7 year old and possible bipolar diagnosis...any advice, experiences to share?

Catherine - posted on 12/07/2010 ( 11 moms have responded )

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My eldest son, who just turned 7 last week, is currently waiting for a "formal" diagnosis, which I am quite certain will eventually be Bipolar. He was initially thought to be autisitic when he started school. This was then changed to selective mutism. After seeing a speech therapist and a psychiatrist, he was found to have speech articulation issues which were causing anxiety. We worked with a speech therapist for 2 years until he aged out of their program and was assigned a speech therapist through the school system. Grade 1 was an awful year as he became the target of bullying in his class. He became very anxious and started lashing out. He was voluntarily placed in a 'safe and caring' school class with a ratio of 6 students to 3 teachers. He excelled in this environment and finally received a Psycho-Educational Evaluation and was found to have Anxiety/ADD/ODD. We started medicating over the summer break and he returned to his regular school this year for grade 2. He was doing fine until after 3 months of treatment with Strattera he plateaued and his doctor increased his dose. Within 2 weeks of the increase, he wasn't sleeping, he was fearful, paranoid, hallucinating and very aggressive! We stopped the meds and are now waiting to have him seen by a child psychologist.
I, myself, am bipolar with anxiety, and I see so much of myself and my own behaviours, in my son. His most recent episode was so similar to the manic episodes I've experienced both as an adult and a child. My parents and doctor as a child, felt my issues were just a phase that I would grow out of and it wasn't until I sought treatment on my own at 18, that I finally received the care and support I needed. I refuse to wait it out and allow my son to suffer when there is so much we can do for him!

Any advice or experiences you want to share? I just need to know I'm not alone and hopefully gain some knowledge along the way!

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11 Comments

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Crystal - posted on 12/22/2010

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Hi Catherine,
I just wanted to let you know the no you are not alone! My 16 year old son was diagnosed with Bipolar when he was 8 by a social worker. Although not a "real" diagnosis until very recently, he has been treated with mood stabilizers ever since. Our first clue was when the Strattera made him manic and suicidal at age 8. He too was paranoid and delusional on the medication.

The most important thing I could do (and the hardest) was to not give up when the kept telling me is behaviors were just a phase, or because of the fighting between my husband and myself, or because I was an inexperienced mom....I heard every reason in the book for why my son was behaving the way he was...all except that he had a brain disorder.

Now it turns out that my second child (15 next month) may also be bipolar.....

Cheryl - posted on 12/17/2010

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that is great...thanks for the update

Catherine - posted on 12/17/2010

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Thank you all for your wonderful feedback and for sharing your experiences. It helps to gain the experience of others and to be given questions and sometimes answers, that I would otherwise not have thought of.
To update on my original post, Aiden saw his pediatrician on Dec. 01 where it was detemined that increasing the dose of Strattera had caused activation, which in essence caused a manic episode. We immediately stopped Strattera and he was started on Risperidone to help him sleep and to control his hallucinations and paranoia. So far it has been a huge help although he still claims he's being watched and sees things on occasion. He met with a child and youth psychiatrist, on Dec.10, who gave an unconfirmed but suspected diagnosis of ADHD, Anxiety, Bipolar & PPD-NOS. He prescribed Zoloft to help stabilize Aidens moods/anger/anxiety. It is a difficult diagnosis since so many of the symptoms of one condition often mimic those of other conditions. Dr. V's suspicions at least give us a baseline to use in ruling out other conditions and to start medicating. He is also referring him to a child psychiatrist though The Centre for Addiction & Mental Health (CAMH). Aiden is currently attending the Dinosaur Years Social Skills program at CAMH and they already have his history and have done assessments, which will make the referral process a bit easier and quicker. So far the Zoloft has made Aiden less aggressive and calmer. He is also able to touch and be touched once again which was a trigger for almost a year. I love how affectionate he has become!!
I also confided in Aiden that I experience many of the same symptoms he's been experiencing and that is why Mommy also takes medication every day. I've found since I made this revelation, he's no longer resistant to taking his meds and has been sharing his feelings and thoughts much more. He's even able to speak with his doctor which he has never done before.
It's been a difficult journey to say the least but we have found very supportive and knowledgable doctors to assist us. The same can be said for his principal and some close family and friends. His teacher has been struggling though which has had a negative effect on Aiden but to give the man credit, this is his first teaching assignment and he has been trying to find his teaching style while trying to learn how to teach a student with special needs.
Add to all of this trying to care for his younger brother who is also starting to show some signs of ADHD, AND being 6 months pregnant, AND being bipolar myself (and not taking meds while pregnant) and some days I want to run away!!
But I am so grateful to know I'm not alone and to know that I am doing all I can to give my son(s) a quality of life I was denied when my own bipolar/anxiety was denied as a child!
I know in the end the effort is so worth it, especially when I see my son being a child, no longer so fearful or worried and when he initiates a hug, I gain a strength and a drive I never knew could exist!

Patty - posted on 12/14/2010

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I have a 10 year old daughter who was diagnosed with bipolar NOS (not otherwise specified) when she was 4 years old. Luckily we live in a suburb of Cleveland, Ohio where Rainbow Hospital (top research hospital for pediatric bipolar disorfer) is located. This is where she received her initial diagnosis and treatment. By the time she was 6 I had her on antipsychotic medication. After her first full blown manic episode at 7 years old she was officially diagnosed with bipolar I disorder. At 8 years old she was hospitalized for almost 2 weeks due to manic psychosis. She has always done very well in school academicly (IQ of 136) but has had problems behaviorly/socially. She remains completely mainstreamed inthe 5th grade now. She has been completely stable since the beginning of August and I think this is the longest stretch she has gone. We've tried many different mixtures of various medications. A huge part of this disorder is finding the right meds and fighting to educate others. I'm also working on my Phd in clinical/experimental psychology right now which gives me many opportunities to learn more about this neurobiological disorder. Feel free to contact me if you need more information or just to talk. Good luck with your son!

Cheryl - posted on 12/14/2010

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Post note: due to delay in proper treatment, diagnosis we have caught up a couple of years but he is still 2 years behind in education. Also he suffered interference with sensory intergration and we are just getting things on track there. Yes we are very proactive with his younger brother and he was in for evaluations as soon as we saw symtoms...little over age 3 and we are shooting for stability before kindergarden because it often takes quite a few trials before the proper and effective treatments are found. Especially as we are dealing with multiple issues and usual treatment for one disorder can aggrivate another one. Easiest example of this is ADHD meds that lower seizure threashold, or seizure meds that can produce aggrivate psychatric. Early intervention can reduce the long term effects in life and in education. Good luck and it is great that you are trying to get help for your child now.

Cheryl - posted on 12/14/2010

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I have two children with bi-polar and actually found myself fairly unhappy with the anti-bipolar responses. I face this on a ongoing basis along with attitude regarding the meds they take. What I can tell you is that yes they seem pretty normal..now, with meds...(they also have a seizure and adhd disorders, and as someone said they often look similar--it has been almost a 5 year journey in getting it straight) We also have a strong hereditary commonent to all 3 disorders and their birth mom was not diagnosied until after my oldest son was. Key has been finding excellent doctors that aggressively and proactively treat them. And they have multiple doctors. We travel 1300 miles for the neurology and a couple of hundred for psychiatry. But we live in the middle of no where. What I know is that my son did not function in society or school setting. That his behaviors resulted in being social osterized and bullied which aggrivated the situation until we had a complete manic eposide that we didn't recognize cause it was also in conjunction with a seizural eposide and his seizures look like bi-polar....they also aggrivate or trigger bi-polar. When we were in the video taping unit (and our doctor recommended and gratefully we have private insurance that allowed us to go to one of the best in the nation) and they said he had not only seizures but psychatric and we needed a good psychiatrist..I thought the world ended. A year later he was in school, and no it is not a resource room he is mainstreamed in the class, starting to learn and retain information consistantly, performing consistanctly on tasks and has A's and B's for grades with help of IEP that sees that he gets the assistance he needs, and is having positive social contact with others his age. All due to proper treatment for his bi-polar and in his case ADHD, and seizures as well. We have a medication regiment that includes 6-7 meds on a timing of 3 to 4 times a day. Scary yes but it is scarier to not do this as we can see what the result was of no meds, wrong meds and can look at the untreated adults in previous generations and see what the old philosophy of "don't diagnosis till they are 20" has lead to. Primary goal has been stability (which he has had for about a year except for minor dosage adjustments) then we can look at other alternatives or additional treatments. But first is stabilization. Both boys also work with a play therapist and have OT as well. Both of these have been invaluable in helping us implement stratagies and give support to us as well as the children.

Lori - posted on 12/14/2010

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Catherine, go to cabf.org. Child/Adolescent Bipolar Foundation. It is a wonderful site with caring support groups!

Nicole - posted on 12/10/2010

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Bipolar is commonly confused with ADD ADHD. the symptoms are very common and similar. however kids that do not need the ADD ADHD meds react differently some become zombies other become super hyper and agressive. i would have him tested for bipolar especially if you are bipolar yourself.

I have add as my SO has adhd and our meds work great on us. MY old grade school Friend is bipoal wiht post traumatic stress and a slight schizophrenic. she was put on aderall as a misconception of the bipolar. veronica was not diagnosed as bipolar untill a doctor switch to a specialist that worked with children and mental disorders.

she is natually a hyper happy bouncy person but she was even more so on the pills it was like giving her speed. previous pills made her zombie like and she jus t couldn't function on about 6 pills a day. as she got to highschool it was around 3 i believe. once they got her fully diagnosed.

Margarida - posted on 12/08/2010

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http://gfcf-diet.talkaboutcuringautism.o...
This site has been very helpful to me when implementing a different diet. It has good tips and recipes on how to go, gluten free, milk free, dye free, egg free, meat free, etc. Simple recipes and great ideas for substitutions on a budget. I also agree that high quality suplements are essential. I take my girls to a doctor that focuses on natural medicine/ preventive medicine/ nutrional orientation/ food sensitivity and alergies. He has been of tremendous help to me.

Amy - posted on 12/08/2010

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Hi Catherine, I just joined this group and am struggling with a son who does not have a formal Dx. He is a lot younger than your little one though. I just wanted to chime in and give a little insight to what a developmental pediatrician that we saw recently shared with me. She said that bi-polar Dx'ing of children is the new "thing" with Dr's and she doesn't feel that the Dx is being taken as seriously as it should be. Clearly you are not imagining the problems you have with your son, but I would encourage you to get second and third opinions. It's a serious Dx, and while there are SOME indications in research that bipolar could be hereditary or genetic in nature, that can quickly put a child into a self fulfilling prophecy situation too. Just wanted to let you know, because I know that just like with adults there are DXing "trends"...there are with children as well...and right now it's happening with bipolar.



I also second the PP with the food and diet sensitivities. I have severely struggled with a significant auto immune disease for over 10 years. My rhuematologist really didn't seem to have any hope for my improvement. It was really depressing...I am only 32 but could barely walk, open jars or carry my children. I started seeing a Dr who practices functional medicine and with elimination dieting and high quality supplements I AM on the way to recovery...it's very emotional to even talk about. I have come off of IV and injectable medications and high doses of vicoden, and lowered my steroid doses considerably. Once I am completely stabilized we'll start with my son to fine tune his dieting. Gluten/dye free has helped him significantly already.



Best of Luck to your family!

Margarida - posted on 12/07/2010

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I am very sorry to hear about your strugles. I do not know much about bipolar but I have two daughters with autism and anxiety attacks are a common thing around our house. Have you looked at alergies and food sensitivities? While I know this does not cure any psychological disorders I have seen from experience how much it can help them deal with daily life. After talking with mothers of children with ADHD, depression, anxiety disorders and autism that were looking at that and having positive results I decided to give it a try. I had my girls do the IgG (NOT IgE) food sensitivity blood test and started avoiding those foods. I was amazed how much better they got on attention span, mood, and how much better they got on their ability to calm themselves down. It has not, by any strech, fixed all of their problems, but it really made me realize how much environmental agressions affect their body and they just don't know how to recognize it or explain to me how they are feeling. The more I watch for foods and chemical agents that could affect their mind and body, the better they get. And also.... keep fighting for your son to get the proper services at school. He is legally entitled to them, and the school system will often try to convince you he needs less than what you think. Trust your instincts, you are his mother and you know what he needs better than anybody else!