Mothers of Special Needs Children

I know myself, I could use a lot of help raising my kids. I have asked for all the help that is out there. Even worse is the everyday struggle with their delays. It would be nice to share with mothers who experience the same struggles as I do.

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g tube placement

My two year old son is having a g tube (Peg) placed mondag morning. I'm terrified! :/ He has fragile x syndrome. He recently began eating table foods, however for the past 9...

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Partial Trisomy 2p and cancer

I have a 4 year old daughter who was diagnosed in June with cancer and a genetic disorder in October. We have been living at an out of state hospital ever since. If you are a...

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22q13 deletion

Hi my son was just diagnosed with this. I can't get in to see a genetic dr till march. Do any other moms have to deal with this syndrome?

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Introduction: Are you there?

My name is Lisa and I am a mother of three beautiful children: 8, 6 and 5. My 6 and 5 year olds were diagnosed with autism. I want to connect with other parents who have kids...

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mandy Cairns

Hi everyone joined this site to days ago so pleased that I have found something like this where other ppl understand my fears n worries of haven a child with special needs.

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14q duplication

My daughter has a 14q duplicaton. She is now 11 and thriving. I am looking for other with a similiar genetic abnormality.

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A good School

My son has SOD and has been attending the district public school that was recommended by early intervention when he was 3 yrs old. My son is now 4 yrs old and started his second...

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iPad for developmental delay

I am the grandmother of a 20 month old boy who has been diagnosed with developmental delay do to birth injury to the brain. We as his family have been thinking that perhaps an...

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Introduction: Are you there?

My name is Lisa and I am a mother of three beautiful children: 8, 6 and 5. My 6 and 5 year olds were diagnosed with autism. I want to connect with other parents who have kids...

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porencephaly/hydrocephalus

My daughter is now 17 months old. At 15 1/2 months she started having seizures and was diagnosed with porencephaly and hhydrocephalus. she has had 3 brain surgeries since. The...

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Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...