Mothers of Special Needs Children

I know myself, I could use a lot of help raising my kids. I have asked for all the help that is out there. Even worse is the everyday struggle with their delays. It would be nice to share with mothers who experience the same struggles as I do.

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Periventricular Leukomalacia

I am a somewhat new mother of a 27 weeker that weighed 1lb 8oz at birth, during his 3 month stay in the NICU, he developed a blood infection and meningitis that resulted in a...

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Global developmental delay

hi my 5 year old daughter has gdd - i have been concerned for a while that she may be at the lower end of asd but the doctors wont even listen wen i mention it because she looks...

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SSI DEDICATED ACCOUNT

I recently recived my REPRESENTATIVE PAYEE REPORT OF BENEFITS AND DEDICATED ACCOUNT. I am wondering since I spent my daughter dedicated account money on Back rent, and car...

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State Help???

My son has been diagnosed with cerebral palsy and I have been told by many people that I should be able to receive help from the state via a medical card, disability, etc. I...

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tube feeding formula

My 4 year old is getting pediasure by g-tube and it is not working well for him. His GI doc doesn't want to switch him to something different, so I am going to do it myself...

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devolmental delay

Hi any mummies on here have experience of this lo 9 months recently diagnosed with development delay waiting on genetics tests coming back x

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worn out

Exhausted from the therapies, doctors, private special needs schools, paperwork to get financial assistance from the state, and fighting with insurance companies!!!! Is it just me?

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worn out

Exhausted from the therapies, doctors, private special needs schools, paperwork to get financial assistance from the state, and fighting with insurance companies!!!! Is it just me?

3

iPad for developmental delay

I am the grandmother of a 20 month old boy who has been diagnosed with developmental delay do to birth injury to the brain. We as his family have been thinking that perhaps an...

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Introduction: Are you there?

My name is Lisa and I am a mother of three beautiful children: 8, 6 and 5. My 6 and 5 year olds were diagnosed with autism. I want to connect with other parents who have kids...

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porencephaly/hydrocephalus

My daughter is now 17 months old. At 15 1/2 months she started having seizures and was diagnosed with porencephaly and hhydrocephalus. she has had 3 brain surgeries since. The...

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Sotos Syndrome???

Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are...