Mothers of Special Needs Children

If you're looking for support while raising special needs children, you're in the right place. Feel free to ask questions or give other moms advice. We all know that sometimes parenting can be a struggle so take comfort in knowing we are here to support you!

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Hello/ New Here

Just wanted to introduce myself. I am Mom to 9 children, three of which have special needs. They are all teenagers now. *T* has down sydrome, she just turned 15 this month....

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Thyroid

My daughter Kaylynn is 2, she has Down Syndrome and Hydrocephalus. She has developed the thyroid condition that come along with Down Syndrome. She goes from one extreme to the...

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Soto's syndrome

My daughter has soto's syndrome just wanted to know if anyone has had any experience with this we are getting her all the extra help we can but it is always nice to hear from...

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thanks you gifts

Hi, My daughter is turning 3 in two weeks and we are ending our birth to three program and soon will be starting preschool. Any suggestions for thank you gifts for my...

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Does anyone know?

hi i am new here. my daughter was recently diagnosed with potocki-lupski syndrome. I was just wondering if anyone has a child that has this syndrome or knows of anyone that has...

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Not really a question...

This isn't really a question. My 9 month old boy Wyatt has Down syndrome and the drs told us he would be delayed in most everything. So far the only thing he has been delayed in...

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Hi I'm new here

Hi I have 4 children ages 25, 23, 17 & 16. My 23 yr old is my only girl. She has tourette's syndrome and non-verbal learning disorder. She also has ADHD and seizure disorder....

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Mild cerebral palsy

On January 22nd 2016 i went to the ER with chest pain i thought i was having a heart attack after a urine test and some blood work the doctors told me i was pregnant i was...

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Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

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Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

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My son and potty training

So my son just turned 4 yrs old. He has developmental delays, neurofibromas and low muscle tone. So any suggestions on potty training he starts prek on weds. He is on IEP so...

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Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

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Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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My son 10 years old

I have son 10 years old he diagnosed with cebral palsy which is WDS at age 9 sometimes I am wondering he will be independent one day anyone experience please let me know thank u

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Diapers

I need a bigger diapers for my 8 yrs daughter who had reverse vesticostomy n we catherize her and now she is growing up n I'm using pamper size 6 .. its small on her .. plz...

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speech delay

my son will be 4 years on 25 nov and till now he did not speak a single word plz tell me some suggestions how can i encourage him h

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Daughter with Low IQ

I have a wonderful 12 yr old daughter adopted from Guatemala at 4 months old. She has been diagnosed with an IQ of 69. On first look she is an average 12 yr old . She is so...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...