Mothers of Special Needs Children

If you're looking for support while raising special needs children, you're in the right place. Feel free to ask questions or give other moms advice. We all know that sometimes parenting can be a struggle so take comfort in knowing we are here to support you!

  1. 1
  2. ...
  3. 4
  4. 5
  5. 6
  6. 7
  7. ...
  8. 211
0

Autism denial

I live in NY and my daughter with Autism ADHD Sensory self care and learning along with speech and OT With a IEP and special Ed got denied benefits we got the letter yesterday...

0

Autism denial

I live in NY and my daughter with Autism ADHD Sensory self care and learning along with speech and OT With a IEP and special Ed got denied benefits we got the letter yesterday...

1

SSI dedicated account

My daughter has been getting SSI for a few years now and the ssa wrote me stating that they made a mistake and owe her $8000 then they told me after 6 months to open a savings...

0

Duplication of 4q32.2q35.2

Can someone please explain what this means in layman's terms---- The 23.2 megabase ( MB ) duplication of 4q32.2q35.2 involves approximately 95 genes. Duplication of the...

0

Duplication of 4q32.2q35.2

Can someone please explain what this means in layman's terms---- The 23.2 megabase ( MB ) duplication of 4q32.2q35.2 involves approximately 95 genes. Duplication of the...

0

95 genes

Hi everyone. I am new to this group and I don't know where to start. I am raising my granddaughter who will be 7 months old on the 21st of this month.she has had some issues...

0

95 genes

Hi everyone. I am new to this group and I don't know where to start. I am raising my granddaughter who will be 7 months old on the 21st of this month.she has had some issues...

0

Extra chromomes

Hi everyone. I am new to this group and I don't know where to start. I am raising my granddaughter who will be 7 months old on the 21st of this month.she has had some issues...

0

Extra chromomes

Hi everyone. I am new to this group and I don't know where to start. I am raising my granddaughter who will be 7 months old on the 21st of this month.she has had some issues...

13

Kids with Prosthetic limbs?

Just curious if any one here has a child that uses a prosthesis. My son Dustin is 9 yrs old & has had a prosthetic leg since he was 16 months old. He was born with a deformed...

2

speech delay

my son will be 4 years on 25 nov and till now he did not speak a single word plz tell me some suggestions how can i encourage him h

1

16p12.2 microdeletion

Hi, may daughter was diagnosed with a chromosome defect yesterday 16p12.2 microdeletion but I can't find any information I was given a print off but it's very long doctor...

  1. 1
  2. ...
  3. 4
  4. 5
  5. 6
  6. 7
  7. ...
  8. 211
0

Mild cerebral palsy

On January 22nd 2016 i went to the ER with chest pain i thought i was having a heart attack after a urine test and some blood work the doctors told me i was pregnant i was...

0

Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

0

Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

0

My son and potty training

So my son just turned 4 yrs old. He has developmental delays, neurofibromas and low muscle tone. So any suggestions on potty training he starts prek on weds. He is on IEP so...

0

Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

0

Tendon lengthening surgery

My 22 year old son with cerebral palsey just had tendon lengthening surgery on his legs. He has a cast on his lower right leg and braces on both legs so he can't bend them. The...

1

Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

1

My son 10 years old

I have son 10 years old he diagnosed with cebral palsy which is WDS at age 9 sometimes I am wondering he will be independent one day anyone experience please let me know thank u

1

Diapers

I need a bigger diapers for my 8 yrs daughter who had reverse vesticostomy n we catherize her and now she is growing up n I'm using pamper size 6 .. its small on her .. plz...

2

speech delay

my son will be 4 years on 25 nov and till now he did not speak a single word plz tell me some suggestions how can i encourage him h

2

Daughter with Low IQ

I have a wonderful 12 yr old daughter adopted from Guatemala at 4 months old. She has been diagnosed with an IQ of 69. On first look she is an average 12 yr old . She is so...

2

Concerned for my baby girl.

Does anyone have any experience with Cerebral Palsy? My daughter was just evaluated, and qualified for pt and OT through early intervention. I am so worried and scared for...

29

Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...