Jenny - posted on 08/13/2011 ( 20 moms have responded )
My son is 28 months old and has developmental delay. We have seen a Developmental Pediatrician and are waiting to get an appointment with a Genetic Specialist. My son isn't walking yet and can only say a handful of words and sign a handful more. He understands much more than he himself can communicate and either crawls or walks on his knees. The Developmental Pediatrician thinks he has a genetic disorder as his Fragile X test from last year was in the "gray zone" (45 repeats). Has anyone else experienced something like this? My husband and I want to have another child, but aren't sure if it is the right thing to do considering what we are going through right now. Our son has been in physical therapy since just under a year old and just restarted speech therapy after having stopped it 8 months ago for financial reasons. Trevor is involved in Early Intervention through the state of Arizona, but they still require a "co-pay" and the amount depends on the financial bracket you fall into. Thankfully, we reached our out of pocket maximum for our insurance already this year so for the rest of the year Physical Therapy and Speech Therapy are covered at 100%. We will start the process to get him into therapies through the school district in October. Until then, we just want to know the cause of all this so that we can properly direct his therapies to better help him.