Mothers of Special Needs Children

If you're looking for support while raising special needs children, you're in the right place. Feel free to ask questions or give other moms advice. We all know that sometimes parenting can be a struggle so take comfort in knowing we are here to support you!

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Sleep Apnea/BiPap mask??

My 2 1/5 year old son (born with spina bifida,chari malformation) has had sleep apnea since birth. He was put on oxygen at night. Recently he had yet another sleep study...now...

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Cerebral Palsy Regression?

I have an amazing 3 year old son who was recently diagnosed with cerebral palsy. He has always been delayed but not too far behind. He started walking at 18 months, his walking...

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MELAS

My sister was just diagnosed with this today. She's 29 (last week) and was given a life expectancy of 40. We're still waiting on the labs for all 3 of my children, and now her...

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Advice on global delay

My son as been diagnosis with global delay he is now 20 months but he also got low muscletone and congential horzonal nystagmus he has made massive improvements in some areas...

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Communication devices

We just had our 6mo check up at Shriner's yesterday and they said that they think Taryn would benefit from something like the Vantage Lite communicative device. Do any of you...

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