advice about a 2.5 year old with speech delay/ apraxia

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Kathy - posted on 08/10/2011

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My son struggle with apraxia and delay. So many "professionals" shy away from discussion the topic that Ihave had a hard time understanding how to help. He has speech then it degrades then comes back stonger. every once in a while even when he was really young a perfectly articulated sentence would pop out and stop me in my tracks then back to one word conversations. Most helpful experiences were pre-school with peer models, a best fiend with very clear speech, Hippo Therapy (he talked non stop about the horse and his speech blossomed as well as helping his balance tremendously), before this I was bribing him to say anything, along with a SLP that seemed to understand how to work with him. We have also made very stong strides after working with highly qualified Feldenkrais and Anat Baniel practitioners. I am currently trying to get him in with and SLP that specializes in NDT. Lots of patients and understanding, as my child gets older and aquires more speech I have dicovered he has an amazing memory and he tells me about experiences he had when his speech was so limited I wondered what was going on is his little world. Apparently his mind was on fire even if he couldn't tell me about what he was thinking. I hope you find something useful. A book i have found highly interesting is "The brain that changes itself" it has helped me to understand what my son really needs, the therapists are great but they are only there and hour a week at best. I'm the one that needs to understand my child.

Shellah - posted on 08/09/2011

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Brandy, does your child have apraxia or a speech delay? The 2, I have learned after yrs. of research and help by our great Pathologist, are very different. A child w/Apraxia doesn't follow the same patterns as a child that is just delayed. A delayed child could possibly start talking one day, in contrast a child with apraxia has to work very hard every day and progress can be painfully slow (but also very rewarding!). Also it is VERY important that a child w/Apraxia receives the correct individual speech therapy as often as possible w/a pathologist who is trained. Prompt therapy and the Kaufman Method work wonders on my 5 1/2 yr. old who is very severe. He has verbal, motor and oral apraxia. All were very severe until about 4yrs., now his motor skills are greatly improved. Having great therapists and being a mom who researches everything the doctors and therapist say has been very important. My son now has about 30 words that everyone can understand and he uses an IPad w/Proloquo2go to help facilitate speech when he can't do it on his own. The IPad is there to alleviate stress and make his feel successful on his own, but is NOT used in place of speech. He is still expected to repeat what the IPad is saying, and he loves to try repeating it!
Good luck w/your child. I hope you also find the right speech pathologist that can help your child be the best he can be. As one mom posted the apraxia-kids website is a great place to start. I spent a lot of time over the years reading posts and I've learned a lot.
Best of luck!!!

[deleted account]

I can't really tell you much about Apraxia myself. I don't know where you are located but I know that our children's hospital has a lot of resources for prents and parent info nights. From what I understand this affects the ability to makes thoughts into actions amung other things including affecting fine motor skills. Sorry I can't be much further help.

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Vikki - posted on 08/22/2011

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I am a daycare provider of 18 years and have found a wonderful at home program I have been working with two of my kiddos called Speechtails ( speechtails.com). I have had great success and we really love it. It also gives tons of tips, games, and activities to help encourage speech. Give it a shot! Vikki B, Indiana

Brandy - posted on 08/10/2011

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Very helpful Kathy does any of the moms live in or near Cartersville, Ga

Brandy - posted on 08/10/2011

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my son has a speech delay but two weeks ago my slp said that if Andrea had to diagnose him that she would diagnose him with apraxia like he use to say mom and now its bob instead of mom he use to say some words but after a week or two he quits saying them all together like they just disappeared. he will be transition into special needs preschool in dec. bc he will turn 3 then. we have to go in two weeks to have an abr hearing test done bc he's already failed 3 test. just yesterday the slp came and i told her about mom and she said that he's not putting his lips and tongue in the right place or the right way. so what does all of this mean any thoughts please

Brandy - posted on 08/09/2011

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I'm new with apraxia don't really know much about it or what to expect any info will be great

[deleted account]

There are lots of Speech Therapists and Literacy specialists out there. We have two at my son's special needs school here in Calgary. Maybe look it up in the phone book or ask for a referral from your GP.

Angela - posted on 08/09/2011

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What kind of advice are you looking for? Help with communication? help with the delays? It would be easier to help if we knew what you're looking for. :D

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