ADHD,Obsessive Defiant Disorder, and Emotional Impared...

Stacey - posted on 03/31/2009 ( 4 moms have responded )

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My Son Was Dignoced with ADHD,Obsessive Defiant Disorder, and Emotional Impared. I found out about 3 years ago that both of us have 22q11,( DeGeorge Syndrome). It has been a very difficult life before that. His behavior at school was horrable, he would be more content playing video games than other children. I couldn't understand why, Now I do.It stimulates the mind for children with ADHD. I am still doing a lot of learning and probablywill for the rest of my life.

I am just curious if there's anyone out there that has close to the same conditions that myself and my son have. If there is Please let me know.



Thank you,

Stacey

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Kristin - posted on 03/04/2012

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yes my daughter has oppositional defiant disorder her doctor wants to put her on focalin he gave me other meds to but if i had to try one this the only one that sounds safe has anyone tried their kids on focalin

Tondra - posted on 04/13/2009

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Hi Stacey! I am new to this moms circle and I have joined in hopes of talking with other moms who have kids with some of the special needs that my son has. He has ADHD
with the some OCD mixed in there. My son is 7 so the OCD side is just developing and some days it is stronger than others. My boy is obsessive over fishing. As you know with the OCD it can become such a desire for him that he actually can and does make himself sick over the idea of going fishing and when its time to come come home we naturally have a melt down...then the negative thoughts come out that we all hate him and that we don't like to take him fishing and so on.
Thats just to get started. The ADHD is controlled very well with medication. For the first few years I tried not to use medication but my boy ended up get violent when he could not focus and control his thoughts and actions. Also he got to a point that he was so impulsive that we were worried that he would hurt himself....and not know it. My son had
an accident when he was young and from that accident he built up a pain tolerance so
when he is hurt he does not respond like most children do with crying or some emotions of pain. So still to this day we don't know if he is hurt or not sometimes we just haft to to
take and have him checked to see by the doctors to make sure that there are not injuries that we can not visibly see.

Anyways it is nice to be in a group with moms who have some of the same struggles as
I do.

I look forward to talking and learning from you all.

Lisa - posted on 04/10/2009

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Denise,



Thank you so much for posting the books and advice. My youngest is a challenging child, too. I've read some of them and they do help. The big issue we've had lately is figuring out an appopropriate diagnosis. What we thought was attachment disorder with ADHD turned out to be bipolar disorder with FAS.

Denise - posted on 03/31/2009

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I am a Child and Youth Worker (educated to work with emotional, physically and psychologically impaired children from ages 1-19).  I also have a child who is attention deficit with neurilogical impairments and severe anxiety.  Currently I work for families that have children with physical and emotional impairments.  I suffer with severe anxiety.  And my extended family has a history of ADD, ADHD, learning disabilities, emotional inbalances, anxiety, depression, Obsessive Compulsive Disorder.



I total feel for what you must be going through,  Though we wish we knew sooner the issues we face at least we know now.  My daughter and I have had great success with medical intervention as well as diet. 



It took me a long time to be willing to put my child on medications because I often encountered children medicated when it is something so simple as a diet change and positive parental involvement.  I needed to know it was the right thing to do.  I have to say we have her on the lowest doses (for the past 3yrs) as possible to help her function as best she can without over doing it.  I spend a lot of time repeating myself, setting appropriate limits, goals, working with the school and doctors, and making good nutritional choices.  I even sometimes have to remind myself to cut a little slack as I can easily frustrate over something and want too much control.  Everyday is a new adventure and everyday I learn more about her and myself.



I read a lot.  Self-help books, child raising books that contain disappline strategies, activites, calming techniques for children who have challenges such as our children.  I collect these books b/c you may read it once and get some information but there is always more the second or third time through that you might have missed. 



In your area do you have support groups?  Does you school work well with you to provide the best care they possibly can for your child, especially now that he is diagnosed?



Here's some book titles that may help:



When You Worry About The Child You Love-Emotional and Learning Problems In Children



~Edward Hallowell, MD



The Explosive Child-New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children



~ Ross W. Greene, Ph.D.



Good Kids, Bad Behaviour-Helping Children Learn Self-Discipline



~Peter Williamson, PH.D



Grace Based Parenting



~Dr. Tim Kimmel



Creative Correction-Extraordinary Ideas for Everyday Discipline



~Lisa Whelchel



 



And whatever else you can get your hands on that can explain your conditions more clearly.



 



Hope this helps

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