Mothers of Special Needs Children

I know myself, I could use a lot of help raising my kids. I have asked for all the help that is out there. Even worse is the everyday struggle with their delays. It would be nice to share with mothers who experience the same struggles as I do.

  1. 1
  2. ...
  3. 4
  4. 5
  5. 6
  6. 7
  7. ...
  8. 194
5

MELAS

My sister was just diagnosed with this today. She's 29 (last week) and was given a life expectancy of 40. We're still waiting on the labs for all 3 of my children, and now her...

1

Advice on global delay

My son as been diagnosis with global delay he is now 20 months but he also got low muscletone and congential horzonal nystagmus he has made massive improvements in some areas...

22

Communication devices

We just had our 6mo check up at Shriner's yesterday and they said that they think Taryn would benefit from something like the Vantage Lite communicative device. Do any of you...

26

Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

0

russell silver syndrome

My son is 8yrs old he is semi verbal he looks like he is about 4,five for the most he has developmental delay. On first glance he looks like an average 5yr old . So is there any...

9

CHARGE Syndrome

Hello moms. My name is Amy. I have a 16 mo lod charge child. It is a rare condition that effects many systems. He is deaf-blind and can't swallow. Are there others of you...

  1. 1
  2. ...
  3. 4
  4. 5
  5. 6
  6. 7
  7. ...
  8. 194
0

Disabilities and puberty

My son has CP and it going through puberty. He just turned 16 but mentally he's about a 6-7 year old. He keeps putting his hand down his pants and I don't know what to do. He...

0

Disabilities and puberty

My son has CP and it going through puberty. He just turned 16 but mentally he's about a 6-7 year old. He keeps putting his hand down his pants and I don't know what to do. He...

0

Disabilities and puberty

My son has CP and it going through puberty. He just turned 16 but mentally he's about a 6-7 year old. He keeps putting his hand down his pants and I don't know what to do. He...

0

Diabetes Insipidus

My son is 5 years old and has nephrogenic diabetes insipidus. During the day he is fine drink and go to rest room on his own. He is in kindergarten and drinking and going to...

0

Disabilities and puberty

My son has CP and it going through puberty. He just turned 16 but mentally he's about a 6-7 year old. He keeps putting his hand down his pants and I don't know what to do. He...

0

Diabetes Insipidus

My son is 5 years old and has nephrogenic diabetes insipidus. During the day he is fine drink and go to rest room on his own. He is in kindergarten and drinking and going to...

0

AFO's?

My Daughter (17) MO old is getting casted for AFO's tomorrow, she doesn't like ppl she doesn't know touching her, let alone her feet.. ideas for distracting her while this...

0

AFO's?

My Daughter (17) MO old is getting casted for AFO's tomorrow, she doesn't like ppl she doesn't know touching her, let alone her feet.. ideas for distracting her while this...

2

PRESCHOOL. BAD ANXIETY

Hi Every Amazing person out there! I am a mom with a child who has autism. He is 3 years old. I need in help of advice, comfort, reassurance on this topic. My son was accepted...

3

Early Intervention

I am looking for some information. I hope some of you can assist me. I am looking for some information. I hope some of you can be of assistance. How did you learn about Early...

4

Advice on global delay

My son as been diagnosis with global delay he is now 20 months but he also got low muscletone and congential horzonal nystagmus he has made massive improvements in some areas...

26

Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...