Edan - posted on 06/25/2009 ( 6 moms have responded )
My child has Prader-Willi syndrome-the syndrome that got alot of press a couple of years ago on Oprah where the children can eat themselves to death and look like sponge bob sqare pants. It's no fun because they usually have co-morbidites (associated diagnosis) like generalized anxiety, OCD, and things like skin picking and will repeat things over and over. Each child is different, but it is rare and very hard to deal with. Nobody else in my town has a child with this syndrowm and I feel like I'm all by myself. I've tries very hard and the doctors say I've done a good job because she looks good (5'0", 160#), but a what cost to myself? My stress level is extreme to say the least. Any ideas?