Desiree - posted on 02/08/2011 ( 66 moms have responded )
The latest test just came back negative for Pitt-Hopkins Syndrome (something her docs were sure she had this time)! Aubrey, our beautiful little angel has been tested for everyhting under the moon for her developmental issues (moderate to severe MR, no speech, low tone, microenchepaly and some minor visual issues). I'm not sure how to feel each time a test comes back negative. Part of me thinks, "My God, will I ever know how this happened or the chance of it happening again?" And the other part thinks, "Thank God, once again they can't set limits for what she will accomplish in life". I just wanted to see if anyone out there has a child with the same symptoms and can tell me what their child has accomplished...things I might be able to look forward to in the future with Aubrey.