Mothers of Special Needs Children

I know myself, I could use a lot of help raising my kids. I have asked for all the help that is out there. Even worse is the everyday struggle with their delays. It would be nice to share with mothers who experience the same struggles as I do.

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Communication devices

We just had our 6mo check up at Shriner's yesterday and they said that they think Taryn would benefit from something like the Vantage Lite communicative device. Do any of you...

26

Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...

4

MELAS

My sister was just diagnosed with this today. She's 29 (last week) and was given a life expectancy of 40. We're still waiting on the labs for all 3 of my children, and now her...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

9

CHARGE Syndrome

Hello moms. My name is Amy. I have a 16 mo lod charge child. It is a rare condition that effects many systems. He is deaf-blind and can't swallow. Are there others of you...

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