Mothers of Special Needs Children

I know myself, I could use a lot of help raising my kids. I have asked for all the help that is out there. Even worse is the everyday struggle with their delays. It would be nice to share with mothers who experience the same struggles as I do.

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Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...

4

MELAS

My sister was just diagnosed with this today. She's 29 (last week) and was given a life expectancy of 40. We're still waiting on the labs for all 3 of my children, and now her...

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russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

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russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

9

CHARGE Syndrome

Hello moms. My name is Amy. I have a 16 mo lod charge child. It is a rare condition that effects many systems. He is deaf-blind and can't swallow. Are there others of you...

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russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

My 1st grade son has NLD

I am searching for effective reading and math strategies for my son. He is having trouble remembering his sight words, especially when they are similar like the "w" words such...

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Jazzmin

Hi my little 4yr old Jazzmin has 5 p 15.2 chromosamal deletion, im wondering if any child/adult has the same? cheers her mum Tekiri.

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porencephaly/hydrocephalus

My daughter is now 17 months old. At 15 1/2 months she started having seizures and was diagnosed with porencephaly and hhydrocephalus. she has had 3 brain surgeries since. The...

26

Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...