily. It was completely out the blue! We have been to doc who tested for Strep and did bloods. All came back fine. He had physio who said his neck was tight on the left but didn't think it had caused the jerking and it didn't prove it either. His teacher says it's affecting his work. We are waiting a neurology appointment now. Hoping we will get some answers. I could cry for him. It's just awful for him. He says he wants to chop his head off and get a new one!!! Heart breaking. How is your little one doing Nikki?? He sounds very similar to my son. X

Lois - posted on 10/02/2014

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I posted before that this hapened to my 8 yr old grandson. He was taking floride pills. I stopped the pills and the tics stopped. He went this week to dentist for a cleaning and flordie treatment.,next day tics started again lasted about 4 days.

Lois - posted on 09/23/2014

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took my grandson off floride pills and head tics stopped. When I started the floride pills again so did the tics.

Zoe - posted on 08/01/2014

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My daughter who is 6 years old and bright ,outgoing, (beautiful :) ),sociable-totally normal in all aspects,has just started blinking really hard and clenching her fists and feet ,at first I just said "stop it" "you are being silly" etc....but I'm really concerned and I'm going to seek medical help if it continues,hopefully it will pass as quick as it appeared.We have just moved house so perhaps that's what caused it.
Worried Welsh Mammy

Brandy - posted on 07/28/2014

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I just read your blog, and wanted to say my son is 10 but was diagnosed with ADHD. My sister in law is a naturalpathic doctor, and my son at first was on medication. I pulled him off and only give him natural stuff and it has worked amazingly. He is on Calmgen (5 drops under his tongue) takes omega 3 every day and a tsp of magnesium/calcium which is called natural calm... tastes great.



Just wanted to share that!

Brandy - posted on 07/28/2014

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I just read your blog, and wanted to say my son is 10 but was diagnosed with ADHD. My sister in law is a naturalpathic doctor, and my son at first was on medication. I pulled him off and only give him natural stuff and it has worked amazingly. He is on Calmgen (5 drops under his tongue) takes omega 3 every day and a tsp of magnesium/calcium which is called natural calm... tastes great.

Just wanted to share that!

Dina - posted on 06/01/2014

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Hey Christie,

My 4 years old just started with a head tic and shoulder, in the past days I want to see 2 different doctors and they told me it's a TIC I am so depressed and sad, and can't stop crying. I have no idea what to do anymore? How is your son? What did you do? Did the tic go away?

Rose - posted on 05/05/2014

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My 8 year old tics are getting worse... It keeps on changing. He rolls his eyes so much that he has been complaining of headaches now... As a mother I'm going crazy... Any med without side effects?

Greta - posted on 04/10/2014

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Theresa, our story is IDENTICAL to yours. Our son at age 3.5 developed tics. I personally have trouble maintaining mineral balance, as does my mother's side of the family. Our imbalance results in palpitations, depression, anxiety, etc..., so late one night as I was pondering what could have trigger my son to have tics, it occurred to me to research magnesium deficiency. It's only been one week, but our son's tics are decreasing. His diet is horrible – typical toddler who won't eat but a handful of different foods. One helpful resource for picky eaters is the Sneaky Chef books. I also have purchased ground cashews at Trader Joe's and sprinkle those on all of his sandwiches and in applesauce. We are also considering mold allergies and are changing his bedding and purchasing all new pillows.

Must thank so many moms for sharing.

Terri Leanne - posted on 02/19/2014

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My grandaughter has had several different motor tics for the last 3 yrs now her eyes roll back and flutter
Would this vitamin that you said you give to your child be okay to give to my grandaughter. My number is 209) 4802428

Terri Leanne - posted on 02/19/2014

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I have grandaughter who is 9 andat 6 she started with these diff tics and has had several diff ones. Now her ayes flutter and roll back we wey e doctors and they say dont worry. Does anyone been thru thr. Contact me 209 4802428

Jo - posted on 01/26/2014

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Hi,

I've just come across this page and it all sounds very familiar. My 5 year old daughter has had a sniffing tic for the past 2 1/2 months now. Some days it is worse than others. It started with short sniffing bursts but now the sniffs seem longer, more drawn out and obvious.

It first came on shortly after we had moved house and we also moved her school, as she wasn't settling into her old one and cried every day she had to go in.

We have spoken to several doctors/ health professions since she first displayed this tic. The first said to ignore it, it might go away or she might start displaying other tics, especially if it runs in the family, which it does. My daughters great aunt has Tourette's and I sometimes wonder if my partner has a very mild form.

After reading about PANDAS and the connection between strep throat and tics, I went back to the doctors for a second opinion as we'd all been suffering from sore throats. The doctor reluctantly did a throat swab on Danielle but said he was sure she didn't have it and was just doing it to put my mind at rest. A week later we got the results back, she had tested positive for strep throat and was put on penicillin. Her sniffing tic seemed to reduce significantly for a while but then returned. We went back to the doctors and saw her nurse who didn't do a throat swab this time but put me, my partner and our daughter on penicillin. The sniffing continued, we all got Ill again and all had nosebleeds within a week of each other. We went back and saw a different doctor who could not explain why we all had nosebleeds at the same time but put Danielle (our daughter)'s nosebleed down to a damaged blood vessel through the trauma of sniffing and gave us some nasal cream to apply to her nose. She also gave our daughter more penicillin and did another throat swab (which came back negative for strep this time). She also referred us to a paediatrician at great western hospital in swindon called Dr R Chinthapalli. I see that he or she specialises in epilepsy but not sure about Tourette's syndrome and our appointment is not until 23rd April which seems a long time to wait!

Danielle has also started displaying other tics recently. This weekend we noticed she has started throwing her head back and rolling her eyes. I have also noticed other minor facial tics now and again, like grimacing. She has been ill again over the past few days, complaining of stomach aches and was sick Friday night.

Over the last couple of months we have dramatically reduced foods and drinks with artificial colourings flavours and the same for foods and drinks that contain lots of sugar. We think this helps slightly but we are not sure. We have also started Danielle on a multivitamin, a probiotic and a magnesium supplement which she has at night but this doesn't seem to make much of a difference.

I should also note that she is not very confident and is quite an anxious little girl, especially when we first moved but she seems to have settled a lot now and loves her new school. However she does worry sometimes about things out of her control, like floods etc. She wakes up almost every single night and often ends up coming into our bed.

I was wondering whether anyone could help meor point me in the direction of someone who can as I've ran out of ideas and not sure what else to do. Even a bit of support would be nice from other who have been in my position.

Sorry this was so long and thank you for reading.

Sent from my iPhone

Amy - posted on 01/06/2014

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I have an 8 year old that was diagnosed in feb 13 with tic disorder (he was 7). It's been the most difficult year of our lives. Next month we will go back and I'm sure he will be diagnosed with Tourette's. 1st grade was fine. This year, grade 2 has been challenging. We hust completed psychological testing as well as a test by a learning specialist. He has all basic skills and is very bright so I am in the process of setting up a 504 plan at school (not special Ed but special treatment..more time on tests, preferred seating, prompts by teacher, etc. with tic or Tourette's usually comes ocd and ADHD...which my love has both. He is mostly gluten free ( I am not ready to exclude holidays or bday party food) and we see a chiropractor that does some neurological exercises with him once a week for 8 minutes. The neurons in the brain are not sparking the way they should and this exercises his brain. Tics have not subsided, but they do change. Some kids were innocently rolling their eyes when he did and he was upset about it, I told the teacher and she spoke to the class separately about teasing him or drawing attention to him. I have to believe this is a good thing because kids are curious, but I am fearful it will make him different in their eyes...but, he is, and I have to accept that. My husband and I are against brain altering drugs, the side effects to us are not worth it. And the ADHD mess could increase tics and tic meds may or not help them. I've prayed and just been honest about them and after a few months started to share with some friends only because I am/was crushed. My sons tics have moved and changed .. Eye rolls, jumping, vocal screams, arm circles, mouth sounds. I just kiss him or try to distract him. He tells me he tries to hold them at school..so he is always bad at home. Good luck, shed the tears, it's overwhelming, but you are a strong, loving, confident women. God does not give us what we cannot handle. And it could always be worse, so we are blessed.

User - posted on 12/21/2013

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Theresa and Jodene - Your children may be constipated due to their bodies inability to assimilate dairy and/or they are low in silica. My daughter cut dairy from her diet and her joints quit hurting. (She's 22, was in daily pain, prescribed anti inflammatory meds gave her 2 ulcers). After countless mainstream medical doctors that prescribed "band-aids" instead of getting to the root of the problem I stepped out of the box and paid out of pocket for a Naturopath. She spent 2 hours going over her complete medical history. It was worth every dime! She can now get out of bed without taking 1/2 a vicodin (5-7 pains she was pain free!) and we are now working on the constipation. It can be a combo of dairy and her body lacking in silica. The doc said it may take 2-3 mo to see the results. In the meantime she takes 4 magnesium pills daily. She is now more aware of what she ingests ie reading food labels, etc, but it is so worth it to have her out of pain! If she had tics or twitching or Tourettes I would most definitely step out of the box and see a holistic physician. Their self esteem is so vital at a younger age and you need to keep opening doors until you find an answer to give your child some relief. I didn't care how much it cost. I promised her I would stop at nothing til we found an answer. Whoever would have thought dairy was causing her so much pain? I am confident we will have an answer in the next month or two on the other after reading and gaining wisdom on the food we ingest! I wish you all the best of luck. Sending prayers to you all. As a mother, I simply can't imagine, especially when every door gets closed!

Nikster - posted on 12/13/2013

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Literally in the last 2 weeks my seven year old boy has started throwing his head back in a jerky movement. The school have noticed it too, it sometimes happens 3 times consecutively and can happen as few as once an hour or as much as 10 times a minute. I'm not sure but I think he ma be sniffing in this same pattern. There are lots of ideas from everyone as to how to surpress this, but I'm feeling totally devastated at the moment. I can't even accept that this is happening to my baby. Every time he does it my heart just drops. I'm devastated. As I'm writing this he is sat with me and he seems to be tapping his hands and fidgeting. These are as new as 5 minutes ago. Its all happening so fast. I don't know whz to do, I'm so lost.

Fran - posted on 12/08/2013

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My son was diagnosed at 5. He is 9. Different tics come and go. His latest one is moving in circles. I am afraid he is going to get hurt. Has anyone else dealt with their child spinning in circles? It breaks my heart for these children to have to deal with these tics. My son is aware of them and says he can't control them. I tried natural remedy tic tamer. I don't think it is really helping. Do you have any suggestions?

Diane - posted on 12/01/2013

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This is a big deal...my son is now 17 and his tics are getting worse...he was diagnosed when he was 10.Then can do an MRI and a sleep study and yes it takes a year before they can diagnose him. I so know and remember what you are going through and I know it is scary for you...I have learned by trail and error.The first thing I did is get him off anything that has red dye in it,no caffeine,and stay away from any processed foods-its extremely time consuming to do this but you can do it.We are at the point where it does affect his school cause he tries to not tic in class and that makes him not concentrate on his classwork,he cannot comprehend what he's learning which makes him NOT test well. We did get a 504 form which gives him some special needs in school.(A GODSEND) he is going to graduate this June and its so much pressure on him...and yes stress and excitement makes it way worse.I don't care if he passes with C's and D's I'm just trying to help him graduate and get him ready for the next part of his life...I PRAY ALOT!!!!!! I just read that you posted this in 2009 so I guess by this time you will have went through a lot...I'm sorry that I didn't see your date of this post till the end but maybe this can help someone else!

Andy - posted on 11/15/2013

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Has anyone tried the Progessive Nutritional supplements? It is the only children's brand of supplements I have been able to find with the 2:1 ratio calcium to magnesium. I just want to be sure the company makes good products. Seeing my son's tics is breaking my heart....

Michelle - posted on 11/14/2013

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Thanks so much I feel like there is light at end of tunnel battling with tics im goin to get the calcium magnesium tommorw m v wot happens x x

Doc - posted on 11/08/2013

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I think you can give to much calcium and create other problems. it would be a good idea to check into that. Just a word of caution.

April - posted on 10/14/2013

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I have read all your helpful tips, thank you very much. I will give the supplements a try. I just can't watch my son tic and tic anymore, it's very painful to watch.

Theresa - posted on 09/03/2013

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My son was Miralax for a year!! magnesium seems to work but he still only goes every couple of days. I'm now also giving a probiotic. I feel Miralax just was a band aide and didn't really cure why he is constipated. I have an appt with the gastrologist again but I'm not confident that he will help. I think he's going to say just put him back on Miralax which I won't do!!!!

Jodene - posted on 09/03/2013

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Just reading through your post again Theresa my son to has constipation issues and has been on piculsulphate for over to years anyone with a child on these kind of medications will no how hard it is for them he definitely doesn't get as much magnesium as he should due to his diet not being as great as I'd like due to his Los of appetite because of his tummy issues I'm definitely going to speak more to our health advisor on this thanks

Jodene - posted on 09/03/2013

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I'm willing to try anything I really do feel for him he just woke up one morning and the tics had started I know he's very much conscience of them and I think the thought of returning to school is scaring him a little as well I will let you know how we get on thanks :)

Theresa - posted on 09/03/2013

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I have also read, a bath in epsome salt works wonders. Bath 3 times a week for 10 min in a warm bath with epsome salt. It's 100% magnesium and if they are deficient then their body will absorb it. But do it at night because it makes them relaxed and sleepy!

Let me know how you make out! Give the magnesium supplement a good couple weeks because the more deficient they are it may take a little longer? I'm no expert I'm just sharing what has worked for us.

Good Luck :)

Theresa - posted on 09/02/2013

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Hi Jodene ,

I give him lifetime kids Calcium/magnesium. It's says two teaspoons and I started that amount for two weeks and just resent,y dropped it to one teaspoon because I read for his weight he should get 130mg of magnesium a day and the two teaspoon dose gives him 200. I get this at whole foods but you can find it online also. Good luck Nd I hope it helps!

Theresa

Jodene - posted on 09/02/2013

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Hi Theresa please could I have the name of the magnesium calcium you have used I'm so confused I'm going through the same and there are o many different ones for sale I'm currently giving him floradix but don't think this is the right one thankyou

Estrella - posted on 07/23/2013

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My son started in 1st grade with blinking and humming. In 2nd grade he started with head and neck movements. Being better mom than the FBI ;) I insisted that they test his blood work for PANDAS. Sure enough the blood work came back with high ASO / tithers. He has been place on antibiotics. I have taken away all red colors and stayed as much as possible with organic. I also have upcoming appointment with Dr Tanya Murphy in St Pete FL. I have started him on Coromega Omega 3. I am hopeful but holding my breath because the tics have dissapeared since he started omega 3. It might be coincidental but I am so happy right now. I truly believe that when we vaccinate our kids as babies we might be messing with their immune systems. The more I read the more I am starting to believe that. Just a hunch. My child also has suffer from many allergies and asthma since 3 yrs old.

Estrella - posted on 07/23/2013

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My son started in 1st grade with blinking and humming. In 2nd grade he started with head and neck movements. Being better mom than the FBI ;) I insisted that they test his blood work for PANDAS. Sure enough the blood work came back with high ASO / tithers. He has been place on antibiotics. I have taken away all red colors and stayed as much as possible with organic. I also have upcoming appointment with Dr Tanya Murphy in St Pete FL. I have started him on Coromega Omega 3. I am hopeful but holding my breath because the tics have dissapeared since he started omega 3. It might be coincidental but I am so happy right now. I truly believe that when we vaccinate our kids as babies we might be messing with their immune systems. The more I read the more I am starting to believe that. Just a hunch. My child also has suffer from many allergies and asthma since 3 yrs old.

Jennifer - posted on 05/25/2013

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One way to decrease and optimally eliminate tics is to help the child realize that nothing bad will come if he or she does not act on the premonitory urge. Some children mention holding back their tics at time (usually to avoid embarrassment) and research has shown that while tics may be of an involuntary nature, they may be voluntarily suppressed. When the child feels the premonitory urge, they can make a game out of how long they can go each time without having the tic action. Breathing techniques help, as does refocusing to a preferred task or activity. Sitting with the premonitory urge is like having that itch you really want to scratch. However, not scratching the itch will not hurt you, and with determination and utilization of will power, urges do not need to be manifested into action. I used these techniques about 12 or 13 years ago to nearly eliminate my Tourette's syndrome, and I have faith that others will be able to successfully employ these behavioral techniques rather than turning to medication or endless, inconclusive doctor appointments.

Nicole - posted on 05/17/2013

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My son is 7 he will be 8 this September. He has a head twitch. He has has it for about a year and he just recently let me know that it's starting to annoy him :(. Not sure what I can do to help him. Our doctor as well mentioned that many children from 7-10 get twitches or tics. She did not refer me to anyone and I'm not sure what to do for him??

Elise - posted on 05/10/2013

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I can relate to how you are feeling...I have a fifteen year old daughter with T.S.She was diagnosed around age eight. i think I first noticed something was wrong at a very early age.To get people to believe me was another story.She was about three or four.When we went for walks she would kick her foot out.i thinking this was just a habit would tell her to stop it,,,Over the years some of her ticks consisted of head jerking,vocal ticks,having to touch things,and repeat patterns....Not knowing what was going on with my daughter i felt helpless...I too took her to the family doctor.oh she just has a tick This is very common in children.It will go away....I think it started getting really bad after she turned ten...I took her to see a child pychologist who refered me to Dr.Tavaris a child pychiatrist..i explained the symptoms to him and he told me it sounded like she had TS.I thought thats crazy not my daughter...In the end he knew what he was talking about because he too suffers from TS. If the individual suffers from moter plus vocal then it is ts.If it is just one or the other it is a tick disorder...I don't think there is a tick that my daughter hasn't had... We would joke around together and say at least yu don't swear,and soon enough she had a swearing tick as well..The f word had to be screamed out in a pattern of 4s.I don't know why but the Spring is the worst...She has bad flare ups.Right now she cannot go to school and is inpatient at Child Adolecent treatment center.Before the spring she was doing very well in school and the ticks were at a min.TS.Symptoms are aggrivated by anxiety and stress.The more out of control she feels the worse they get.Before this happened she was only on Stratara for her ADHD and Fluoxitine to calm her nerves which i believe that in there own way both helped with TS. I did not want my daughter to have to depend on medication but after trying different vitamins,dropping dyes and doing everything imaginable nothing was working.She would go months without hardly a tick then TS would turn around and bite us in the ass.Now we are back to square one.With TS.things always change. Although its been a struggle,TS i believe has made my daughter a stronger nonjudgemental person.in fact she wants to base her career around helping other children suffering from TS.
If yu are concerned about your son the best thing to do is to get a second opinion from someone who deals with this disorder....I know how hopeless yu must feel.I went through many years of feeling depressed and that i failed my child.It has taken alot of education and years of experience with TS but my family and I are now at a level of ecceptance for TS. It helps to find humor in things we can't control.... My daughter is awsome at making jokes about her TS....There are support groups out there,and I found out there are alot of children in our little city who have TS....i wish yu and your son the best of luck....Please excuse my spelling... How is your son doing today???/

Stacy - posted on 02/19/2013

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It is very helpful to read everybody stories! My son first started having tics when he was 3 years old ( eye blinking and throat clearing) at the time we over looked it and just assumed that was just something he did, I did take him to eye doctor but everything was fine there. In the last couple months his tics have become more noticeable and I realized this has been ongoing for almost 5 years at this point. I spoke with his pediatrician who said we would discuss it further at his annual check up, however since then he has developed several new tics and is getting notes sent home from school for not paying attention and disrupting the class. He currently has over 5 tics that we see regularly, both vocal and motor. It absolutely breaks my heart to watch him go through this and to hear him tell me that some of his "twitches" are really hurting his neck. I have called his pediatrician to move up his appointment and possibly get an appointment set up with a neurologist. I hope everybody's kiddos are doing great!

Cindy - posted on 02/04/2013

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Christie- my mom eliminated Red 40 and Blue 5 from my diet when I was diagnosed with hdhd and tourettes. It changed my world. Now that my son has those lucky genes from me. I decided to use moms "fix" my son's behavior and tics have greatly improved and practically are gone. He is in middle school and gets to pick what he eats from the cafeteria, he had pink ice cream/strawberry flavor- (red 40) and blue Gatorade (blue 5). He was written up that day for not paying attention in one class and being a distraction in another.
He now asks to see the ingredients in everything he gets at school and is doing wonderfully.
Honor roll for 2 semesters-

Caryn - posted on 02/03/2013

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Oh, and Joy-- in the mean time, magnesium helps to relax muscle tics. Neck tics can be painful. I bought a magnesium spray that I use on the skin. Epsom salt is good too. Just dissolve in water. Many kids with ADHD have zinc deficiency.

Caryn - posted on 02/03/2013

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Joy,
Has your doctor ever tested your ADHD child for vitamin mineral deficiencies? Have you tried any natural treatments like B vitamins and fish oil? Have you considered cutting back on artificial colors, flavors, preservatives? Perhaps you could try some natural treatments for ADHD and take him off the medication. I used to teach special education. I had a couple students who were prescribed Ritalin that developed tic disorders. It can become permanent when it is caused as a drug side effect. I would want to get my child off that medication ASAP. Be sure to ask your doctor how to best do that. I recently talked to Dr. Albert Mensah of Mensah Medical in a phone interview. He said that doctors often prescribe meds when they don't know what else to do to help a patient. Many doctors don't make the connection to diet and nutrients. But I promise you, it does help. I pray you find the answers you need to help your child. Don't stop looking. Dig deep. In our case our son had undiagnosed celiac and digestive issues. When the neurological system is broken it is often because the body is not getting the nutrients it needs to work right.

Joy - posted on 02/03/2013

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Hi there I know how you feel. My son has adhd and has been on concerta for 2 mths. I was never warned about tics from the doctor.
My son just developed a tic in his neck/ head the last week in a half. I am constantly watching him , i am very worried snd upset. I am taking him to the doctor tomorrow. It is just very hard to see something like this happen so sudden on a healthy child.

Janel Marie - posted on 01/31/2013

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I am happy to hear that your son is doing better and you have narrowed the issue down to an immune system dysfunction. Yes, Topamax (typo). Actually this unfortunately is not a "magic pill" but it has helped him tremendously. He has had no side effects to this medication. In fact, he has actually calmed down a little bit if anything. Every child is different and this obviously will not be the answer for everyone. There are side effects to every drug.... My biggest concern with Topamax was lack of concentration and Kidney stones. Fortunately , the very low dose of 15mg ( most children who have epileptic seizures take around 100 mg to prevent) has only made him be able to concentrate better and live his life normally. My son's tics were EXTREME and he would not be able to function at school unless we were able to manage them. We are at the doctors every 4-6 months and plan to get him additional therapy when he is around 8-9. Hopefully one day he will be able to control them on his own:) A quick note- When the tics started we removed all toxins from our home, have been only eating Organic, saw an Allergist, he was tested for Vitamin Deficiencies and for high Mercury levels, We tried herbal supplements, he went on Antibiotics.. you name it we explored it. Both myself and husband are not pro-drugs in any way but in this case it has helped.

Caryn - posted on 01/31/2013

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I think you mean Topamax. It was suggested by our neurologist when my son was 4 but I am a former special education teacher and this drug frightened me. It can cause a lot of side effects, especially cognitive ones. You will think your child has ADHD. It is also possible to cause major Vitamin D deficiency issues. (Rickets). 15 mg seems like a high dose to me. But I am sure your doctors are aware of the side effects and are monitoring your child carefully.

I am glad you have found your magic pill with no side effects. For me this was too much of a risk. I decided to find the underlying cause of my child's immune system dysfunction. It turned out the tics were caused by major nutrient deficiencies because his digestive system wasn't working properly.

Blossom - posted on 12/24/2012

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My daughter is also diagnosed with TS as she is ticcing for past one year without any tic free period. I have started using homeopathic medicines for past 1 week and i think it will take few months to show effect if any. Is there any mother who tried with Homeopathic medicines with positive results?

Emilio - posted on 12/17/2012

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i can totally agree with dana bishop and that was sound advice dana. i have a nephew who keeps folding his ears and says he feels like ants are crawling inside his ear all the time. he has these tics too. he is very smart in school but very head strong and convinced. no humility in this boy. he is definately ADD/ADHD in america. we don't live in the u.s. doctors here can't find anything wrong. his habits are annoying yes but a few years ago he was a t rex with all the sound effects and claws and walk. that has passed and now it's the ears folding and tics.

Dana - posted on 12/16/2012

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In my opinion, any doctor that would prescribe medication for a child with tics or hyperactivity without exhausting other options first should not be trusted. I always felt that medication should be a last resort, unless of course you're dealing with something that is life/health threatening. Also, there are several types of tic disorders other than Tourette's. I would definetly find a pediatric neurologist who specializes in tic disorders and if the decision is made that medication is the right course be aware that it usually takes quite awhile to find the right medicine or combination. My son is 12 and was diagnosed at 6 with TS. He wasn't put on medication until he was about 9 and even then it took almost a year to find the right mix. Now, he feels so much better and is able to cope better and focus more on school work. I also have a 5 year old that has started having tics and hyperactivity issues within the past 2 months. I'm not jumping to conclusions that it is TS, although I wouldn't be surprised. He did just start kindegarten so perhaps it's related to that, only time will tell. As far as my marraige is concerned...I have been married to the same wonderful husband for 13 years now. Our children have never seen us fight and any disagreements we have never amount to any uncomfortable situations. We always kiss hello and goodbye. I know an unstable marraige does effect children, but I think the majority of the parents in this group have children with definet neurological conditions.

Emilio - posted on 12/11/2012

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LIZ KULIK, I am by no means an MD and would never negate a doctors opinion, however after doing all that the doctors prescribe and nothing seems to work, this may be because it really is not a medical problem. Before all these drugs and prescription for ADD and ADHD many of us grew up just the way wee did: some a bit hyper and others a little too quiet. I have a very high strung 2 year old daughter. Any MD if they would see her would give her something to calm her down. She is really a handful but it is my belief that these kinds of issues do not require drug intervention everytime. Sometimes we are too quick to calm down kids who are just very energetic.I will say this that too many times we dose up our kids with all these drugs and end up causing real damage from the drugs. I would never put my daughter on any of those drugs. She keeps us on our toes and she is very very smart at 2. Absolutely do not argue infront of kids ever. just don't do it. walk away. Clearing of the throat can be just a bad habit. I have a 46 year old cousin who has done this for as long as i can remember. It is annoying but no big deal. His habit is still with him. The tics may be the result of something wrong but if you take to effort to find out and do find nothing wrong medically, then please please don't just have them put your kids on these drugs. I would get my family a psychological assessment. Sometimes people can't see the obvious problems kids pick up on. Take a few sessions and let a psychologist see if all is well with you as parents. ofcourse many md's think we behaviorists are totally missing it but a lot of times we're not at all. And some habits die hard. We are all unique.

Liz - posted on 12/11/2012

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Hello Emilio, I have a 7 year old boy and for the past 2 months he has developed a clearing of the throatt and puffing sound after. He hs been diagnosed with ADD and started Focalin which seemed to help at the beginning but the past few days the teacher has started to complaint about his inattention again does this mean the drugs aren't working or he's just having a couple of bad days? He did have an ear infection when the teacher started to complaint about his lack of focus again, could this affect how the medication works?. To answer your question abt our marriage which I see you think it hs to do with his tics, our marriage is fine, we do have occational arguments but who doesn't. My son is seeing a developmentalist should I take him to a Neurologist for the tics?

Emilio - posted on 12/10/2012

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How are the relationships that matter surrounding the child.

Is child living in a happy normal home? Parents loving each other?

Most times children are responding to what they see.

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