Mothers of Special Needs Children

If you're looking for support while raising special needs children, you're in the right place. Feel free to ask questions or give other moms advice. We all know that sometimes parenting can be a struggle so take comfort in knowing we are here to support you!

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GCPS Special needs

Does anybody have a child with (GCPS) Greig Cephalopolysyndactyly Syndrome? I would like to know about it and how u cope and learn need support/info thanks

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New to group

My daughter has Coats Disease (blindness) and Hydronephrosis (kidney disorder with urinary reflux). Anyone else on here with a child with Coats?

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DS Born with Cancer? =(

Hi my name is Brenda. And I have a 2 year old girl with Down's here name is Eileen and I am truly blessed to have her she brings out the best in me. So I was wondering. When...

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New Here

I joined awhile ago,but this is the first chance I have had to post. My name is Roz and I have 5 beautiful children and they are grown now and I have 4 wonderful...

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Sickle Cell Disease

Two of my children has this life threatening disease. Sometimes it seems that no help is around. I watch them struggle and in so much pain that kills off each cell and organ...

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Help

I'm feeling really alone in the aspect that my husband isn't there enough for me. Our youngest sound was born with congenital CMV and has some serious issues because of it. I...

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DRD-Dopa Responsive Dystonia

I have a 28 month old with a diagnois of DRD without knowing what gene it is linked to. Her prognosis is good when they find the gene. She has been tested for ever gene they...

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Potty Training with PDDNOS

Help does anyone have any experience with this? I feel each day we try were are hitting a brick wall. I know I shouldn't give up but ...potty training is hard enough.

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Strollers

Question, my daughter is 9yrs and she is 4'4" tall with CP. Long walks are hard for her and we would like to do something fun this summer. We are looking for an adaptive...

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G tube feeding

My son is 10 years old he had g tube since he was born he does bolus feeding and now they have him with the kangaroo pump I worry that he is not getting enough food by mouth...

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G tube feeding

My son is 10 years old he had g tube since he was born he does bolus feeding and now they have him with the kangaroo pump I worry that he is not getting enough food by mouth...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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Special needs foster child

Hi Everyone, I know I am going to sound terrible but I really need to talk to other moms/parents of a child who has an "intellectual delay." I have a 7 year old foster daughter...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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speech delay

my son will be 4 years on 25 nov and till now he did not speak a single word plz tell me some suggestions how can i encourage him h

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Ughh!

1. I said that Savannah has mild spina bifida, but I noticed she wasn't walking and she couldn't sit straight. Turns out she has normal spina bifida. I am so angry at the...

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Daughter with Low IQ

I have a wonderful 12 yr old daughter adopted from Guatemala at 4 months old. She has been diagnosed with an IQ of 69. On first look she is an average 12 yr old . She is so...

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Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

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my son's needs

My 6 yr old son has been presented with a number of issues. He doesn't olways answer questions that he knows the answer to he' spends most of his time away with the fares he He...

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Hi, mom of 7 girls here!

4 of them have special needs and 1 is on the way that has a possibility of special needs. Met them all! Cecilia is 10 and healthy Sienna is 9 and has asperger syndrome...

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Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...